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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Spring Events

Summer event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA Fall Event Season Kicks Off

Cure SMA Fall Event Season Kicks Off

The month of August marks not only SMA Awareness Month but the start of our fall event season....

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Illinois Adopts Permanent SMA Screening

Illinois Adopts Permanent SMA Screening

Last night, Governor Bruce Rauner of Illinois signed SB 456, adding spinal muscular atrophy (SMA) to the state’s newborn screening...

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Heather Tomko Crowned as Ms. Wheelchair USA 2018

Heather Tomko Crowned as Ms. Wheelchair USA 2018

The guest blog post below was written by Heather Tomko, sharing her experience in the Ms. Wheelchair USA 2018 pageant. She is the...

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2018 SMA Researcher Meeting Summary: SMA Therapy Development

2018 SMA Researcher Meeting Summary: SMA Therapy Development

The SMA Researcher Meeting is the largest research meeting in the world...

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Community Spotlight: Brynne Willis

Community Spotlight: Brynne Willis

At 10 years old, Brynne Willis knew something was wrong; it was time for the Presidential Fitness Test required by public schools and she kept...

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