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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Spring Events

Spring events season is around the corner. Join us! Find an upcoming event in your area, or host your own event.

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Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and...

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Recording of Genentech/Roche and Cure SMA Webinar Now Available Online

Recording of Genentech/Roche and Cure SMA Webinar Now Available Online

A recording of this week’s webinar with Genentech/Roche is now available online.

During the webinar, Genentech/Roche shared their...

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Cure SMA Advocates for SMA Community at ICER Hearing

On Thursday, March 7, Cure SMA testified on behalf of the SMA community at a meeting of the Institute for Clinical and Economic Review (ICER)....

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Biogen Provides 2019 Community Update on Spinraza

Biogen Provides 2019 Community Update on Spinraza

Dear members of the SMA community,

As we celebrate Rare Disease Day 2019, we are honored to continue supporting the spinal muscular...

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Join a Walk-n-Roll Near You

Join a Walk-n-Roll Near You

The Cure SMA Walk-n-Roll is a fun, family-friendly event that supports Cure SMA’s mission of driving breakthroughs in treatment and care...

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