Staff & Board

Meet some of the people behind Cure SMA.


Kenneth Hobby, president


Jill Jarecki, PhD, chief scientific officer
Lisa Belter, MPH, senior research data analyst
Rosangel Cruz, MA, BS, director of research and clinical affairs
Jacqueline Glascock, PhD, senior scientific program manager
Mary Curry, ND, senior manager, clinical affairs
Allison Mazzella, research associate

Clinical Care

Mary Schroth, MD, chief medical officer 
Teresa Stewart, director of operations
Jamie Shish, senior manager, care center network
Abby Paras, clinical care program manager

Policy and Advocacy

Jaimie Vickery, vice president 
Helena Hernandez, coordinator

Events and Family Support

Colleen McCarthy O’Toole, vice president 
Amber Snyder, director  
Shannon O'Brien, director
Jessica Clark, senior manager  
Daniela Enea, manager  
Karen O'Brien, manager    
Eileen Venedam, manager 
Anna Parker, manager
Katie Mogell, manager
Amanda Krautstrunk, specialist 
Hannah Tolman, specialist
Sara Lipscomb, coordinator
Brittany Richter, coordinator
Sam Schreiber, coordinator 
Kathleen Wittmann, administrative associate
Alec Basso, warehouse associate

Development, Marketing and Communications

Erin Kelly, vice president, development
Megan Lenz, director of marketing and communications
Jacob Oher, director of corporate and foundation development
Brett Kinley, manager of individual giving 
Alyssa Zavislak, development manager
Michelle Pantoja, marketing manager
Sarah McCall, communications coordinator 
Tiffany Sugar, graphic designer

Finance and Operations

Marline Pagan, vice president, finance and operations
Sherryl Dunning, accounting manager
Foster Lewin, senior manager, database and systems
Jonathan Roth, coordinator, data quality & IT support
Jo Holland, data entry clerk
Meghan Nordstrom, staff accountant
Jessica Drew, hr generalist
Alissa deRamus, executive assistant



Richard Rubenstein, Esq., Chair
Kelly Cole, Secretary
Bradley Nunemaker, Treasurer

Current Board Members:

Corey Braastad, PhD
Matt Evans
Nick Farrell
Robert Graham
Jaclyn Greenwood
Annie Kennedy
Doug Kerr, MD, PhD
Edmund Lee
Rob Lockwood
Gillian Mullins
Thomas Murray, PhD
Spencer Perlman
Shannon Shryne
Brian Snyder, MD, PhD
Peter Statile
Danyelle Sun
Shannon Zerzan

Committee Members:

Carolyn Barrett
Cathy Barsotti
Douglas Erwin
Brant Imperatore
Kathy Klinger, PhD
Jonathan Lasko
Srin Madipalli
Catherine Martin
Mary McHale
Amy Medina
Steven Ragland
Charlotte Sumner, MD
Brynne Willis
Patrick Woodruff

Director Emeriti:

Audrey Lewis
Paula Barrett
Adi Rappoport
Barb Trainor
Sandy Wimsatt

Past Board Members:

Karen Burton, Chris Diaz, Jim Gaudreau, Natalie Gibbs, Richard Grossman, Artemis Joukowsky, Bob Lockwood, Amy Marquez, Jeff Martineau, Steve Mikita, Melissa Milinovich, Jessica Moyer, Marilyn Naiditch, John Porter, Mike Rudd, Shelley Share, Gene Trainor, Angela Wrigglesworth, Greg Zerzan 

Advisory Boards

Scientific Advisory Board

Translational Advisory Council

Medical Advisory Council


Please visit our chapters page to see a complete list of chapter contact information.

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