Staff & Board
Meet some of the people behind Cure SMA.
Kenneth Hobby, president
Family Support and Development
Colleen McCarthy O’Toole, senior director
Amber Snyder, assistant director (Central territory)
Shannon O'Brien, senior manager (programs and Illinois/Wisconsin territory)
Jessica Clark, manager (programs and Michigan/Indiana territory)
Daniela Enea, manager (Plains territory)
Karen O'Brien, manager (family support)
Ellen Perry, manager (West Coast territory)
Jenna Reed, manager (South Eastern territory)
Heidi Roy, officer (New England territory)
Eileen Venedam, manager (Mid-Atlantic territory)
Amanda Krautstrunk, associate (New Jersey/Delaware territory)
Hannah Tolman associate (Mountain territory)
Emily Kehoe, assistant
Richard Rubenstein, Esq., Chair
Kelly Cole, Secretary
Bradley Nunemaker, Treasurer
Current Board Members:
Corey Braastad, PhD
Doug Kerr, MD, PhD
Thomas Murray, PhD
John Porter, PhD
Steven Ragland, Esq.
Greg Zerzan, Esq.
Kathy Klinger, PhD
Brian Snyder, MD, PhD
Charlotte Sumner, MD
Past Board Members:
Paula Barrett, Karen Burton, Chris Diaz, Jim Gaudreau, Natalie Gibbs, Richard Grossman, Artemis Joukowsky, Amy Marquez, Jeff Martineau, Steve Mikita, Jessica Moyer, Marilyn Naiditch, Adi Rappoport, Mike Rudd, Shelley Share, Barb Trainor, Gene Trainor, Sandy Wimsatt, Angela Wrigglesworth
Please visit our chapters page to see a complete list of chapter contact information.