Staff & Board

Meet some of the people behind Cure SMA.


Kenneth Hobby, president


Jill Jarecki, PhD, chief scientific officer
Lisa Belter, MPH, research data analyst
Rosangel Cruz, MA, BS, associate research director
Jacqueline Glascock, PhD, scientific program manager

Clinical Care

Mary Schroth, MD, medical director
Page Kirkpatrick, MHA/MBA, manager

Events and Family Support

Colleen McCarthy O’Toole, senior director
Amber Snyder, director  
Shannon O'Brien, director
Jessica Clark, senior manager  
Daniela Enea, manager (Plains territory)
Karen O'Brien, manager (family support)
Jenna Reed, manager (South Eastern territory)
Eileen Venedam, manager (Mid-Atlantic territory)
Amanda Krautstrunk, associate (New Jersey/Delaware territory)
Hannah Tolman associate (Mountain territory)
Sara Lipscomb, associate
Sam Schreiber, associate (Central territory)

Development, Marketing and Communications

Erin Kelly, director, development
Megan Lenz, director, marketing and communications 
Sarah McCall, communications associate
Tiffany Sugar, graphic designer


Marline Pagan, director of finance and operations
Sherryl Dunning, accounting manager


Jo Holland, data entry clerk
Alissa deRamus, executive assistant



Richard Rubenstein, Esq., Chair
Kelly Cole, Secretary
Bradley Nunemaker, Treasurer

Current Board Members:

Corey Braastad, PhD
Douglas Erwin
Annie Kennedy
Doug Kerr, MD, PhD
Bob Lockwood
Melissa Milinovich
Thomas Murray, PhD
Brad Nunemaker
Spencer Perlman
John Porter, PhD
Steven Ragland, Esq.
Richard Rubenstein
Greg Zerzan, Esq.

Committee Members:

Jaclyn Greenwood
Kathy Klinger, PhD
Sierra Kulas
Edmund Lee
Catherine Martin
Mary McHale
Ted Robb
Shannon Shryne
Brian Snyder, MD, PhD
Peter Statile
Charlotte Sumner, MD
Patrick Woodruff

Director Emeriti:

Audrey Lewis

Past Board Members:

Paula Barrett, Karen Burton, Chris Diaz, Jim Gaudreau, Natalie Gibbs, Richard Grossman, Artemis Joukowsky, Amy Marquez, Jeff Martineau, Steve Mikita, Jessica Moyer, Marilyn Naiditch, Adi Rappoport, Mike Rudd, Shelley Share, Barb Trainor, Gene Trainor, Sandy Wimsatt, Angela Wrigglesworth

Advisory Boards

Scientific Advisory Board

Translational Advisory Council

Medical Advisory Council


Please visit our chapters page to see a complete list of chapter contact information.

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