Staff & Board

Meet some of the people behind Cure SMA.


Kenneth Hobby, president


Jill Jarecki, PhD, chief scientific officer
Lisa Belter, MPH, research data analyst
Rosangel Cruz, MA, BS, associate research director
Jacqueline Glascock, PhD, scientific program manager

Clinical Care

Mary Schroth, MD, medical director
Page Kirkpatrick, MHA/MBA, manager

Family Support and Development

Colleen McCarthy O’Toole, senior director
Amber Snyder, assistant director (Central territory)
Shannon O'Brien, senior manager (programs and Illinois/Wisconsin territory)
Jessica Clark, manager (programs and Michigan/Indiana territory)
Daniela Enea, manager (Plains territory)
Karen O'Brien, manager (family support)
Jenna Reed, manager (South Eastern territory)
Heidi Roy, officer (New England territory)
Eileen Venedam, manager (Mid-Atlantic territory)
Amanda Krautstrunk, associate (New Jersey/Delaware territory)
Hannah Tolman associate (Mountain territory)
Sara Lipscomb, associate, development and family support department
Emily Kehoe, assistant


Megan Lenz, senior communications manager
Sarah McCall, communications associate
Tiffany Sugar, graphic designer


Marline Pagan, director of finance and operations
Sherryl Dunning, accounting manager


Jo Holland, data entry clerk
Alissa deRamus, executive assistant



Richard Rubenstein, Esq., Chair
Kelly Cole, Secretary
Bradley Nunemaker, Treasurer

Current Board Members:

Corey Braastad, PhD
Douglas Erwin
Annie Kennedy
Doug Kerr, MD, PhD
Bob Lockwood
Melissa Milinovich
Thomas Murray, PhD
Brad Nunemaker
Spencer Perlman
John Porter, PhD
Steven Ragland, Esq.
Richard Rubenstein
Greg Zerzan, Esq.

Committee Members:

Jaclyn Greenwood
Kathy Klinger, PhD
Sierra Kulas
Edmund Lee
Catherine Martin
Mary McHale
Ted Robb
Shannon Shryne
Brian Snyder, MD, PhD
Peter Statile
Charlotte Sumner, MD
Patrick Woodruff

Director Emeriti:

Audrey Lewis

Past Board Members:

Paula Barrett, Karen Burton, Chris Diaz, Jim Gaudreau, Natalie Gibbs, Richard Grossman, Artemis Joukowsky, Amy Marquez, Jeff Martineau, Steve Mikita, Jessica Moyer, Marilyn Naiditch, Adi Rappoport, Mike Rudd, Shelley Share, Barb Trainor, Gene Trainor, Sandy Wimsatt, Angela Wrigglesworth

Advisory Boards

Scientific Advisory Board

Translational Advisory Council

Medical Advisory Council


Please visit our chapters page to see a complete list of chapter contact information.

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