Carolinas Chapter

If you live in North Carolina or South Carolina, we invite you to contact the Carolinas Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
925 Busse Rd.
Attn: Carolinas Chapter
Elk Grove Village, IL 60007

Phone: 252.303.0014


Join our Facebook page.


Jennifer Lee, President

Rebekka Mastin, Vice President

Mimi Chan, Communications Chair

Chapter Updates

2018 Charlotte Walk-n-Roll

Join us for the Chalrotte Walk-n-Roll on October 6, 2018 for this inaugural event! There will be glitter tattoos, games, activities, music, and breakfast catered by Roots Catering!

Please visit the event website for more information.

2018 Raleigh Walk-n-Roll

Join us for the Raleigh Walk-n-Roll on September 29, 2018. It will be a morning full of fun for the entire family at beautiful Anderson Point Park. Create your team and start fundraising today to help us cure spinal muscular atrophy, the number one genetic cause of death for infants.

Please visit the event website for more information.

Raleigh Summit of Strength

Please join us on Saturday, January 12, 2019 for the Raleigh Summit of Strength at The StateView Hotel, Autograph Collection. The Summit of Strength Program is a local event uniting the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, advocate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website for more details and the agenda.

Help advocate for SMA Newborn Screening in North Carolina

We have an opportunity to advocate for newborn screening in North Carolina and are looking for volunteers to meet with their representatives to speak about the impact of SMA and the importance of newborn screening. We especially need volunteers in House districts 9, 36 and 75 (Reps. Murphy, Lambeth and Dollar), and Senate districts 5, 7, 18 and 31 (Sens. Davis, Pate, Barefoot and Kraweic), as those legislators serve on the committees that will be first to advance any newborn screening efforts. But please reach out to us if interested, even if you are not in one of those districts. We’ll be expanding this project in the coming weeks and months and will keep you on the list! Email if interested.

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Carolinas Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Carolinas Chapter, please contact Sam Schreiber at or 800.886.1762.

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