Carolinas Chapter

If you live in North Carolina or South Carolina, we invite you to contact the Carolinas Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
925 Busse Rd.
Attn: Carolinas Chapter
Elk Grove Village, IL 60007

Phone: 252.303.0014


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Jennifer Lee, President

Rebekka Mastin, Vice President

Mimi Chan, Communications Chair

Chapter Events

Charleston Summit of Strength

The Summit of Strength is a single-day educational event hosted by Cure SMA.

Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support.

This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver.


Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Carolinas Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Carolinas Chapter, please contact Staff at or 800.886.1762.

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