Carolinas Chapter

If you live in North Carolina or South Carolina, we invite you to contact the Carolinas Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


PO Box 30157
Winston-Salem, NC 27130

Phone: 252.303.0014


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Jennifer Lee, President

Rebekka Mastin, Vice President

Mimi Chan, Communications Chair

Chapter Updates

2017 Raleigh Walk-n-Roll

Join us for the Raleigh Walk-n-Roll on September 30, 2017. It will be a morning full of fun for the entire family at beautiful Anderson Point Park.Create your team and start fundraising today to help us cure spinal muscular atrophy, the number one genetic cause of death for infants.

Please visit the event website for more information.

Help advocate for SMA Newborn Screening in North Carolina

We have an opportunity to advocate for newborn screening in North Carolina and are looking for volunteers to meet with their representatives to speak about the impact of SMA and the importance of newborn screening. We especially need volunteers in House districts 9, 36 and 75 (Reps. Murphy, Lambeth and Dollar), and Senate districts 5, 7, 18 and 31 (Sens. Davis, Pate, Barefoot and Kraweic), as those legislators serve on the committees that will be first to advance any newborn screening efforts. But please reach out to us if interested, even if you are not in one of those districts. We’ll be expanding this project in the coming weeks and months and will keep you on the list! Email if interested.

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Carolinas Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Carolinas Chapter, please contact Sam Schreiber at or 800.886.1762.

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