Greater New York Chapter, Capital Region

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Phone: 518.791.2758


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Amy Cunniff-Bleau, President – Capital Region Satellite Chapter

Chapter Updates

New Chapter Officers Needed

Looking to get more involved with Cure SMA on a local level? The Greater New York Capital Region Chapter is currently looking for additional leadership to help with family support, fundraising and awareness. If interested, please contact Eileen Venedam at

Chapter Fundraising Events

Come out and support Cure SMA in the 5th Annual Glen Lake Ice Fishing Tournament on Saturday, January 27th in Glen Lake, NY. This fundraiser is being hosted by Docksider Restaurant in memory of Trooper Cunniff. Click here to view the event flyer for more details.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Greater New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Greater New York Capital Region Chapter, please contact Eileen Venedam at or 847.264.1161.

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