Greater New York Chapter, Capital Region

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
Cure SMA
Attn: Greater NY Capital Region Chapter
925 Busse Rd
Elk Grove Village, IL, 60007


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Amy Cunniff-Bleau, President – Capital Region Satellite Chapter

Allie Balleau, Family Support and Fundraising

Chapter Updates

Join us in Rochester, NY on September 14th! Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support. This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver.

Register Today!

Chapter Fundraising Events

Come out and support the 6th Annual Ice Fishing Tournament in memory of NYS Trooper David Cunniff on Saturday, January 26, 2019 in Lake George, NY. Click here for more details.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Greater New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Greater New York Capital Region Chapter, please contact Eileen Venedam at or 800.886.1762.

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