Greater New York Chapter, Capital Region

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
Cure SMA
Attn: Greater NY Capital Region Chapter
925 Busse Rd
Elk Grove Village, IL, 60007


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Amy Cunniff-Bleau, President – Capital Region Satellite Chapter

Allie Balleau, Family Support and Fundraising

Chapter Updates

New Chapter Officers Needed

We are excited to have Allie Balleau join the Capital Region Chapter as one of our new chapter leaders. Thank you for joining the Cure SMA team!

Looking to get more involved with Cure SMA on a local level? The Greater New York Capital Region Chapter is currently looking for additional leadership to help with family support, fundraising and awareness. If interested, please contact Eileen Venedam at

Chapter Fundraising Events

Come out and support the 6th Annual Ice Fishing Tournament in memory of NYS Trooper David Cunniff on Saturday, January 26, 2019 in Lake George, NY. Click here for more details.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Greater New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Greater New York Capital Region Chapter, please contact Eileen Venedam at or 800.886.1762.

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