Greater New York Chapter

If you have a zip code starting with 11 or 12, we invite you to contact the Greater New York Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Mailing address:
Cure SMA
Attn: Greater NY Chapter
925 Busse Rd
Elk Grove Village, IL, 60007

Email: greaterny@curesma.org

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Officers

Erin and Kevin Bonner: Co-Chairs

ToniAnn Accardi: Family Support

Dianne Larson: Advocacy

Debbie Cuevas

Jennifer Lozina

Genevieve Fitzpatrck

Chapter Updates

2019 Long Island Summit of Strength

Join us in Melville, NY on August 3rd! Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support. This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver.

Register Today!

Chapter Fundraising Events

2019 New York Evening of Hope

Please join us for the Cure SMA New York City Evening of Hope at Bistrot Bagatelle on May 8, 2019. The evening will entail a night at Meatpacking District staple restaurant, Bistrot Bagatelle, including an open bar, hors d'oeuvres, silent auction, and most importantly hope. Purchase tickets today!

2019 Greater New York Golf Outing

Please join us for the Greater NY Golf Outing on May 20, 2019 in Commack, NY at the Hamlet Golf and Country Club. Your golf registration includes 18 holes at the Hamlet Golf and Country Club, lunch, on-course beverages and dinner. Help us fund critical research and family support programs for those affected by SMA. Register today!

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Greater New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Greater New York Chapter, please contact Eileen Venedam at eileen@curesma.org or 800.886.1762.

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