Greater New York Chapter

If you have a zip code starting with 11 or 12, we invite you to contact the Greater New York Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Mailing address:
Cure SMA
Attn: Greater NY Chapter
925 Busse Rd
Elk Grove Village, IL, 60007

Email: greaterny@curesma.org

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Officers

ToniAnn Accardi

Erin Bonner

Debbie Cuevas

Amy Cunniff, - Capitol Region Satellite Chapter

Jennifer Lozina

Genevieve Fitzpatrck

Chapter Updates

Thank you to everyone who participated in this year's fall events! Because of your fundraising efforts we are able to fund ground breaking research that will hopefully one day lead to a cure.

New York Summit of Strength

Please join us on Saturday, September 8, 2018 for the New York Summit of Strength at the New York Marriott Marquis. The Summit of Strength Program is a local event uniting the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, advocate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website here for more details and the agenda.

Chapter Fundraising Events

TCS NYC Marathon

Interested in running the 2018 TCS NYC Marathon with Team Cure SMA on Sunday, November 4th? Spots are limited, so register here today!

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Greater New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Greater New York Chapter, please contact Eileen Venedam at eileen@curesma.org or 800.886.1762.

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