Illinois Chapter

If you live in Illinois, we invite you to contact the Illinois Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing Address: Cure SMA

Attn: Illinois Chapter

925 Busse Road

Elk Grove Village, IL 60007

Phone: 630.217.0087




Janet Schoenborn, president

Open, vice president

Open, secretary

Open, treasurer

Chapter Updates

Join the Illinois Chapter Board

The Illinois Chapter is currently recruiting for the positions of vice president, secretary, and treasurer. Contact Janet Schoenborn for more information.

Chicago Summit of Strength

Please join us on Saturday, August 10, 2019 for the Chicago Summit of Strength at the Renaissance Chicago O'Hare Suites Hotel. The Summit of Strength Program is a local event uniting the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support. Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, advocate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website for more details and the agenda.

Chapter Fundraising Events

Chicago Gala of Hope

Please join us for the 4th Annual Cure SMA Chicago Gala of Hope at the Ivy Room on February 22, 2019. The Chicago Gala of Hope is a fundraising event with one goal: to fund a cure for Spinal Muscular Atrophy. Proceeds from the Chicago Gala of Hope benefit Cure SMA, the leading SMA research organization. The evening will entail a night of luxury as the annual gala features cocktails, hors d’oeuvres, silent auction, live auction and live entertainment. Comedian Brett Walkow will be our MC again and the band Shout Out will perform live from 9-11:30pm. You can register for the gala by visitng the event website.

Western Suburbs Walk-n-Roll

The Cure SMA Walk-n-Roll is a fun, family friendly event that supports Cure SMA's mission of driving breakthroughs in treatment and care and providing families the support they need for today! Create your team and start fundraising today to join us on Saturday, May 18, 2019 at Ty Warner Park.  To learn more please visit the event site.  Please contact Katie Mogell at or 847.709.6340 with any questions.

Libertyville Walk-n-Roll

Join us on Sunday, May 19, 2019 for a scenic walk on a handicap accessible pathway in Indepence Grove Forest Preserve.  You'll enjoy a DJ, fun activities, an awesome raffle, and more! Create your team and start fundraising today, to learn more please visit the event site.   Please contact Katie Mogell at or 847.709.6340 with any questions.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Illinois Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Illinois Chapter, please contact Katie Mogell at or 800.886.1762.

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