Kansas City Chapter

If you live in Kansas, Missouri, Nebraska, or Oklahoma, we invite you to contact the Kansas City Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


PO Box 18485
Raytown, MO 64133

Phone: 816.529.1834

Email: kansas@curesma.org

Facebook: https://www.facebook.com/groups/kcfsma/


Kristal Wilson, president

Kim Sykora vice president

Open, secretary

Open, treasurer

Chapter Updates

Join the Kansas City Chapter Board

The Kansas City chapter is currently recruiting for the positions of secretary and treasurer. Contact Kristal Wilson for more information.

Chapter Fundraising Events

Save the Date for the 2017 Kansas City Chapter Walk-n-Roll

Create your team today and start fundraising for this fun filled day to help fund a treatment and a cure for spinal muscular atrophy. Join us Saturday, August 26, 2017 for a 5K walk starting at Bishop Miege High School in Roeland, KS.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Kansas City Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Kansas City Chapter, please contact Daniela Enea at daniela@curesma.org or 847.709.6338.

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