Minnesota Chapter

If you live in Minnesota, North Dakota, or South Dakota, we invite you to contact the Minnesota Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

PO Box 599
Osseo, MN 55369

Phone: 651.334.6722

Email: minnesota@curesma.org

Facebook: https://www.facebook.com/MinnesotaChapterOfCureSMA

Twitter: https://twitter.com/mnchapterfsma

Officers

Jon Schwerr

Kara Forcier

Matt Czech

Chapter Updates

On December 27, 2017 the Minnesota Commissioner of Health accepted the recommendation of the state's Advisory Committee on Heritable and Congenital Disorders to add SMA to Minnesota's newborn screening panel. With this decision, Minnesota becomes the second state to adopt permanent newborn screening for SMA. Thank you to all the advocates in Minnesota who have made this progress possible!

The Minnesota Chapter needs volunteers to join the fundraising committee for this years Walk-n-Roll! The Walk-n-Roll will take place September 8, 2018 at the Foundation Shelter in Roseville, MN. Please contact Brittany Richter at Brittany.Richter@curesma.org if you are interested or have any questions.

Chapter Fundraising Events

Join us at Lindenwood Park for Jack Attack on SMA: Round 13 in Fargo, ND on June 9, 2018. This event is a 5K Walk, Run or Roll! Picnic lunch to follow.

Join us for the 2018 Minnesota Chapter Walk-n-Roll in Roseville, MN on Saturday, September 8, 2018. The day will include a scenic walk through Central Park, an awesome raffle, family activities, and more! Create your team now to start fundraising for a cure!

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Minnesota Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Minnesota Chapter, please contact Brittany Richter at brittany.richter@curesma.org or 800.886.1762.

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