Minnesota Chapter

If you live in Minnesota, North Dakota, or South Dakota, we invite you to contact the Minnesota Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Mailing Address
Cure SMA
Attn: Minnesota Chapter
925 Busse Road
Elk Grove Village, IL 60007

Phone: 612.718.0131

Email: minnesota@curesma.org

Facebook: https://www.facebook.com/MinnesotaChapterOfCureSMA

Officers

Jon Schwerr

Kara Forcier

Matt Czech

Chapter Updates

On December 27, 2017 the Minnesota Commissioner of Health accepted the recommendation of the state's Advisory Committee on Heritable and Congenital Disorders to add SMA to Minnesota's newborn screening panel. With this decision, Minnesota becomes the second state to adopt permanent newborn screening for SMA. Thank you to all the advocates in Minnesota who have made this progress possible!

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Minnesota Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Minnesota Chapter, please contact Brittany Richter at brittany.richter@curesma.org or 800.886.1762.

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