New England Chapter

If you live in Maine, Massachusetts, New Hampshire, Rhode Island or Vermont, we invite you to contact the New England Chapter

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Cure SMA
Attn: New England Chapter
925 Busse Rd.
Elk Grove Village, IL 60007



BJ Mirabile, President

Kristen Farrell, Vice President, Massachusetts

Deodonne Bhattarai, Vice President, New Hampshire

Lynne Vaudry, Vice President, Rhode Island

Sue O'Neill, Vice President, Vermont

Kate Sohl, Secretary

Silvia Murphy, Treasurer

Chapter Updates

Please check back soon for chapter updates.

Chapter Fundraising Events

2019 Cure SMA Day with the Boston Red Sox

Join Cure SMA at Fenway Park to watch the Boston Red Sox take on the Los Angeles Angels on August 11, 2019 during SMA Awareness Month. For more information or to register, please visit our event page.

2019 New Balance Falmouth Road Race

Help cheer on Team Cure SMA in the 47th Annual New Balance Falmouth Road Race, a 7-mile race along the shore from Woods Hole to Falmouth Heights on Sunday, August 18, 2019. For more information or to donate to one of our runners, please visit our event page.

2019 Cure SMA Wakefield 5K Run/Walk

Join us for the 6th Annual Cure SMA 5K Run/Walk on Saturday, August 24, 2019, at the Wakefield Lower Common in Wakefield, Massachusetts. This timed race is fast, flat, and fun while curving around beautiful Lake Quannapowitt. After the race, stick around for snacks, raffles, and great music! For more information or to register, please visit our event page.

Cure SMA Boston Evening of Hope

Please join us for the Inaugural Cure SMA Boston Evening of Hope at Miel restaurant at the Intercontinental Boston on Saturday, September 14, 2019. Ticket price includes a memorable evening at Miel, Boston’s first Provence-themed brasserie, cocktails, hors d'oeuvres, a silent auction, and most importantly, hope. For more information or to register, please visit our event page.

2019 Boston Summit of Strength

The Summit of Strength is a single-day educational event hosted by Cure SMA. Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support. This is a free program which includes breakfast, lunch, and parking for all attendees. For more information or to register, please visit our event page.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the New England Chapter.

National Office Contact

Questions on chapters or events for our national office? For the New England Chapter, please contact Hannah Tolman at or 800-866-1762.

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