North Jersey Chapter
Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.
Attn: North Jersey Chapter
925 Busse Road
Elk Grove Village, IL 60007
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Kara Hartnett, Family Support & Medical Outreach Chair
Anna Pham, Fundraising Chair
Laura Watson, Fundraising Co-Chair
Alexandra Lakhman, Communications Chair
Kristen Smith, Advocacy Chair & Type 3 contact
Silvia Maldonado, Family Support Committee - Type 1 contact
Wendy Rosenbower, Family Support Committee - Type 1 palliative care contact
Dawn Cusack, Fundraising Committee Member
Brandon Hull, Advocacy Co-Chair
Please check back as we'll be adding new updated regularly.
Chapter Fundraising Events
2019 North Jersey Walk-n-Roll
Please join us at the North Jersey Walk-n-Roll on Saturday, June 22, 2019 at Roosevelt Park in Edison, NJ. This is a fun, family-friendly event bringing the SMA community together to raise funds for critical SMA research and family support programs through Cure SMA. Please visit the event website for more details.
2019 Newark Summit of Strength
Join us for the Newark Summit of Strength at the Newark International Airport Marriott on September 28, 2019. This is a one-day educational workshop where families can network with other SMA families. You'll be able to hear from national and local experts while getting the latest advances in treatment, care, advocacy, and support. This is a free event but you must pre-register. Visit the event website for more details.
Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the North Jersey Chapter.
National Office Contact
Questions on chapters or events for our national office? For the North Jersey Chapter, please contact firstname.lastname@example.org or 800.886.1762.