North Jersey Chapter

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Attn: North Jersey Chapter
925 Busse Road
Elk Grove Village, IL 60007

Email: northjersey@curesma.org

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Officers

Kara Hartnett, Family Support & Medical Outreach Chair

Anna Pham, Fundraising Chair

Laura Watson, Fundraising Co-Chair

Alexandra Lakhman, Communications Chair

Kristen Smith, Advocacy Chair & Type 3 contact

Silvia Maldonado, Family Support Committee - Type 1 contact

Wendy Rosenbower, Family Support Committee - Type 1 palliative care contact

Dawn Cusack, Fundraising Committee Member

Brandon Hull, Advocacy Co-Chair

Chapter Updates

Philadelphia Summit of Strength

Please join us on Saturday, August 11, 2018 for the Summit of Strength at the Le Meridien Philadelphia. The Summit of Strength Program is a local event united the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it's important to leverage our collective strength and provide our community with personalized, local support.

Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, adovcate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website for more details and the agenda.

Chapter Fundraising Events

2018 Cure SMA Awareness BBQ & Candle Lighting

Join us for the 2nd Annual North Jersey Awareness event on Saturday, August 25th at Merrill Park in Colonia, NJ! This family-fun afternoon will consist of spreading awareness, BBQ foods and a special candle lighting ceremony to honor those affected by SMA. Registration is free, but we are still asking everyone to sign up on the website so we can have an appropriate count of participants. Please visit the event site for more information!

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the North Jersey Chapter.

National Office Contact

Questions on chapters or events for our national office? For the North Jersey Chapter, please contact Amanda Krautstrunk at amanda@curesma.org or 800.886.1762.

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