North Jersey Chapter

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Attn: North Jersey Chapter
925 Busse Road
Elk Grove Village, IL 60007

Email: northjersey@curesma.org

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Officers

Kara Hartnett, Family Support & Medical Outreach Chair

Anna Pham, Fundraising Chair

Laura Watson, Fundraising Co-Chair

Alexandra Lakhman, Communications Chair

Kristen Smith, Advocacy Chair & Type 3 contact

Silvia Maldonado, Family Support Committee - Type 1 contact

Wendy Rosenbower, Family Support Committee - Type 1 palliative care contact

Dawn Cusack, Fundraising Committee Member

Brandon Hull, Advocacy Co-Chair

Chapter Updates

Please check back as we'll be adding new updated regularly.

Chapter Fundraising Events

2019 North Jersey Walk-n-Roll
Please join us at the North Jersey Walk-n-Roll on Saturday, June 22, 2019 at Roosevelt Park in Edison, NJ.  This is a fun, family-friendly event bringing the SMA community together to raise funds for critical SMA research and family support programs through Cure SMA.  Please visit the event website for more details.

2019 Newark Summit of Strength
Join us for the Newark Summit of Strength at the Newark International Airport Marriott on September 28, 2019.  This is a one-day educational workshop where families can network with other SMA families.  You'll be able to hear from national and local experts while getting the latest advances in treatment, care, advocacy, and support. This is a free event but you must pre-register.  Visit the event website for more details.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the North Jersey Chapter.

National Office Contact

Questions on chapters or events for our national office? For the North Jersey Chapter, please contact fundraising@curesma.org or 800.886.1762 or Alex Costelle at alexandra.costelle@curesma.org or 847.264.1179.

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