Pennsylvania Chapter

If you live in Pennsylvania, we invite you to contact the Pennsylvania Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Attn: PA Chapter
925 Busse Rd Elk
Grove Village, IL 60007

Phone: 215.605.7856


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Chapter Leaders

Karen McRory-Negrin and Hillary Schmid, family support committee co-chairs

Gina Cannady, family support committee

Allyson Henkel and Stephanie Reese, advocacy committee co-chairs

Tara Maida and Christina Mohammed, fundraising committee co-chairs

Paula Saxton and Jennifer Mertz, communications committee co-chairs

Chapter Updates

Philadelphia Summit of Strength

Please join us on Saturday, August 11, 2018 for the Summit of Strength at the Le Meridien Philadelphia. The Summit of Strength Program is a local event uniting the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, advocate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website for more details and the agenda.

10th Annual Zane's Run

The 10th Annual Zane's Run will take place on September 30, 2018 in Malvern! Create your team today and start fundraising to help us fund critical pieces of equipment for Cure SMA’s free loan program! With your support this year, Zane’s Run will provide funding for Panthera wheelchairs, bath chairs, car beds, and car vests. One mile walk and 5k options are available. Register today!

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Pennsylvania Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Pennsylvania Chapter, please contact Amber Snyder at or 800.886.1762.

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