If you live in Pennsylvania, we invite you to contact the Pennsylvania Chapter.
Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.
PO Box 721
Bangor, PA 18013
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Karen McRory-Negrin and Hillary Schmid, family support committee co-chairs
Allyson Henkel and Stephanie Reese, advocacy committee co-chairs
Tara Maida and Christina Mohammed, fundraising committee co-chairs
Paula Saxton and Jennifer Mertz, communications committee co-chairs
Warriors Karate Program
PA Isshinryu Karate and Self Defense, founded by Christopher Barone, recently held a fundraiser for Cure SMA. Through this event, he began the Warrior Program where individuals with spinal muscular atrophy can partake in karate lessons. To learn more about this amazing program, check out their program packet or you may contact Christopher Barone.
Chapter Fundraising Events
Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Pennsylvania Chapter.
National Office Contact
Questions on chapters or events for our national office? For the Pennsylvania Chapter, please contact Amber Snyder at firstname.lastname@example.org or 800.886.1762.