Pennsylvania Chapter

If you live in Pennsylvania, we invite you to contact the Pennsylvania Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


PO Box 721
Bangor, PA 18013

Phone: 866.647.8113


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Chapter Leaders

Karen McRory-Negrin and Hillary Schmid, family support committee co-chairs

Allyson Henkel and Stephanie Reese, advocacy committee co-chairs

Tara Maida and Christina Mohammed, fundraising committee co-chairs

Paula Saxton and Jennifer Mertz, communications committee co-chairs

Chapter Updates

Save the date!

Join us on Sunday, September 24th, 2017 for the 9th Annual Zane's Run at Great Valley Middle School in Malvern, PA! Enjoy the scenic paths of beautiful Chester County during the timed 5K or fun run. Register by Wednesday, August 30 at 5 pm ET to guarantee yourself an event t-shirt and save $5! Take a look at the event page for registration information.

Visit for additional information.

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Pennsylvania Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Pennsylvania Chapter, please contact Amber Snyder at or 800.886.1762.

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