Pennsylvania Chapter

If you live in Pennsylvania, we invite you to contact the Pennsylvania Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.

Contact

Attn: PA Chapter
925 Busse Rd
Elk Grove Village, IL 60007

Phone: 215.605.7856

Email: pennsylvania@curesma.org

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Chapter Leaders

Karen McRory-Negrin and Hillary Schmid, family support committee co-chairs

Gina Cannady, family support committee

Allyson Henkel and Stephanie Reese, advocacy committee co-chairs

Tara Maida and Christina Mohammed, fundraising committee co-chairs

Paula Saxton, communications committee chair

Chapter Update

2019 Philadelphia Summit of Strength

Join us in Philadelphia on September 7! Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support. This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver.

Register today!

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Pennsylvania Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Pennsylvania Chapter, please contact Amber Snyder at amber@curesma.org or 800.886.1762.

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