Pennsylvania Chapter

If you live in Pennsylvania, we invite you to contact the Pennsylvania Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Attn: PA Chapter
925 Busse Rd Elk
Grove Village, IL 60007

Phone: 215.605.7856


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Chapter Leaders

Karen McRory-Negrin and Hillary Schmid, family support committee co-chairs

Gina Cannady, family support committee

Allyson Henkel and Stephanie Reese, advocacy committee co-chairs

Tara Maida and Christina Mohammed, fundraising committee co-chairs

Paula Saxton and Jennifer Mertz, communications committee co-chairs

Chapter Updates

Pittsburgh SMA Family Gathering

Join us at Casey’s Clubhouse’s wheelchair friendly playground for an afternoon of fun. Children, adults, and families affected by SMA are welcome to join us for an afternoon of play and the opportunity to meet local members of our community.

Lunch will be provided. RSVP by September 26 at Contact with questions.

10th Annual Zane's Run

The 10th Annual Zane's Run will take place on September 30, 2018 in Malvern! Create your team today and start fundraising to help us fund critical pieces of equipment for Cure SMA’s free loan program! With your support this year, Zane’s Run will provide funding for Panthera wheelchairs, bath chairs, car beds, and car vests. One mile walk and 5k options are available. Register today!

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Pennsylvania Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Pennsylvania Chapter, please contact Amber Snyder at or 800.886.1762.

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