Virginia Chapter

If you live in Virginia or Washington DC, we invite you to contact the Virginia Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
Cure SMA
Attn: Virginia Chapter
925 Busse Rd
Elk Grove Village, IL, 60007


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Jessica White, Family Support Chair

Jim Ferry, Fundraising Chair

Kyle & Laura Derkowski, Communications/Awareness Chairs

Debra Schaefer, Fundraising/Awareness Chair

Amy Knodell, Fundraising Committee

Chapter Updates

Baltimore Summit of Strength

Please join us on Saturday, November 3, 2018 for the Baltimore Summit of Strength at the Baltimore Marriott Waterfront. The Summit of Strength Program is a local event uniting the SMA community around treatment, care, and support. As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

Through the Summit of Strength Program, the SMA community will expand efforts to share experiences, advocate for one another, and learn about the latest advances in treatment, care, and support. Please visit the event website for more details and the agenda.

Chapter Fundraising Events

2018 Virginia Chapter Walk-n-Roll

Join Cure SMA in our 4th Annual Virginia Chapter Walk-n-Roll! Create your team and start fundraising today for the walk on Saturday, October 13th. Click here for more details and to register!

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Virginia Chapter.

Interested in hosting a Cure SMA event? Contact Eileen Venedam at to help you get started.

National Office Contact

Questions on chapters or events for our national office? For the Virginia Chapter, please contact Eileen Venedam at or 800.886.1762.

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