Western New York Chapter
If you live in New York and your zip code begins with 13 or 14, we invite you to contact the Western New York Chapter.
Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.
PO Box 444
North Tonawanda, NY 14120
Mary Boguhn, Family Support & Medical Outreach Chair
Karen Shiesley, Fundraising Chair
Joanne Kwarciany, Communications Chair
Diane Blair, Family Support & Fundraising Committee
Ron & Lori Faso, Fundraising Committee
Francis & Jenifer Gutberlet, Family Support Committee
Joanne Hallmark, Fundraising Committee
Sierra Kulas, Family Support & Fundraising Committees
Paula Orlowski, Fundraising Committee
Bonnie Shiesley, Family Support & Fundraising Committee
SMA Family Support Group
Sierra Kulas has started a family support group within the Western New York Chapter. This group will support SMA families throughout the cities of Syracuse and Binghampton through family gatherings, raising awareness and fundraising events throughout the year. If you are interested in volunteering for this group and live near those areas, please contact Eileen Venedam at firstname.lastname@example.org.
Chapter Fundraising Events
Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Western New York Chapter.
National Office Contact
Questions on chapters or events for our national office? For the Western New York Chapter, please contact Eileen Venedam at email@example.com or 847.264.1161.