Western New York Chapter

If you live in New York and your zip code begins with 13 or 14, we invite you to contact the Western New York Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


Mailing address:
Cure SMA
Attn: Western NY Chapter
925 Busse Rd
Elk Grove Village, IL, 60007

Email: wny@curesma.org

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Mary Boguhn, Family Support & Medical Outreach Chair

Karen Shiesley, Fundraising Chair

Joanne Kwarciany, Communications Chair

Diane Blair, Family Support & Fundraising Committee

Ron & Lori Faso, Fundraising Committee

Francis & Jenifer Gutberlet, Family Support Committee

Joanne Hallmark, Fundraising Committee

Paula Orlowski, Fundraising Committee

Chapter Updates

Join us in Rochester, NY on September 14th! Summits are crafted to provide information for people of all ages and types of SMA, and their loved ones and caregivers. Join us to network with other SMA families and learn from national and local experts about the latest advances in treatment, care, advocacy, and support. This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver.

Register Today!

Chapter Fundraising Events

Join the Western NY Chapter on June 8th in Lockport, NY for the 2019 Pig Roast. For more details check out the event flyer here.

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Western New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Western New York Chapter, please contact Eileen Venedam at eileen@curesma.org or 800.886.1762.

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