Western New York Chapter

If you live in New York and your zip code begins with 13 or 14, we invite you to contact the Western New York Chapter.

Chapter Information

Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.


PO Box 444
North Tonawanda, NY 14120

Phone: 716.984.4233

Email: wny@curesma.org

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Mary Boguhn, Family Support & Medical Outreach Chair

Karen Shiesley, Fundraising Chair

Joanne Kwarciany, Communications Chair

Diane Blair, Family Support & Fundraising Committee

Ron & Lori Faso, Fundraising Committee

Francis & Jenifer Gutberlet, Family Support Committee

Joanne Hallmark, Fundraising Committee

Paula Orlowski, Fundraising Committee

Chapter Updates

SMA Family Support Group

Sierra Kulas has started a family support group within the Western New York Chapter. This group will support SMA families throughout the cities of Syracuse and Binghampton through family gatherings, raising awareness and fundraising events throughout the year. If you are interested in volunteering for this group and live near those areas, please contact Eileen Venedam at eileen@curesma.org.

Chapter Fundraising Events

Please visit our Cure SMA events calendar to see a pre-filtered list of events scheduled for the Western New York Chapter.

National Office Contact

Questions on chapters or events for our national office? For the Western New York Chapter, please contact Eileen Venedam at eileen@curesma.org or 847.264.1161.

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