Erin Trainor Memorial Fund
The Erin Trainor Memorial Fund has an immeasurable impact by bringing newly diagnosed families to the Annual SMA Conference. Please accept our gratitude for your generous support of the Fund and in turn the lives of newly diagnosed families. - Gene Trainor
108% of $1,000,000.00 Goal
Raised: $ 1086026 Goal: $ 1000000
The Erin Trainor Memorial Fund exists to provide scholarships for newly diagnosed SMA families to attend The Annual SMA Conference. Cure SMA has been coordinating this Conference since 1990 and in this time, has become the SMA conference to attend on an annual basis for families, clinicians and researchers alike. Not only will the ETMF allow families the opportunity to participate in this three-day event but it will also provide each with the opportunity to gather critical care and daily living information from experienced health care professionals as well as other families living with a similar diagnosis.
In February 1994, Barbara and Gene Trainor lost their five-month old daughter Erin to SMA, Type I. Throughout the past 23 years, the Trainor family, friends and colleagues have raised over $3.3 Million for Cure SMA through annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. In addition, they have provided comfort to numerous families by forming the Chesapeake Chapter in Baltimore, Maryland. The Erin Trainor Memorial Fund will honor their daughter’s memory by bringing newly diagnosed families together during the Annual SMA Conference and strengthening the SMA community.
Your tax-deductible gift to the Erin Trainor Memorial Fund today will support newly diagnosed SMA families for years to come. The average cost of an Annual Conference Scholarship for a family of up to four members is approximately $1,200 and will certainly increase annually. By making your generous contribution, you are lending a hand to those in the SMA community who need it most.
The Erin Trainor Memorial Fund has an immeasurable impact by bringing newly diagnosed families to the Cure SMA Conference. Please accept our gratitude for your generous support of the Fund and in turn the lives of newly diagnosed families. The ETMF is a restricted endowment governed by the Board of Directors of Cure SMA. The ETMF reached the $1 million milestone in 2017 with the first ever disbursement from the fund for The 2017 Annual SMA Conference.
For more information or to inquire about making a gift to support the Erin Trainor Memorial Fund, please contact Kenneth Hobby at 847-709-6324 or firstname.lastname@example.org