News

July 10, 2017

Missouri is the First State to Institute Newborn Screening for Spinal Muscular Atrophy

Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill makes Missouri the first state in the country to screen all newborns for SMA. The legislation was sponsored by Representative Becky Ruth, a legislator with a longstanding commitment to expanding...

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Topics: Advocacy, Front Page News

July 2, 2017

Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening

Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular atrophy. Today’s kick-off event is a symposium on newborn screening advocacy, held as part of the Annual SMA Conference in Orlando, FL.

One state, Missouri, has legislation...

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Topics: Advocacy, Front Page News

June 23, 2017

Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Yesterday, members of the Senate released draft text of their much awaited legislation called the Better Care Reconciliation Act (“Better Care Act”) of 2017. As you’ll recall from...

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Topics: Advocacy, Front Page News

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