News

April 11, 2017

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

The SMA community is eagerly looking forward to next week’s Patient-Focused Drug Development (PFDD) Meeting with the FDA.

Over 400 members of the community are registered to participate in this event. This includes individuals and families affected by SMA, representatives from...

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Topics: Our Impact, Advocacy, Front Page News

March 23, 2017

Cure SMA Coverage and Payment Policy Project Continues to Move Forward

Cure SMA Coverage and Payment Policy Project Continues to Move Forward

The Cure SMA Coverage and Payment Policy Project has two distinct but complementary tracks:

  • Outreach on behalf of our community. We’re working with public and private insurers, regulators, and other stakeholders, advocating for prompt, comprehensive coverage for SMA...

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Topics: Advocacy, Front Page News

March 15, 2017

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Your elected officials who represent you in Washington, D.C. have caseworkers in their regional and district offices in your communities. These caseworkers can help you work with and better understand government programs, like Medicaid, Medicare, TRICARE, and Social...

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Topics: Community & Awareness, Advocacy, Front Page News

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