News

April 21, 2017

Cure SMA to Host Webinar on Spinraza Access, as List of Administration Sites is Released

Cure SMA to Host Webinar on Spinraza Access, as List of Administration Sites is Released

On Thursday, May 4, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA will hold a webinar updating the community on the status of Spinraza access. Among the topics covered will be:

  • The current status of dosing in states across the US
  • Administration sites,...

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Topics: Community & Awareness, Front Page News

April 10, 2017

Cure SMA Publishes Second Journal Article on the Patient Voice

Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology

In recent years, we've completed 16 focus group sessions and 37 interviews in the US with 96 participants...

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Topics: Community & Awareness, Front Page News

March 15, 2017

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Your elected officials who represent you in Washington, D.C. have caseworkers in their regional and district offices in your communities. These caseworkers can help you work with and better understand government programs, like Medicaid, Medicare, TRICARE, and Social...

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Topics: Community & Awareness, Advocacy, Front Page News

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