News

February 16, 2018

Cure SMA Receives Generous Gift

Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor of William N. Kanehann. Billy had SMA and died in 2013 at the age of 23. We are grateful for this amazing donation in memory of his life.

This gift will be dedicated to supporting new...

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Topics: Community & Awareness, Support & Care, Front Page News

February 12, 2018

Cure SMA Announces Local Educational Symposiums in 16 US Locations

Cure SMA is pleased to announce a slate of one-day local symposiums, beginning late spring and continuing into fall 2018. The symposiums will be held in 16 locations across 15 states across the US. Through these local symposiums, the SMA community will continue to share experiences, advocate for one another, and learn about the latest...

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Topics: Community & Awareness, Support & Care, Front Page News

January 25, 2018

Cure SMA to Host Webinar on Treatment Access and Clinical Trials on February 15

Cure SMA to Host Webinar on Treatment Access and Clinical Trials on February 15

On Thursday, February 15, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on treatment access and clinical trials. Among the topics covered will be: 

  • The current status of Spinraza access, including dosing, sites, and...

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Topics: Community & Awareness, Clinical Trials, Front Page News

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