News

May 9, 2019

Team Cure SMA to Participate in Vermont City Marathon

Team Cure SMA to Participate in Vermont City Marathon

On Sunday, May 26th, Regina Philipps will participate in the Vermont City Marathon and has already raised over $13,000 for Team Cure SMA while training.

As an avid runner, Regina joined...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

April 24, 2019

Community Spotlight: Kyle and Laura Derkowski

Community Spotlight: Kyle and Laura Derkowski

Kyle and Laura Derkowski live in Ashburn, Virginia and are co-chairs of the Cure SMA Virginia Chapter. Kyle is originally from Schenectady, New York and Laura from Bethlehem, Pennsylvania; the pair met during their first year in college through a mutual friend and were married in December...

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Topics: Community & Awareness, Front Page News

April 16, 2019

Community Update Survey Q&A

Community Update Survey Q&A

Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas that are relevant to the real-world experiences of people living with spinal muscular...

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Topics: Community & Awareness, Our Impact, Research, Front Page News

April 8, 2019

Thank You Cure SMA Volunteers!

Thank You Cure SMA Volunteers!

Happy National Volunteer Week! This week we're celebrating our Cure SMA volunteers. 

Each year, Cure SMA hosts over 300 local events, the Annual SMA Conference, and sends out thousands of resources including information packets, care packages, and equipment.  Without our wonderful...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

April 2, 2019

What is the Summit of Strength Program?

What is the Summit of Strength Program?

Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 Summit of Strength Program has officially begun!

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Topics: Community & Awareness, Support & Care, Front Page News

March 22, 2019

Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over $15,000 for Cure SMA, the...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

March 14, 2019

Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the voice of our community is powerful. By sharing our stories, we can communicate our priorities to the FDA...

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Topics: Community & Awareness, Research, Front Page News

March 1, 2019

Join a Walk-n-Roll Near You

Join a Walk-n-Roll Near You

The Cure SMA Walk-n-Roll is a fun, family-friendly event that supports Cure SMA’s mission of driving breakthroughs in treatment and care and providing families the support they need for today. We welcome you to join us as an individual or start a team with your family, friends,...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

February 27, 2019

New Dates and Locations Announced for 2019 Summits of Strength

New Dates and Locations Announced for 2019 Summits of Strength

Cure SMA is pleased to announce that we will be continuing the Summit of Strength Program in 2019, adding 20 new events from March through November.

The Summit of Strength is a single-day educational event hosted by Cure SMA. Summits are crafted to provide information for people of all...

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Topics: Community & Awareness, Support & Care, Front Page News

February 25, 2019

Community Spotlight: Kristen Smith

Community Spotlight: Kristen Smith

The SMA community has been lobbying state and federal government for years. Kristen Smith shares how she became involved with advocacy.

Kristen Smith describes herself as an artist and advocate. A powerful combination during a time where people across the country are standing...

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Topics: Community & Awareness, Advocacy, Front Page News

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