News

November 7, 2017

2017 World Muscle Society Congress Recap

From October 3rd through October 7th, Cure SMA attended the 22nd International Annual Congress of the World Muscle Society (WMS) in Saint Malo, France. WMS is the premier annual congress on neuromuscular disorders, attended by established and young physicians, researchers, therapists and neuropathologists from all over the world.

Cure...

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Topics: Community & Awareness, Research, Front Page News

October 24, 2017

Cure SMA Launches Benefit-Risk Survey to Address Important Issues in Treatment Access and Future Drug Approvals in SMA

Cure SMA Launches Benefit-Risk Survey to Address Important Issues in Treatment Access and Future Drug Approvals in SMA

For the past several years, we have been working to bring your voices, experiences, challenges and hopes to inform regulatory authorities as key decisions are made on future therapies for SMA. Most recently, on April 18, 2017, the SMA community gathered for a Patient-Focused Drug Development...

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Topics: Community & Awareness, Our Impact, Front Page News

September 29, 2017

Recording of the September Webinar on Spinraza Updates Now Available

A recording of last week’s webinar updating the community on Spinraza access and administration sites is now available online. A PDF of the webinar presentation is also available for

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Topics: Community & Awareness, Support & Care, Front Page News

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