News

December 10, 2018

Closing out 2018 with Good News: Virginia Adopts SMA to their Newborn Screening Panel, Arizona Moves Closer to Adopting SMA Newborn Screening and Illinois Medicaid Covers Spinraza Treatment

Closing out 2018 with Good News: Virginia Adopts SMA to their Newborn Screening Panel, Arizona Moves Closer to Adopting SMA Newborn Screening and Illinois Medicaid Covers Spinraza Treatment

The SMA community has multiple victories to celebrate as the year comes to an end. Thank you to all our amazing families and advocates who have and continue to make this progress possible.

Virginia Adopts SMA Newborn Screening

Last month, Virginia’s Newborn Screening...

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Topics: Community & Awareness, Advocacy, Front Page News

November 14, 2018

Cure SMA Launches "SMArt Moves" for Early Diagnosis and Treatment

Cure SMA Launches

Cure SMA today launches SMArt Moves, a new disease awareness and educational campaign to empower parents, pediatricians and other healthcare professionals to swiftly recognize and diagnose the early signs of motor delays. This allows infants and...

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Topics: Community & Awareness, Our Impact, Front Page News

November 6, 2018

Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate life with SMA. In addition to our current support programs, Cure SMA is thrilled to launch a brand-new program specifically for...

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Topics: Community & Awareness, Support & Care, Front Page News

November 1, 2018

Summit of Strength Program Receives Positive Feedback and Increases Attendance

Summit of Strength Program Receives Positive Feedback and Increases Attendance

Attendance and feedback have been extremely positive for this new program.

The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! The Summit of Strength is a day of community and learning; it brings together families in their local...

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Topics: Community & Awareness, Support & Care, Front Page News

October 24, 2018

Meet the NDEAM Webinar Panelists

Meet the NDEAM Webinar Panelists

October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. The...

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Topics: Community & Awareness, Front Page News

October 23, 2018

NDEAM Spotlight: Jaclyn Greenwood

NDEAM Spotlight: Jaclyn Greenwood

The below guest blog post was written by Jaclyn Greenwood in honor of National Disability Employment Awareness Month. Jaclyn is a board certified genetic counselor who also lives with SMA type 2. 

My name is Jaclyn Greenwood and I have SMA type 2. I am fortunate to have a career...

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Topics: Community & Awareness, Front Page News

October 19, 2018

National Disability Employment Awareness Month Spotlight: Kim Hill

National Disability Employment Awareness Month Spotlight: Kim Hill

The below NDEAM Spotlight was written by Kim Hill, Disability Integration Specialist at the Oklahoma Department of Emergency Management, who also lives with SMA Type II. 

Hello! My name is Kimberly or Kim Hill. I am a 34-year-old from Oklahoma with SMA Type II. I am trached and...

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Topics: Community & Awareness, Front Page News

October 18, 2018

Register for Cure SMA's First National Disability Employment Awareness Month Webinar

Register for Cure SMA's First National Disability Employment Awareness Month Webinar

October is National Disability Employment Awareness Month (NDEAM)! In its honor, Cure SMA is hosting our first NDEAM webinar where the audience will hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first

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Topics: Community & Awareness, Front Page News

October 10, 2018

Cure SMA Receives Generous Funding from Luke 18:1 Foundation

Cure SMA Receives Generous Funding from Luke 18:1 Foundation

Cure SMA would like to thank the Luke 18:1 Foundation for their generous donations to our equipment pool and research programs. The foundation's generosity will provide support and hope to all those affected...

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Topics: Community & Awareness, Support & Care, Front Page News

October 9, 2018

SMA Care Center Network and Clinical Data Registry Launched

SMA Care Center Network and Clinical Data Registry Launched

Cure SMA today announced the launch of our SMA Care Center Network. The SMA Care Center Network is the centerpiece of our efforts to address the changing landscape of SMA. The goal of the SMA Care Center Network is to develop an...

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Topics: Community & Awareness, Support & Care, Front Page News

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