News

February 16, 2017

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA is pleased to announce a new webinar on interactions between the FDA and the SMA community. The webinar will be held on March 8, 2017, at 1:00pm EST (10:00am PST/ 11:00am MST/ 12:00pm CST). 

The goal is to provide both a broad overview of how our...

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Topics: Community & Awareness, Advocacy, Front Page News

February 1, 2017

Spinraza Access Update Webinar

Spinraza Access Update Webinar

On Tuesday, February 14, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA hosted a webinar updating the community on the status of Spinraza access. Among the topics covered were adminstration sites, insurance coverage, and community resources and support programs. 

We...

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Topics: Community & Awareness, Front Page News

January 31, 2017

Cure SMA Launches Community Survey to Address Urgent and Important Issues in SMA Treatment

Cure SMA Launches Community Survey to Address Urgent and Important Issues in SMA Treatment

For the past several years, we've been working to collect data and information on our community's experiences, goals, hopes and challenges. We know that the voice of our community is powerful. By sharing our stories, we can communicate our priorities to the FDA and regulators,...

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Topics: Community & Awareness, Front Page News

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