News

September 11, 2017

2017 SMA Awareness Month Recap

2017 SMA Awareness Month Recap

The SMA community celebrated an impactful and advocacy-driven Awareness Month through a number of ways this August. Whether hosting candlelight vigils, meeting with state and local legislatures, holding fundraisers, coordinating MLB awareness games, and more, the community worked together to...

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Topics: Community & Awareness, Front Page News

September 6, 2017

Cure SMA to Host Webinar Updating the Community on Spinraza Access

Cure SMA to Host Webinar Updating the Community on Spinraza Access

On Tuesday, September 19, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on the status of Spinraza access. Among the topics covered will be:

  • The current status of dosing in states across the...

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Topics: Community & Awareness, Front Page News

August 22, 2017

SMA Documentary Premieres at 2017 Rhode Island International Film Festival

SMA Documentary Premieres at 2017 Rhode Island International Film Festival

Life & Atrophy, a film about SMA, premiered at the Rhode Island International Film Festival on Saturday, August 12th. It was directed, produced, edited and photographed by Gareth Burghes.

The film follows the McIntosh’s, whose son Miles has SMA Type II, as they navigate the...

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Topics: Community & Awareness, Front Page News

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