News

August 15, 2018

Cure SMA Fall Event Season Kicks Off

Cure SMA Fall Event Season Kicks Off

The month of August marks not only SMA Awareness Month but the start of our fall event season. SMA Day with the Chicago Cubs, the Colorado Walk-n-Roll, and the Texas Bowl-a-Thon are just a few events that kicked off the season within the first...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

July 31, 2018

August is SMA Awareness Month!

August is SMA Awareness Month!

The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. August is a great time to spotlight the work our community does year-round to raise awareness of and...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

July 16, 2018

Summit of Strength Program Kicks Off in Cincinnati

Summit of Strength Program Kicks Off in Cincinnati

As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

On Saturday, Cure SMA held its inaugural Summit of Strength in Cincinnati, OH. This is the first of 16...

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Topics: Support & Care, Events & Fundraising, Front Page News

May 17, 2018

Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018

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Topics: Support & Care, Events & Fundraising, Front Page News

April 2, 2018

Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

Cure SMA is excited to announce that AveXis is returning as a National Premier Partner for 2018.

As part of their partnership, AveXis is generously supporting our Chapter Leader Summit, a full day of training and information-sharing for 70 chapter...

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Topics: Our Impact, Events & Fundraising, Front Page News

March 26, 2018

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018.

As a part of their partnership, Biogen will be sponsoring all walk-n-rolls and galas across the US for the entirety of 2018, as well as the

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Topics: Support & Care, Events & Fundraising, Front Page News

December 12, 2017

“Hope on the Hill" Congressional Dinner Recap

“Hope on the Hill

On Wednesday, November 29 more than 160 people from the SMA community – including government and industry partners – gathered for the 7th Annual “Hope on the Hill” Congressional Dinner in Washington, D.C. Several members of congress attended the dinner including Rep....

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Topics: Events & Fundraising, Advocacy, Front Page News

November 20, 2017

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together families, government, and industry to mark the first-ever FDA approval of a treatment for SMA, and look forward to the next stages for our community....

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Topics: Our Impact, Events & Fundraising, Front Page News

November 30, 2016

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala now exceed $1 million in its six year history.

The event was founded and is organized by Fiorenna Fuentes Israel and Jennifer...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

November 28, 2016

Help Us Shape the Future Together, and Reach our Goal of $750,000

Help Us Shape the Future Together, and Reach our Goal of $750,000

This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug Application for Spinraza (nusinersen) was accepted by the FDA. This means...

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Topics: Our Impact, Events & Fundraising, Advocacy, Front Page News

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