News

April 8, 2019

Thank You Cure SMA Volunteers!

Thank You Cure SMA Volunteers!

Happy National Volunteer Week! This week we're celebrating our Cure SMA volunteers. 

Each year, Cure SMA hosts over 300 local events, the Annual SMA Conference, and sends out thousands of resources including information packets, care packages, and equipment.  Without our wonderful...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

April 1, 2019

We're Celebrating Local Support

We're Celebrating Local Support

We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information and resources they need to live active, engaged, and hopeful lives today.

We’re dedicating the month of April to...

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Topics: Support & Care, Events & Fundraising, Front Page News

March 22, 2019

Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over $15,000 for Cure SMA, the...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

March 1, 2019

Join a Walk-n-Roll Near You

Join a Walk-n-Roll Near You

The Cure SMA Walk-n-Roll is a fun, family-friendly event that supports Cure SMA’s mission of driving breakthroughs in treatment and care and providing families the support they need for today. We welcome you to join us as an individual or start a team with your family, friends,...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

January 29, 2019

The Cure SMA 2019 Goal List

The Cure SMA 2019 Goal List

Start 2019 strong! Plan out your year using the Cure SMA 2019 Goal List. Have you completed any of the items already? Which ones will you add to your plans for this year? Share on social media using the hashtag #Start2019Strong and tagging Cure SMA.

  1. Contact my

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Topics: Community & Awareness, Events & Fundraising, Front Page News

January 17, 2019

Cure SMA is Thrilled to Launch Its New and Refreshed Endurance Program: Team Cure SMA

Cure SMA is Thrilled to Launch Its New and Refreshed Endurance Program: Team Cure SMA

Start 2019 Strong by becoming a Team Cure SMA runner, registering a team or donating to a race today. 

Team Cure SMA is an endurance program designed to connect runners and cyclists with Cure SMA. Cure SMA, is a 501(c)3...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

November 13, 2018

8th Annual "Hope on the Hill" Congressional Dinner Will Be Held Later This Month in Washington D.C.

8th Annual

The 8th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, November 27, bringing together SMA families, government officials, and industry leaders to look forward to the...

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Topics: Advocacy, Events & Fundraising, Front Page News

August 21, 2018

Cure SMA Concert for a Cure Reaches $2 Million Milestone

Cure SMA Concert for a Cure Reaches $2 Million Milestone

The 2018 Cure SMA Concert for a Cure raised $210,000 on April 21, 2018. After combining many years of fundraising and hard work, the 18th Annual Concert for a Cure reached a very exciting milestone of $2 Million.

“We are still in awe of the dedication, support and commitment that...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

August 15, 2018

Cure SMA Fall Event Season Kicks Off

Cure SMA Fall Event Season Kicks Off

The month of August marks not only SMA Awareness Month but the start of our fall event season. SMA Day with the Chicago Cubs, the Colorado Walk-n-Roll, and the Texas Bowl-a-Thon are just a few events that kicked off the season within the first...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

July 31, 2018

August is SMA Awareness Month!

August is SMA Awareness Month!

The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. August is a great time to spotlight the work our community does year-round to raise awareness of and...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

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