News

November 30, 2016

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala now exceed $1 million in its six year history.

The event was founded and is organized by Fiorenna Fuentes Israel and Jennifer...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

November 28, 2016

Help Us Shape the Future Together, and Reach our Goal of $750,000

Help Us Shape the Future Together, and Reach our Goal of $750,000

This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug Application for Spinraza (nusinersen) was accepted by the FDA. This means...

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Topics: Our Impact, Events & Fundraising, Advocacy, Front Page News

November 18, 2016

Registration is Now Open for the 2017 SMA Researcher Meeting

Registration is Now Open for the 2017 SMA Researcher Meeting

Registration is now open for industry and academic researchers to attend our 2017 SMA Researcher Meeting, which will be held June 29-July 1 at Disney World in Orlando, FL.

The SMA...

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Topics: Events & Fundraising, Research, Front Page News

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