News

February 23, 2017

Announcing an Evening of Wonder at Magic Kingdom Park

Announcing an Evening of Wonder at Magic Kingdom Park

Just added to this year’s conference schedule: Saturday night at Magic Kingdom Park! We are excited to announce that each conference attendee will get to participate in this classic Disney World evening, sponsored by Biogen.

All registered participants will receive complimentary...

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Topics: Conference, Front Page News

February 16, 2017

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA is pleased to announce a new webinar on interactions between the FDA and the SMA community. The webinar will be held on March 8, 2017, at 1:00pm EST (10:00am PST/ 11:00am MST/ 12:00pm CST). 

The goal is to provide both a broad overview of how our...

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Topics: Community & Awareness, Advocacy, Front Page News

February 9, 2017

Cure SMA Launches Newborn Screening Coalition

Cure SMA Launches Newborn Screening Coalition

As SMA drug development continues to move forward, Cure SMA is focused on ensuring that approved therapies are accessible to our entire community. This includes making therapies widely available at clinical sites across the US, and facilitating insurance coverage. In addition, newborn...

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Topics: Our Impact, Advocacy, Front Page News

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