News

March 23, 2017

Cure SMA Coverage and Payment Policy Project Continues to Move Forward

Cure SMA Coverage and Payment Policy Project Continues to Move Forward

The Cure SMA Coverage and Payment Policy Project has two distinct but complementary tracks:

  • Outreach on behalf of our community. We’re working with public and private insurers, regulators, and other stakeholders, advocating for prompt, comprehensive coverage for SMA...

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Topics: Advocacy, Front Page News

March 21, 2017

Genentech Roche Releases Community Letter with Clinical Trial Updates

Genentech Roche Releases Community Letter with Clinical Trial Updates

Genentech Roche provided the following community statement with clinical trial updates for SUNFISH (Type 2/3), FIREFISH (Type 1) and JEWELFISH. 

Dear SMA community,

At Genentech (A Member of the Roche Group) we are committed to addressing the urgent needs of...

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Topics: Clinical Trials, Front Page News

March 20, 2017

American College of Obstetricians and Gynecologists Recommends Expanded SMA Carrier Screening

The American College of Obstetricians and Gynecologists has released updated guidance on carrier testing for genetic conditions. The updated guidance includes, for the first time, a...

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Topics: Support & Care, Front Page News

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