News

June 26, 2017

The 2017 Annual SMA Conference is Here!

The 2017 Annual SMA Conference is Here!

The 2017 Annual SMA Conference, now in its 29th year, is set to kick off on June 29 and continue into a weekend full of programs and events that bring families, researchers and healthcare professionals together.

This year’s conference has already surpassed the records of previous...

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Topics: Conference, Front Page News

June 23, 2017

Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week

Yesterday, members of the Senate released draft text of their much awaited legislation called the Better Care Reconciliation Act (“Better Care Act”) of 2017. As you’ll recall from...

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Topics: Advocacy, Front Page News

June 21, 2017

Cure SMA Update - Senate Healthcare Bill

Cure SMA Update - Senate Healthcare Bill

The US Senate is currently working on legislation to modify the Affordable Care Act. Though details of the Senate’s plan are not yet available, legislation could be released as early as Thursday or Friday of this week. As Senators consider various options it is important that they keep...

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Topics: Advocacy, Front Page News

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