News

February 11, 2019

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project entitled, "Function of Senataxin as a Protective Modifier of Spinal Muscular Atrophy”.

Dr. Gangwani and his team will study how the...

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Topics: Our Impact, Research, Front Page News

January 2, 2019

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, Cure SMA, and other nonprofit...

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Topics: Our Impact, Research, Front Page News

December 28, 2018

Hope on the Hill Congressional Dinner Raises $200,000

Hope on the Hill Congressional Dinner Raises $200,000

The 8th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, November 27, 2018 at The Willard Hotel in Washington, DC. More than 170 people from the SMA community – including government and industry partners – attended the dinner which raised $200,000 to...

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Topics: Our Impact, Advocacy, Front Page News

December 20, 2018

2018 Research Year-in-Review

2018 Research Year-in-Review

Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be used strategically to help accelerate research, and ensure we are developing treatments for all types, ages, and stages of SMA. The...

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Topics: Our Impact, Research, Front Page News

December 19, 2018

Cure SMA Funding Leads to 16 New Research Publications in 2018

An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often publish their findings in peer-reviewed journals. This means that other scientists can learn from their results, which will pay dividends across the wider landscape of SMA...

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Topics: Our Impact, Research, Front Page News

December 14, 2018

Advocacy Year-in-Review 2018

Advocacy Year-in-Review 2018

For Cure SMA, 2018 has been a year of great progress. As we continue to make strides into 2019, it is important to take a moment to look back at all our successes. Thank you to all our families and advocates for your support and continued efforts to cure SMA. We wish you all a very Happy...

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Topics: Our Impact, Advocacy, Front Page News

December 4, 2018

Fall 2018 Issue of Compass Now Available

Fall 2018 Issue of Compass Now Available

The fall 2018 issue of Compass is now available online.

This issue of Compass covers the SMA Care Center Network and its goal of developing an evidence-based standard of care to improve the lives of people with...

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Topics: Support & Care, Our Impact, Front Page News

November 14, 2018

Cure SMA Launches "SMArt Moves" for Early Diagnosis and Treatment

Cure SMA Launches

Cure SMA today launches SMArt Moves, a new disease awareness and educational campaign to empower parents, pediatricians and other healthcare professionals to swiftly recognize and diagnose the early signs of motor delays. This allows infants and...

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Topics: Community & Awareness, Our Impact, Front Page News

October 30, 2018

Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you as some states move closer to adoption of SMA Newborn Screening.

Kansas Adopts SMA Newborn Screening

Kansas has adopted SMA...

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Topics: Our Impact, Advocacy, Front Page News

October 17, 2018

North Carolina to Screen Newborns for SMA Through Early Check

North Carolina to Screen Newborns for SMA Through Early Check

Early Check, a new research study led by RTI International, is now available for newborn babies in North Carolina. Early Check is a free screening study designed to identify children with rare health conditions before symptoms appear and study the benefits of early treatments. New and...

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Topics: Our Impact, Advocacy, Front Page News

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