News

April 13, 2018

Cure SMA Awards $150,000 Grant to Bakri Elsheikh, MD, Ohio State University Wexner Medical Center

Cure SMA Awards $150,000 Grant to Bakri Elsheikh, MD, Ohio State University Wexner Medical Center

Cure SMA has awarded a $150,000 research grant to Bakri Elsheikh, MD, at the Ohio State University Wexner Medical Center, for his project, "Determine the motor unit response following SMN restoration in late-onset spinal muscular atrophy”.

Dr. Elsheikh and his team will study...

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Topics: Our Impact, Research, Front Page News

April 9, 2018

Cure SMA Database Findings Published in the Journal of Neuromusular Diseases

Cure SMA Database Findings Published in the Journal of Neuromusular Diseases

An important goal at Cure SMA is to collect data to better understand the SMA patient population, and then to report this data back to our industry partners, regulators, and payers. In collecting this data, we also hope to identify areas where additional care, advocacy, support, and research...

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Topics: Our Impact, Research, Front Page News

April 6, 2018

SMA Newborn Screening Guidelines Published in Journal of Neuromuscular Diseases

The recent decision of the federal Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) to recommend SMA for addition to the RUSP, as well as the implementation of SMA newborn screening (NBS) by several states, has ushered in the ability to identify infants with...

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Topics: Community & Awareness, Our Impact, Front Page News

April 2, 2018

Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

Cure SMA is excited to announce that AveXis is returning as a National Premier Partner for 2018.

As part of their partnership, AveXis is generously supporting our Chapter Leader Summit, a full day of training and information-sharing for 70 chapter...

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Topics: Our Impact, Events & Fundraising, Front Page News

March 29, 2018

Cure SMA Awards $150,000 Grant to Brunhilde Wirth, PhD, Institute of Cologne, Germany

Cure SMA Awards $150,000 Grant to Brunhilde Wirth, PhD, Institute of Cologne, Germany

Cure SMA has awarded a $150,000 research grant to Brunhilde Wirth, PhD, at Institute of Cologne, Germany, for her project, "Study of combinatorial therapy based on SPINRAZA together with a novel protective genetic modifier.”

Based on so-called SMA discordant families, in whom...

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Topics: Our Impact, Research, Front Page News

March 29, 2018

Cure SMA Awards $50,000 Grant to Rashmi Kothary, PhD, University of Ottawa

Cure SMA Awards $50,000 Grant to Rashmi Kothary, PhD, University of Ottawa

Cure SMA has awarded a $50,000 research grant to Rashmi Kothary, PhD, at the University of Ottawa, for his project, " The shifting landscape of SMA research: towards a better understanding for a role for SMN in aging.”

In this proposal, Dr. Kothary and his team seek to explore...

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Topics: Our Impact, Research, Front Page News

March 28, 2018

Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

Cure SMA has awarded a $150,000 research grant to Robin Parks, PhD, at the University of Ottawa, for his project, "Serum-derived exosomes as a biomarker for Spinal Muscular Atrophy.”

Dr. Parks and his team are exploring the use of exosomes, small particles released from all...

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Topics: Our Impact, Research, Front Page News

March 14, 2018

Cure SMA Awards $75,000 Grant to Robert Kalb, MD, Northwestern University

Cure SMA Awards $75,000 Grant to Robert Kalb, MD, Northwestern University

Cure SMA has awarded a $75,000 research grant to Robert Kalb, MD, at Northwestern University Feinberg School of Medicine, for his project, "Effects of diminished SMN on segmental spinal cord innervation of motor neurons.”

Dr. Kalb and his team have conducted studies that indicate...

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Topics: Our Impact, Research, Front Page News

March 13, 2018

Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA has awarded a $150,000 research grant to Umrao Monani, PhD, at Columbia University, for his project, "SMA modulators as a means to revealing disease mechanisms.”

Dr. Monani and his team have generated SMA model mice and shown that their genetic background can alter...

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Topics: Our Impact, Research, Front Page News

March 7, 2018

Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, Medical College of Wisconsin

Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, Medical College of Wisconsin

Cure SMA has awarded a $150,000 research grant to Allison Ebert, PhD, at the Medical College of Wisconsin, for her project, "Role of astrocyte-produced miR-146a in SMA pathology.”

SMA is caused by mutations in the SMN1 gene resulting in low levels of SMN protein, which is...

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Topics: Our Impact, Research, Front Page News

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