News

April 11, 2019

Cure SMA Care Center Network Expands to 10 Sites

Cure SMA Care Center Network Expands to 10 Sites

In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...

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Topics: Support & Care, Our Impact, Front Page News

March 27, 2019

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, "Neurofilaments as markers of neurodegeneration in SMA.”

Dr. Sumner and her team are looking at the neuronal-specific cytoskeletal protein neurofilaments (NFs)...

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Topics: Our Impact, Research, Front Page News

March 19, 2019

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by...

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Topics: Support & Care, Our Impact, Front Page News

February 22, 2019

Cure SMA Awards $150,000 Grant to Veronica Pessino, PhD, Salk Institute for Biological Sciences

Cure SMA Awards $150,000 Grant to Veronica Pessino, PhD, Salk Institute for Biological Sciences

Audrey Lewis founded Families of SMA, now Cure SMA, 34 years ago. Audrey recognized early on the importance of attracting new and talented researchers to SMA, with the hope that they would commit their careers to developing a treatment and cure for SMA.

Cure SMA honors Audrey’s...

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Topics: Our Impact, Research, Front Page News

February 11, 2019

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project entitled, "Function of Senataxin as a Protective Modifier of Spinal Muscular Atrophy”.

Dr. Gangwani and his team will study how the...

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Topics: Our Impact, Research, Front Page News

January 2, 2019

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, Cure SMA, and other nonprofit...

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Topics: Our Impact, Research, Front Page News

December 28, 2018

Hope on the Hill Congressional Dinner Raises $200,000

Hope on the Hill Congressional Dinner Raises $200,000

The 8th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, November 27, 2018 at The Willard Hotel in Washington, DC. More than 170 people from the SMA community – including government and industry partners – attended the dinner which raised $200,000 to...

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Topics: Our Impact, Advocacy, Front Page News

December 20, 2018

2018 Research Year-in-Review

2018 Research Year-in-Review

Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be used strategically to help accelerate research, and ensure we are developing treatments for all types, ages, and stages of SMA. The...

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Topics: Our Impact, Research, Front Page News

December 19, 2018

Cure SMA Funding Leads to 16 New Research Publications in 2018

An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often publish their findings in peer-reviewed journals. This means that other scientists can learn from their results, which will pay dividends across the wider landscape of SMA...

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Topics: Our Impact, Research, Front Page News

December 14, 2018

Advocacy Year-in-Review 2018

Advocacy Year-in-Review 2018

For Cure SMA, 2018 has been a year of great progress. As we continue to make strides into 2019, it is important to take a moment to look back at all our successes. Thank you to all our families and advocates for your support and continued efforts to cure SMA. We wish you all a very Happy...

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Topics: Our Impact, Advocacy, Front Page News

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