News

May 21, 2019

Cure SMA Awards $150,000 Grant to Krysta Engel, PhD, University of Colorado

Cure SMA Awards $150,000 Grant to Krysta Engel, PhD, University of Colorado

Audrey Lewis founded Families of SMA, now Cure SMA, 34 years ago. Audrey recognized early on the importance of attracting new and talented researchers to SMA, with the hope that they would commit their careers to developing a treatment and cure for SMA.

Cure SMA honors Audrey’s...

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Topics: Our Impact, Research, Front Page News

May 17, 2019

Cure SMA Attends the 71st Annual American Academy of Neurology (AAN) Meeting in Philadelphia

The American Academy of Neurology (AAN) 2019 Annual meeting wrapped up in Philadelphia, Pennsylvania on May 10th, 2019. The AAN Annual meeting is one of the world’s largest professional meeting of neurologists on cutting-edge science, research, and clinical updates. Over 14,000 neurology professionals and meeting attendees were in...

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Topics: Our Impact, Research, Front Page News

May 14, 2019

Cure SMA Awards $150,000 Grant to Sibylle Jablonka, PhD, University of Würzburg, Germany

Cure SMA Awards $150,000 Grant to Sibylle Jablonka, PhD, University of Würzburg, Germany

Cure SMA has awarded a $150,000 research grant to Sibylle Jablonka, PhD at University of Wurzburg, for her project, “Modulation of calcium channels in mouse models for spinal muscular atrophy (SMA)”.

Dysregulated cellular mechanisms, such as neurotransmission, are complex...

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Topics: Our Impact, Research, Front Page News

May 13, 2019

Spring 2019 SMA Newborn Screening Update

Spring 2019 SMA Newborn Screening Update

We are thrilled to announce that Missouri, Pennsylvania and Vermont have now implemented permanent statewide SMA newborn screening, making 6 states that are now permanently screening statewide for SMA. Several other states have adopted SMA newborn screening and have moved one step closer to...

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Topics: Our Impact, Advocacy, Front Page News

April 16, 2019

Community Update Survey Q&A

Community Update Survey Q&A

Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas that are relevant to the real-world experiences of people living with spinal muscular...

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Topics: Community & Awareness, Our Impact, Research, Front Page News

April 11, 2019

Cure SMA Care Center Network Expands to 10 Sites

Cure SMA Care Center Network Expands to 10 Sites

In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...

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Topics: Support & Care, Our Impact, Front Page News

March 27, 2019

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, "Neurofilaments as markers of neurodegeneration in SMA.”

Dr. Sumner and her team are looking at the neuronal-specific cytoskeletal protein neurofilaments (NFs)...

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Topics: Our Impact, Research, Front Page News

March 19, 2019

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by...

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Topics: Support & Care, Our Impact, Front Page News

February 22, 2019

Cure SMA Awards $150,000 Grant to Veronica Pessino, PhD, Salk Institute for Biological Sciences

Cure SMA Awards $150,000 Grant to Veronica Pessino, PhD, Salk Institute for Biological Sciences

Audrey Lewis founded Families of SMA, now Cure SMA, 34 years ago. Audrey recognized early on the importance of attracting new and talented researchers to SMA, with the hope that they would commit their careers to developing a treatment and cure for SMA.

Cure SMA honors Audrey’s...

READ MORE   |  

Topics: Our Impact, Research, Front Page News

February 11, 2019

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project entitled, "Function of Senataxin as a Protective Modifier of Spinal Muscular Atrophy”.

Dr. Gangwani and his team will study how the...

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Topics: Our Impact, Research, Front Page News

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