News

April 11, 2017

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

SMA Patient-Focused Drug Development Meeting with the FDA Set for Next Week

The SMA community is eagerly looking forward to next week’s Patient-Focused Drug Development (PFDD) Meeting with the FDA.

Over 400 members of the community are registered to participate in this event. This includes individuals and families affected by SMA, representatives from...

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Topics: Our Impact, Advocacy, Front Page News

March 15, 2017

Cure SMA Awards $140,000 Grant to Arthur Burghes, PhD, The Ohio State University

Cure SMA Awards $140,000 Grant to Arthur Burghes, PhD, The Ohio State University

Cure SMA has awarded a $140,000 research grant to Arthur Burghes, PhD, at The Ohio State University, for his project, "Identification of SMA modifiers and deletion/duplication junctions in the SMA region.”

All individuals with SMA lack the SMN1 gene, but have one or more...

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Topics: Our Impact, Research, Front Page News

March 1, 2017

SMA is Submitted to the Federal Newborn Recommended Uniform Screening Panel (RUSP)

SMA is Submitted to the Federal Newborn Recommended Uniform Screening Panel (RUSP)

Cure SMA and the SMA Newborn Screening Coalition are excited to announce we have completed the submission of SMA to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the...

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Topics: Our Impact, Advocacy, Front Page News

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