News

February 9, 2017

Cure SMA Launches Newborn Screening Coalition

Cure SMA Launches Newborn Screening Coalition

As SMA drug development continues to move forward, Cure SMA is focused on ensuring that approved therapies are accessible to our entire community. This includes making therapies widely available at clinical sites across the US, and facilitating insurance coverage. In addition, newborn...

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Topics: Our Impact, Advocacy, Front Page News

February 2, 2017

Registration Opens for the SMA Patient-Focused Drug Development Meeting with the FDA

Registration Opens for the SMA Patient-Focused Drug Development Meeting with the FDA

Registration is now open for the SMA Patient-Focused Drug Development (PFDD) meeting with the FDA. The PFDD meeting will be held at the College Park Marriott, near Washinton DC, on Tuesday, April 18. 

There are two primary ways to participate in this...

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Topics: Our Impact, Advocacy, Front Page News

January 6, 2017

Cure SMA Assists Hundreds of Families in 2016

Cure SMA Assists Hundreds of Families in 2016

Each year, Cure SMA provides thousands of families with vital support and resources to help them live active, engaged and hopeful lives. 

Our programs provide tangible support for families affected by SMA, easing the difficulties of an SMA diagnosis, and showing each family that...

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Topics: Support & Care, Our Impact, Front Page News

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