News

November 20, 2017

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together families, government, and industry to mark the first-ever FDA approval of a treatment for SMA, and look forward to the next stages for our community....

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Topics: Our Impact, Events & Fundraising, Front Page News

November 14, 2017

SMA Advocates Testify at Federal Newborn Screening Meeting

On Wednesday, November 8, advocates testified at the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) in support of spinal muscular atrophy newborn screening efforts at the federal division of Health and Human Services.

The advisory committee reviews conditions for addition to the Recommended Uniform...

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Topics: Our Impact, Advocacy, Front Page News

October 25, 2017

Fall 2017 Issue of Compass Now Available

Fall 2017 Issue of Compass Now Available

The fall 2017 issue of Compass is now available online.

This issue covers Phase II of the SMA Industry Collaboration, as well as highlights and results from the Patient Focused Drug Development Meeting...

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Topics: Our Impact, Research, Front Page News

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