News

February 14, 2018

Additional Funding for SMA Care Centers Announced

Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase capacity at SMA treatment centers across the US.

In January 2018, Cure SMA selected five additional treatment centers, totaling $200,000, to...

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Topics: Support & Care, Our Impact, Front Page News

February 8, 2018

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) today recommended that newborn screening for spinal muscular atrophy be implemented nationwide.

This decision is an important step toward our goal of having every baby born in the United States screened for...

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Topics: Our Impact, Advocacy, Front Page News

February 6, 2018

Utah Becomes First State to Implement Permanent Screening for SMA

Utah Becomes First State to Implement Permanent Screening for SMA

The Utah Department of Public Health has announced that, effective immediately, all newborns born in the state will be screened for spinal muscular atrophy. This

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Topics: Our Impact, Advocacy, Front Page News

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