News

August 15, 2017

Centers for Medicare and Medicaid Services (CMS) Survey

On August 3rd, as part of multiple days of advocacy visits, Cure SMA staff met with leaders from the Medicare division of the Centers for Medicare and Medicaid Services (CMS). The goal of the meeting was to advocate for robust reimbursement for Spinraza, as part of our

READ MORE   |  

Topics: Our Impact, Front Page News

August 10, 2017

SMA Families and Cure SMA Staff Visit Capitol Hill for Advocacy Efforts

SMA Families and Cure SMA Staff Visit Capitol Hill for Advocacy Efforts

On August 2nd, members of the spinal muscular atrophy community kicked off SMA Awareness Month by meeting with a dozen Senate and House congressional offices to advocate for issues that impact our community. The teams conducting these visits included families affected by SMA, and Cure SMA...

READ MORE   |  

Topics: Our Impact, Advocacy, Front Page News

May 11, 2017

RUSP Nomination for SMA Accepted into Evidence Review

RUSP Nomination for SMA Accepted into Evidence Review

The Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) announced that they have accepted spinal muscular atrophy into the review process for the Recommended Uniform Screening Panel (RUSP). The RUSP is a list of conditions that all newborns in the US...

READ MORE   |  

Topics: Our Impact, Advocacy, Front Page News

Items 1 - 3 of 86  12345678910Next

© 2014 Cure SMA | Privacy Policy

Powered by Blackbaud
nonprofit software