News

August 15, 2018

Illinois Adopts Permanent SMA Screening

Illinois Adopts Permanent SMA Screening

Last night, Governor Bruce Rauner of Illinois signed SB 456, adding spinal muscular atrophy (SMA) to the state’s newborn screening panel.

The bill adds Illinois to a number of states who have already adopted permanent SMA screening, including Missouri, Utah, Minnesota and...

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Topics: Our Impact, Advocacy, Front Page News

August 1, 2018

Community Spotlight: Brynne Willis

Community Spotlight: Brynne Willis

At 10 years old, Brynne Willis knew something was wrong; it was time for the Presidential Fitness Test required by public schools and she kept falling behind her peers.

“I kept falling every time I tried to run and was the last to complete the one-mile run,” said...

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Topics: Community & Awareness, Our Impact, Front Page News

July 17, 2018

Wisconsin Moves One Step Closer to SMA Newborn Screening

Wisconsin Moves One Step Closer to SMA Newborn Screening

The Wisconsin Secretary of Health Services, Linda Seemeyer, recently approved the addition of SMA to the newborn screening panel through the administrative rule making process. SMA was nominated in November 2017 for addition to the Wisconsin panel. In December 2017, the Umbrella Committee of...

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Topics: Our Impact, Advocacy, Front Page News

July 12, 2018

Cure SMA Awards $300,000 Grant to Kevin Hodgetts, PhD, The Brigham and Women's Hospital

Cure SMA Awards $300,000 Grant to Kevin Hodgetts, PhD, The Brigham and Women's Hospital

Cure SMA has awarded a $300,000 preclinical drug discovery grant to Kevin Hodgetts, PhD, at the Brigham and Women’s Hospital, for his project, " Pre-Clinical Development of LDN-5178 for the Treatment of SMA.”

This grant will be conducted by two academic research teams...

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Topics: Our Impact, Research, Front Page News

July 10, 2018

Cure SMA Awards $300,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA Awards $300,000 Grant to Umrao Monani, PhD, Columbia University

Cure SMA has awarded a $300,000 preclinical drug discovery grant to Umrao Monani, PhD, at Columbia University, for his project, " Restoring function at the NMJ: A novel means to treat SMA.”

A drug directed at SMN enhancement, Spinraza, has recently become available but is...

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Topics: Our Impact, Research, Front Page News

July 3, 2018

HHS Secretary, Alex Azar, Recommends Nationwide Newborn Screening for SMA

HHS Secretary, Alex Azar, Recommends Nationwide Newborn Screening for SMA

Health and Human Services Secretary Alex Azar today approved the recommendation that newborn screening for spinal muscular atrophy be implemented nationwide. This recommendation was issued on February 8, 2018, by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)....

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Topics: Our Impact, Advocacy, Front Page News

June 28, 2018

SMA Newborn Screening Moves Forward in New Jersey

SMA Newborn Screening Moves Forward in New Jersey

Earlier this month, the New Jersey State Senate Committee on Health, Human Services, and Senior Citizens unanimously approved S. 974. Introduced by Senator Troy Singleton, the bill would add SMA to the New Jersey’s...

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Topics: Our Impact, Advocacy, Front Page News

June 25, 2018

Summer 2018 Issue of Compass Now Available

Summer 2018 Issue of Compass Now Available

The summer 2018 issue of Compass is now available online.

As part of our most recent round of funding, we’ve announced ten grants totaling $1,325,000 million for basic research.

This issue of Compass...

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Topics: Our Impact, Research, Front Page News

May 31, 2018

Ohio Moves One Step Closer to SMA Newborn Screening

Ohio Moves One Step Closer to SMA Newborn Screening

The Ohio Newborn Screening Advisory Committee recommended that SMA be added to their state’s newborn screening panel. The recommendation now goes to the Ohio Department of Health for a rulemaking process. Once these rules are developed and approved, SMA will be officially added to the...

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Topics: Our Impact, Advocacy, Front Page News

May 24, 2018

Cure SMA Awards $150,000 Grant to Kathryn Swoboda, MD, Massachusetts General Hospital

Cure SMA Awards $150,000 Grant to Kathryn Swoboda, MD, Massachusetts General Hospital

Cure SMA has awarded a $150,000 research grant to Kathryn Swoboda, MD, at the Massachusetts General Hospital, for her project, "Clinical and pathologic correlations in patients with early infantile-onset SMA.”

SMA is caused by mutations in the SMN1 gene resulting in low levels of...

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Topics: Our Impact, Research, Front Page News

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