News

March 20, 2017

American College of Obstetricians and Gynecologists Recommends Expanded SMA Carrier Screening

The American College of Obstetricians and Gynecologists has released updated guidance on carrier testing for genetic conditions. The updated guidance includes, for the first time, a...

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Topics: Support & Care, Front Page News

March 16, 2017

AveXis Reports Results from Phase 1 Trial of AVXS-101

AveXis Reports Results from Phase 1 Trial of AVXS-101

AveXis, Inc., a clinical-stage gene therapy company developing treatments for patients suffering from rare and life-threatening neurological genetic diseases, today reported

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Topics: Clinical Trials, Front Page News

March 15, 2017

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

Your elected officials who represent you in Washington, D.C. have caseworkers in their regional and district offices in your communities. These caseworkers can help you work with and better understand government programs, like Medicaid, Medicare, TRICARE, and Social...

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Topics: Community & Awareness, Advocacy, Front Page News

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