News

June 20, 2017

Launch of Phase 2 SMA Industry Collaboration Announced

Launch of Phase 2 SMA Industry Collaboration Announced

Cure SMA is pleased to announce the launch of Phase 2 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, Cure SMA, and other nonprofit organizations, to share information, ideas, and data. The SMA...

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Topics: Front Page News

June 16, 2017

2017 Annual SMA Conference Booklet Now Posted

2017 Annual SMA Conference Booklet Now Posted

The 2017 Annual SMA Conference Booklet is now posted. 

The booklet includes: 

  • A complete schedule with information about the special events we've got planned including: the Family Friendly...

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Topics: Conference, Front Page News

June 15, 2017

SMA Newborn Screening Moves Forward in Missouri and Florida

SMA Newborn Screening Moves Forward in Missouri and Florida

The spinal muscular atrophy community is celebrating significant progress toward adding SMA to newborn screening panels in two states.

Missouri to Become the First State to Screen for SMA

In Missouri, Senate Bill 50 has been passed by both the Missouri House and Missouri...

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Topics: Community & Awareness, Advocacy, Front Page News

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