News

March 7, 2017

Cure SMA Releases Care Series Booklet on Insurance

Cure SMA Releases Care Series Booklet on Insurance

Cure SMA is excited to announce the launch of our newest care series booklet, Choice and Connection to Care: A Health Insurance Roadmap for People Living with Spinal Muscular Atrophy (SMA) and Their Caregivers. You can download a copy of this booklet now from our website, or...

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Topics: Support & Care, Front Page News

March 1, 2017

SMA is Submitted to the Federal Newborn Recommended Uniform Screening Panel (RUSP)

SMA is Submitted to the Federal Newborn Recommended Uniform Screening Panel (RUSP)

Cure SMA and the SMA Newborn Screening Coalition are excited to announce we have completed the submission of SMA to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the...

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Topics: Our Impact, Advocacy, Front Page News

February 23, 2017

Announcing an Evening of Wonder at Magic Kingdom Park

Announcing an Evening of Wonder at Magic Kingdom Park

Just added to this year’s conference schedule: Saturday night at Magic Kingdom Park! We are excited to announce that each conference attendee will get to participate in this classic Disney World evening, sponsored by Biogen.

All registered participants will receive complimentary...

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Topics: Conference, Front Page News

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