News

February 8, 2018

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) today recommended that newborn screening for spinal muscular atrophy be implemented nationwide.

This decision is an important step toward our goal of having every baby born in the United States screened for...

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Topics: Our Impact, Advocacy, Front Page News

February 6, 2018

Utah Becomes First State to Implement Permanent Screening for SMA

Utah Becomes First State to Implement Permanent Screening for SMA

The Utah Department of Public Health has announced that, effective immediately, all newborns born in the state will be screened for spinal muscular atrophy. This

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Topics: Our Impact, Advocacy, Front Page News

February 2, 2018

Federal Committee to Vote on Spinal Muscular Atrophy Newborn Screening on Thursday

On Thursday, February 8, the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC), a federal committee that oversees newborn screening, will vote on whether to recommend newborn screening for spinal muscular atrophy. This decision is an important step toward our goal of having every baby born in the United States...

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Topics: Our Impact, Advocacy, Front Page News

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