News

February 16, 2017

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA to Host Webinar with the FDA and Patient Advocates

Cure SMA is pleased to announce a new webinar on interactions between the FDA and the SMA community. The webinar will be held on March 8, 2017, at 1:00pm EST (10:00am PST/ 11:00am MST/ 12:00pm CST). 

The goal is to provide both a broad overview of how our...

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Topics: Community & Awareness, Advocacy, Front Page News

February 9, 2017

Cure SMA Launches Newborn Screening Coalition

Cure SMA Launches Newborn Screening Coalition

As SMA drug development continues to move forward, Cure SMA is focused on ensuring that approved therapies are accessible to our entire community. This includes making therapies widely available at clinical sites across the US, and facilitating insurance coverage. In addition, newborn...

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Topics: Our Impact, Advocacy, Front Page News

February 2, 2017

Registration Opens for the SMA Patient-Focused Drug Development Meeting with the FDA

Registration Opens for the SMA Patient-Focused Drug Development Meeting with the FDA

Registration is now open for the SMA Patient-Focused Drug Development (PFDD) meeting with the FDA. The PFDD meeting will be held at the College Park Marriott, near Washinton DC, on Tuesday, April 18. 

There are two primary ways to participate in this...

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Topics: Our Impact, Advocacy, Front Page News

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