News

May 5, 2017

Update on the Passage of the AHCA

Update on the Passage of the AHCA

Yesterday, the House of Representatives passed the American Health Care Act (AHCA). The House passed legislation included an amendment that increases funding to mitigate a potential rise in health care premiums for those with pre-existing conditions; however, concerns remain about the impact...

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Topics: Advocacy, Front Page News

May 2, 2017

Cure SMA Grassroots Alert - AHCA

Cure SMA Grassroots Alert - AHCA

After a failed attempt in March, Members of Congress are trying once again to assemble legislation to repeal key parts of the Patient Protection and Affordable Care Act (ACA). The latest attempt, called the American Health Care Act (AHCA), could impact SMA patients’ access to health care...

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Topics: Advocacy, Front Page News

May 1, 2017

Cure SMA Awards $140,000 Grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children's Hospital of Chicago

Cure SMA Awards $140,000 Grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children's Hospital of Chicago

Cure SMA has awarded a $140,000 research grant to Christine DiDonato, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago, for her project, “Skeletal muscle activators as potential modulators of muscular weakness in SMA.”

In SMA, the ability of the muscle to...

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Topics: Research, Front Page News

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