News

October 13, 2017

Cure SMA Meets in Utah with State and Federal Elected Officials to Support Newborn Screening

Cure SMA Meets in Utah with State and Federal Elected Officials to Support Newborn Screening

On Tuesday, Cure SMA staff members and family advocates, and clinicians from the University of Utah, met with Senator Orrin Hatch (R-UT) to discuss newborn screening for spinal muscular atrophy. Senator Hatch was an original sponsor of the Newborn Screening Saves Lives Act of 2007, which...

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Topics: Our Impact, Advocacy, Front Page News

October 12, 2017

Genentech/Roche Releases Clinical Trial Update for SUNFISH (RG7916)

Genentech/Roche Releases Clinical Trial Update for SUNFISH (RG7916)

Genentech/Roche has provided the below community statement with clinical trial updates for SUNFISH (Type 2/3). The first patient is now enrolled in SUNFISH, as the trial advances to part two, which is designed to be a pivotal marketing registration trial. 

Dear SMA...

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Topics: Clinical Trials, Research, Front Page News

September 29, 2017

Recording of the September Webinar on Spinraza Updates Now Available

A recording of last week’s webinar updating the community on Spinraza access and administration sites is now available online. A PDF of the webinar presentation is also available for

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Topics: Community & Awareness, Support & Care, Front Page News

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