News

June 15, 2017

SMA Newborn Screening Moves Forward in Missouri and Florida

SMA Newborn Screening Moves Forward in Missouri and Florida

The spinal muscular atrophy community is celebrating significant progress toward adding SMA to newborn screening panels in two states.

Missouri to Become the First State to Screen for SMA

In Missouri, Senate Bill 50 has been passed by both the Missouri House and Missouri...

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Topics: Community & Awareness, Advocacy, Front Page News

June 14, 2017

AveXis Announces Alignment with the FDA on Company's GMP Commercial Manufacturing Process for AVXS-101

AveXis Announces Alignment with the FDA on Company's GMP Commercial Manufacturing Process for AVXS-101

AveXis today announced alignment with the U.S. Food and Drug Administration (FDA) on the company’s Good Manufacturing Practice (GMP) commercial manufacturing process for...

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Topics: Research, Front Page News

June 14, 2017

Cure SMA Advocacy Activities for the 2017 Year-to-Date

Cure SMA Advocacy Activities for the 2017 Year-to-Date

The first half of 2017 has been an active six months for Cure SMA and SMA advocates. Cure SMA and members of our community have been working with stakeholders groups across multiple settings to ensure our patients’ voices are heard. Below is a summary of the key issues and audiences...

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Topics: Community & Awareness, Advocacy, Front Page News

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