News

April 11, 2019

Cure SMA Care Center Network Expands to 10 Sites

Cure SMA Care Center Network Expands to 10 Sites

In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...

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Topics: Support & Care, Our Impact, Front Page News

April 8, 2019

2019 Annual SMA Conference Schedule is Released

2019 Annual SMA Conference Schedule is Released

Cure SMA has released the schedule for the 2019 Annual SMA Conference, which will be held at the Disneyland Hotel in Anaheim, California from Friday, June 28 – Monday, July 1.

We look forward to...

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Topics: Conference, Front Page News

April 8, 2019

Thank You Cure SMA Volunteers!

Thank You Cure SMA Volunteers!

Happy National Volunteer Week! This week we're celebrating our Cure SMA volunteers. 

Each year, Cure SMA hosts over 300 local events, the Annual SMA Conference, and sends out thousands of resources including information packets, care packages, and equipment.  Without our wonderful...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

April 4, 2019

2019 Annual SMA Conference Registration Continues to Grow!

2019 Annual SMA Conference Registration Continues to Grow!

The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly!

This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting.

Hotel rooms...

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Topics: Support & Care, Conference, Front Page News

April 3, 2019

Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa

Cure SMA Awards $150,000 Grant to Jocelyn Cote, PhD, University of Ottawa

Cure SMA and Cure SMA Canada have awarded a $150,000 research grant to Jocelyn Cote, PhD, at the University of Ottawa for his project, “Investigating the contributions of CARM1 and HuR misregulation to SMA skeletal muscle and NMJ defects.”

While an essential role for SMN in...

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Topics: Research, Front Page News

April 2, 2019

What is the Summit of Strength Program?

What is the Summit of Strength Program?

Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 Summit of Strength Program has officially begun!

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Topics: Community & Awareness, Support & Care, Front Page News

April 1, 2019

We're Celebrating Local Support

We're Celebrating Local Support

We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information and resources they need to live active, engaged, and hopeful lives today.

We’re dedicating the month of April to...

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Topics: Support & Care, Events & Fundraising, Front Page News

March 28, 2019

Cure SMA Awards $200,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

Cure SMA Awards $200,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

Cure SMA and FAME (Families of SMA, Argentina) have awarded a $200,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, for his project, "Epigenetics in SMN2 E7 Alternative Splicing II.”

Epigenetics refers to changes that affect how much...

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Topics: Research, Front Page News

March 27, 2019

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, "Neurofilaments as markers of neurodegeneration in SMA.”

Dr. Sumner and her team are looking at the neuronal-specific cytoskeletal protein neurofilaments (NFs)...

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Topics: Our Impact, Research, Front Page News

March 26, 2019

The Winter 2019 issue of Compass in Now Available Online

The Winter 2019 issue of Compass in Now Available Online

The Winter 2019 issue of Compass is now available online. This issue covers Cure SMA’s latest drug discovery grant funding and features an updated SMA drug pipeline.

Drug discovery, also called translational...

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Topics: Clinical Trials, Research, Front Page News

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