News

January 25, 2018

Cure SMA to Host Webinar on Treatment Access and Clinical Trials on February 15

Cure SMA to Host Webinar on Treatment Access and Clinical Trials on February 15

On Thursday, February 15, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on treatment access and clinical trials. Among the topics covered will be: 

  • The current status of Spinraza access, including dosing, sites, and...

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Topics: Community & Awareness, Clinical Trials, Front Page News

January 19, 2018

SMA Industry Collaboration Releases Spinal Muscular Atrophy Voice of the Patient (VoP) Report

SMA Industry Collaboration Releases Spinal Muscular Atrophy Voice of the Patient (VoP) Report

Cure SMA and our partners in the SMA Industry Collaboration are pleased to announce the release of the Spinal Muscular Atrophy Voice of the Patient (VoP) Report. This report is a thorough written account...

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Topics: Our Impact, Advocacy, Front Page News

January 17, 2018

2018 Updated SMA Drug Pipeline Released

2018 Updated SMA Drug Pipeline Released

We’ve recently released an update to the SMA drug pipeline. This latest version includes:

  • 16 active programs, including one approved therapy. 
  • 14 pharmaceutical partners.
  • 6 programs in clinical trials.
  • An ever-increasing breadth of...

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Topics: Clinical Trials, Research, Front Page News

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