News

September 11, 2017

2017 SMA Awareness Month Recap

2017 SMA Awareness Month Recap

The SMA community celebrated an impactful and advocacy-driven Awareness Month through a number of ways this August. Whether hosting candlelight vigils, meeting with state and local legislatures, holding fundraisers, coordinating MLB awareness games, and more, the community worked together to...

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Topics: Community & Awareness, Front Page News

September 6, 2017

Cure SMA to Host Webinar Updating the Community on Spinraza Access

Cure SMA to Host Webinar Updating the Community on Spinraza Access

On Tuesday, September 19, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on the status of Spinraza access. Among the topics covered will be:

  • The current status of dosing in states across the...

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Topics: Community & Awareness, Front Page News

August 29, 2017

2017 SMA Researcher Meeting Summary: Clinical Research Studies for SMA

2017 SMA Researcher Meeting Summary: Clinical Research Studies for SMA

The Annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year we had a record setting 470 attendees. The goal of the meeting is to create open communication of early, unpublished data, accelerating the pace of research. The meeting also...

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Topics: Conference, Research, Front Page News

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