January 4, 2018

Minnesota Becomes Second State to Adopt Newborn Screening for SMA

On December 27, the Minnesota Commissioner of Health accepted the recommendation of the state's Advisory Committee on Heritable and Congenital Disorders to add SMA to Minnesota’s newborn screening panel. With this decision, Minnesota becomes the second state, after Missouri, to adopt permanent newborn screening for SMA.

Cure SMA...


Topics: Our Impact, Advocacy, Front Page News

January 3, 2018

Cure SMA Announces Funding for Care Centers Across the US

Cure SMA is pleased to announce the first grants from $450,000 in funding to help increase capacity at SMA treatment sites across the US.

In order to increase the number of affected individuals that sites can follow, treat and evaluate, Cure SMA will award $50,000 grants to nine sites, for a total of $450,000 in funding. These grants...


Topics: Support & Care, Research, Front Page News

December 29, 2017

Biogen and Ionis Enter Into New Collaboration to Identify Novel Therapies for the Treatment of Spinal Muscular Atrophy

Biogen and Ionis Pharmaceuticals announced that they have entered into a new collaboration agreement to identify new antisense oligonucleotide drug candidates for the treatment of spinal...


Topics: Our Impact, Research, Front Page News

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