News

May 16, 2017

Cure SMA Announces 2017 Family Friendly Poster Session Presenters

Cure SMA Announces 2017 Family Friendly Poster Session Presenters

We’ve recently seen significant advances in SMA research come to fruition, and with 17 drug programs in development, including five in clinical trials, we are invested to treating all ages, stages and types of SMA. With such great promise in the research landscape, we know that...

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Topics: Conference, Front Page News

May 15, 2017

Cure SMA Awards $140,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires, Argentina

Cure SMA Awards $140,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires, Argentina

Cure SMA and FAME (Families of SMA, Argentina) have awarded a $140,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, for his project, "Epigenetics in SMN2 E7 Alternative Splicing.”

Epigenetics refers to changes that affect how...

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Topics: Research, Front Page News

May 11, 2017

RUSP Nomination for SMA Accepted into Evidence Review

RUSP Nomination for SMA Accepted into Evidence Review

The Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) announced that they have accepted spinal muscular atrophy into the review process for the Recommended Uniform Screening Panel (RUSP). The RUSP is a list of conditions that all newborns in the US...

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Topics: Our Impact, Advocacy, Front Page News

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