News

February 1, 2017

Spinraza Access Update Webinar

Spinraza Access Update Webinar

On Tuesday, February 14, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA hosted a webinar updating the community on the status of Spinraza access. Among the topics covered were adminstration sites, insurance coverage, and community resources and support programs. 

We...

READ MORE   |  

Topics: Community & Awareness, Front Page News

January 31, 2017

Cure SMA Launches Community Survey to Address Urgent and Important Issues in SMA Treatment

Cure SMA Launches Community Survey to Address Urgent and Important Issues in SMA Treatment

For the past several years, we've been working to collect data and information on our community's experiences, goals, hopes and challenges. We know that the voice of our community is powerful. By sharing our stories, we can communicate our priorities to the FDA and regulators,...

READ MORE   |  

Topics: Community & Awareness, Front Page News

January 13, 2017

Biogen Presents New ENDEAR Data Showing SPINRAZA (nusinersen) Significantly Reduces Risk of Death or Permanent Ventilation

Biogen presented new data from the Phase 3 ENDEAR study of SPINRAZA™ (nusinersen), which demonstrated a statistically significant reduction in the risk of death or permanent...

READ MORE   |  

Topics: Clinical Trials, Research, Front Page News

Items 25 - 27 of 332  Previous12345678910Next

© 2014 Cure SMA | Privacy Policy

Powered by Blackbaud
nonprofit software