News

January 2, 2019

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, Cure SMA, and other nonprofit...

READ MORE   |  

Topics: Our Impact, Research, Front Page News

December 28, 2018

Hope on the Hill Congressional Dinner Raises $200,000

Hope on the Hill Congressional Dinner Raises $200,000

The 8th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, November 27, 2018 at The Willard Hotel in Washington, DC. More than 170 people from the SMA community – including government and industry partners – attended the dinner which raised $200,000 to...

READ MORE   |  

Topics: Our Impact, Advocacy, Front Page News

December 26, 2018

December Webinar on SMA Treatments and Clinical Trials Now Available Online

December Webinar on SMA Treatments and Clinical Trials Now Available Online

A recording of the December 13th webinar updating the community on SMA treatments and clinical trials is now available online. A PDF of the webinar presentation is also available for...

READ MORE   |  

Topics: Clinical Trials, Research, Front Page News

December 20, 2018

2018 Research Year-in-Review

2018 Research Year-in-Review

Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be used strategically to help accelerate research, and ensure we are developing treatments for all types, ages, and stages of SMA. The...

READ MORE   |  

Topics: Our Impact, Research, Front Page News

December 19, 2018

Cure SMA Funding Leads to 16 New Research Publications in 2018

An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often publish their findings in peer-reviewed journals. This means that other scientists can learn from their results, which will pay dividends across the wider landscape of SMA...

READ MORE   |  

Topics: Our Impact, Research, Front Page News

December 18, 2018

Community Spotlight: The Berkovits Family

Community Spotlight: The Berkovits Family

When Milo Berkovits was seven months old, his daycare teacher noticed he was not reaching his milestones. What followed from there on were visits to three different pediatricians, an early intervention assessment, a review by a private occupational therapist, another assessment by a private...

READ MORE   |  

Topics: Community & Awareness, Front Page News

December 14, 2018

Advocacy Year-in-Review 2018

Advocacy Year-in-Review 2018

For Cure SMA, 2018 has been a year of great progress. As we continue to make strides into 2019, it is important to take a moment to look back at all our successes. Thank you to all our families and advocates for your support and continued efforts to cure SMA. We wish you all a very Happy...

READ MORE   |  

Topics: Our Impact, Advocacy, Front Page News

December 13, 2018

Biogen Issues Q4 Community Statement on Spinraza

Biogen Issues Q4 Community Statement on Spinraza

Bigoen has provided the below community statement on Spinraza. 

Dear Members of the SMA community,

As we approach the two-year anniversary of the U.S. Food and Drug Administration’s (FDA) approval of SPINRAZA® (nusinersen), we want to thank you for your ongoing...

READ MORE   |  

Topics: Clinical Trials, Research, Front Page News

December 12, 2018

AveXis Issues Community Statement on BLA Acceptance

AveXis Issues Community Statement on BLA Acceptance

AveXis has provided the following community statement on the BLA submission and acceptance for their investigational therapy, AVXS-101 - now known as ZOLGENSMA®.

Dear SMA Community,

We are providing this update to the SMA community in the U.S. at the request of Cure SMA....

READ MORE   |  

Topics: Clinical Trials, Research, Front Page News

December 10, 2018

Closing out 2018 with Good News: Virginia Adopts SMA to their Newborn Screening Panel, Arizona Moves Closer to Adopting SMA Newborn Screening and Illinois Medicaid Covers Spinraza Treatment

Closing out 2018 with Good News: Virginia Adopts SMA to their Newborn Screening Panel, Arizona Moves Closer to Adopting SMA Newborn Screening and Illinois Medicaid Covers Spinraza Treatment

The SMA community has multiple victories to celebrate as the year comes to an end. Thank you to all our amazing families and advocates who have and continue to make this progress possible.

Virginia Adopts SMA Newborn Screening

Last month, Virginia’s Newborn Screening...

READ MORE   |  

Topics: Community & Awareness, Advocacy, Front Page News

Items 81 - 90 of 648  Previous12345678910Next

© 2019 Cure SMA | Cure SMA is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. EIN: 36-3320440. | Privacy Policy

Powered by Blackbaud
nonprofit software