July 2, 2017
Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening
Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular atrophy. Today’s kick-off event is a symposium on newborn screening advocacy, held as part of the Annual SMA Conference in Orlando, FL.
One state, Missouri, has legislation...
July 1, 2017
We’ve recently released an update to the SMA drug pipeline. This latest version includes:
- 19 active programs, including one approved therapy.
- 14 pharmaceutical partners.
- 5 programs in clinical trials.
- An ever-increasing...
June 30, 2017
The journal Neuromuscular Disorders has published a paper reporting on the findings of an international workgroup convened to update the Standard of Care (SOC) for SMA. Cure SMA provided funding support for this project, and Mary Schroth, medical...