News

August 17, 2017

Cure SMA-Funded Researchers, Diane Murrell and Deborah Boroughs, Publish Papers

Two Cure SMA-funded projects have recently been published. Diane Murrell and her team published the paper, "The Experience of Families With Children With Spinal Muscular Atrophy Type I Across Health Care Systems" in the Journal of Child Neurology. Deborah Boroughs' paper, “An Evaluation of a Continuing Education Program for Families of...

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Topics: Research, Front Page News

August 15, 2017

2017 Researcher Meeting Summary: Regulation of Splicing and SMN Protein Expression

2017 Researcher Meeting Summary: Regulation of Splicing and SMN Protein Expression

The Annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year we had a record setting 470 attendees. The goal of the meeting is to create open communication of early, unpublished data, accelerating the pace of research. The meeting also...

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Topics: Conference, Research, Front Page News

August 15, 2017

Centers for Medicare and Medicaid Services (CMS) Survey

On August 3rd, as part of multiple days of advocacy visits, Cure SMA staff met with leaders from the Medicare division of the Centers for Medicare and Medicaid Services (CMS). The goal of the meeting was to advocate for robust reimbursement for Spinraza, as part of our

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Topics: Our Impact, Front Page News

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