News

December 1, 2016

Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

On Tuesday, November 29, more than 160 people from the SMA community - including government and industry partners - gathered for the 6th Annual "Hope on the Hill" Congressional Dinner.

Several Members of Congress attended the dinner, including Reps. Sean Duffy, Bill Foster, Jeb...

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Topics: Community & Awareness, Advocacy, Front Page News

November 30, 2016

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

Annual South Florida Gala of Hope Raises over $1 Million in 6 Years

The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala now exceed $1 million in its six year history.

The event was founded and is organized by Fiorenna Fuentes Israel and Jennifer...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

November 28, 2016

Help Us Shape the Future Together, and Reach our Goal of $750,000

Help Us Shape the Future Together, and Reach our Goal of $750,000

This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug Application for Spinraza (nusinersen) was accepted by the FDA. This means...

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Topics: Our Impact, Events & Fundraising, Advocacy, Front Page News

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