News

July 2, 2017

Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening

Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular atrophy. Today’s kick-off event is a symposium on newborn screening advocacy, held as part of the Annual SMA Conference in Orlando, FL.

One state, Missouri, has legislation...

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Topics: Advocacy, Front Page News

July 1, 2017

Summer 2017 Update to SMA Drug Pipeline is Released

Summer 2017 Update to SMA Drug Pipeline is Released

We’ve recently released an update to the SMA drug pipeline. This latest version includes:

  • 19 active programs, including one approved therapy. 
  • 14 pharmaceutical partners. 
  • 5 programs in clinical trials. 
  • An ever-increasing...

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Topics: Research, Front Page News

June 30, 2017

Cure SMA Funded Standard of Care Paper Published in Neuromuscular Disorders Journal

The journal Neuromuscular Disorders has published a paper reporting on the findings of an international workgroup convened to update the Standard of Care (SOC) for SMA. Cure SMA provided funding support for this project, and Mary Schroth, medical...

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Topics: Support & Care, Research, Front Page News

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