Full Schedule of Workshops, Panels and Speakers for the 2017 Annual SMA Conference Announced
Cure SMA has released the full schedule of workshops, panels and speakers for the 2017 Annual SMA Conference, to be held at Walt Disney World in Orlando, FL from June 29 – July 2.
A detailed timeline with locations are included in the updated schedule, as well as several new adult workshops and panels like Finding a Job, Interviewing and How to Ask for Modifications Panel; ADA Rights; Laughter Yoga for Caregivers and more! The full schedule can be viewed and downloaded here.
Newborn Screening Symposium
A newborn screening symposium will also be held at the Annual SMA Conference. The purpose of this symposium is to train “SMA champions” to advocate for newborn screening in their respective states.
The symposium will be held on Sunday morning in the Fantasia Ballroom, 7:30 - 8:45, and a special breakfast will be provided.
The Research Q&A Session panelists and topics are as follows:
Saturday, July 1, 2017 from 1:45 pm to 3:45 pm
Fantasia Ballroom, Contemporary Hotel, Disney World
Part I: SMA Drugs in Development
AveXis Inc., Sukumar Nagendran MD, AveXis Sr VP and Chief Medical Officer
Cytokinetics, Stacy Rudnicki MD, Director of Clinical Research and Development
La Roche, Sangeeta Jethwa MD, Head Patient Partnership, Rare Diseases, Research and Early Development, F.Hoffmann
La Roche, Ksenija Gorni MD, PhD. Translational Medicine Leader, SMA Research and Early Development, F.Hoffmann
Musculoskeletal Diseases Novartis Institutes for Biomedical Research, Lawrence Charnas, MD, PhD, Sr. Translational Medicine Expert
Part II: Drug Access and Reimbursement
Understanding Your Insurance Benefits: The What, Why and How?
Biogen, Jen Norton, Vice President, Market Access & Reimbursement
Panel Discussion on Drug Access and Site Capacity
Record Breaking Year for the Annual SMA Conference
We are expecting nearly 2,000 individuals, families and medical professionals, including nearly 450 researchers, at this year’s conference – breaking every record of previous years!
We look forward to reuniting as a community to lend one another support and strength, to learn about the latest advances in research and care, and to discuss the importance of continued funding after the first drug approval.
See you in Orlando!
Our thanks to Biogen for their generosity as the presenting sponsor of the 2017 Annual SMA Conference.