Additional Funding for SMA Care Centers Announced

By Cure SMA | Published On February 14, 2018

Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase capacity at SMA treatment centers across the US.

In January 2018, Cure SMA selected five additional treatment centers, totaling $200,000, to receive a grant to further increase the number of affected individuals that these sites can follow, treat and evaluate. The combined $650,000 in funding will help all 14 treatment centers to reduce some of the practical barriers that create delays for our community in accessing treatments and care. These barriers include pre-authorization and insurance approvals, scheduling, and clinic support.

The grants were awarded to sites through a competitive RFP process. Sites were assessed based on number of patients currently seen and treated, an evaluation of the current bottlenecks and barriers to access, and the number of additional patients that could be seen and treated if these barriers were eliminated.

2017-18 Treatment Access Grants

The following 4 sites have received a grant, for a total of $200,000. An additional 5 grants will be announced in the coming weeks.

Stanford University School of Medicine, Pediatric Neuromuscular Clinic

Nemours Children’s Hospital

Columbia University Medical Center

University of California, Los Angeles

Topics: Support & Care, Our Impact, Front Page News

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