Clinical Care Funding Opportunities

We are committed to supporting programs that improve clinicians' ability to provide the best care for individuals with SMA.

Current RFP

Clinical Care Funding will not be offered for 2017 while we focus on other projects.

Past Funding

See more information about our past grants:

Medical Advisory Council


Mary K. Schroth, MD, Director of the Pediatric Pulmonary Center Grant at the American Family Children’s Hospital, University of Wisconsin School of Medicine and Public Health in Madison and Professor of Pediatric Pulmonology at the University of Wisconsin, Pediatric Pulmonology.

Official Members

Vanessa Battista, RN, MS, CPNP, CCRC, Pediatric Nurse Practitioner (PNP) with the Pediatric Advanced Care Team (PACT) at The Children’s Hospital of Philadelphia, Interdisciplinary Care for Chronic Diseases in Children. 

Terri Carry, MS, PT, physical therapist, Children's Hospital Colorado

Thomas Crawford, MD, Associate Professor Pediatrics and Neurology at Johns Hopkins University, Pediatric Neurology.  

Rebecca Hurst Davis, MS, RD, CSP, CD, University of Utah’s Pediatric Motor Disorder Research Program, Pediatric Nutrition. 

Albert Freedman, PhD, child and family psychologist in independent practice in West Chester, Pennsylvania.

Robert Graham, MD, Clinical Director for Clinical Care, Anesthesiology, Perioperative Extension (CAPE) and Home Ventilation Programs at the Boston Children's Hospital, Critical Care Medicine.

Richard M. Kravitz, MD, Associate Professor of Pediatrics in the Division of Pediatric Pulmonary and Sleep Medicine at the Duke University Medical Center, Pediatric Pulmonology.

Kristin J. Krosschell, PT, DPT, MA, PCS, Department of Physical Therapy and Human Movement Sciences at the Feinberg School of Medicine, Northwestern University, Pediatric Physical Therapy.

Nancy Kuntz, MD, Associate Professor of Pediatrics and Neurology, Northwestern Feinberg School of Medicine, Ann and Robert H. Lurie Children's Hospital of Chicago, IL.

Oren Kupfer, MD, Assistant Professor of Pediatrics, Inpatient Director for Pediatric Pulmonolgy, Universtiy of Colorado School of Medicine, Children's Hospital of Colorado.

Diane Murrell, LCSW, social worker, Blue Bird Circle Clinic for Pediatric Neurology, Texas Children's Hospital

Julie Parsons, MD, Associate Professor of Pediatrics and Neurology University of Colorado School of Medicine.

Karen Patterson, MS, PT, PCS, Faculty Associate with the University of Wisconsin Physical Therapy Program in Madison, Wisconsin, Pediatric Physical Therapy.

Samuel Rosenfeld, MD, Director, Muscular Dystrophy Association Clinic, CHOC Childrens Hospital Orange County.

Richard Shell, MD, Associate Professor in the Center for Respiratory Health at Nationwide Children’s Hospital and The Ohio State University in Columbus, Ohio, Pediatric Pulmonology. 

Perry Shieh, MD, PhD, Health Science Associate Professor of Neurology, UCLA School of Medicine and UCLA Medical Center.

Anne Stratton, MD, Assistant Professor Department of Rehabilitation, Children's Hospital Colorado.

Stacey Tarrant, BS, RD, LDN, Clinical Nutrition Specialist II, Boston Children's Hospital.

Fred Troutman, PhD, retired Air Force Colonel and a nurse educator from Portland, Oregon. 

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