Clinical Care Funding Opportunities

We are committed to supporting programs that improve clinicians' ability to provide the best care for individuals with SMA.

Current RFP

Clinical Care Funding will not be offered for 2018 while we focus on other projects.

Past Funding

See more information about our past grants:

Medical Advisory Council

Chair

Mary Schroth, MD
Mary is the Chief Medical Officer for Cure SMA. She brings 25 years of experience as a Pediatric Pulmonologist to Cure SMA and is Professor Emeritus at the University of Wisconsin School of Medicine and Public Health. As a specialist in SMA respiratory care and an educator, Dr. Schroth is a leader in the SMA community and within Cure SMA. 

Official Members

Alison Ballard, RN, MSN, Pediatric Nurse Practitioner and Neuromuscular Care Coordinator at Children's Hospital Colorado in Denver, CO

Vanessa Battista, RN, MS, CPNP – Palliative Care and Quality of Life Subcommittee Chair, Palliative Care Pediatric Nurse Practitioner at Children's Hospital of Philadelphia in Philadelphia, PA

William Bell, BS Pharm, MBA, MSCC, RPh, Director of Clinical Client Services in Chalfont, PA

John Brandsema, MD, specializes in Pediatric Neuromuscular Neurology at Children's Hospital of Philadelphia, associated with the Perelman School of Medicine at The University of Pennsylvania in Philadelphia, PA

Cindy Budek, MS, APRN, CPNP-PC/AC, Pediatric Neuromuscular Advanced Practice Nurse at Lurie Children's Hospital in Chicago, IL

Diana Castro, MD, specializes in Pediatric Neuromuscular Neurology at Children's Health, associated with the University of Texas Southwestern in Dallas, TX

Jin Yun (Helen) Chen, MS, CGC, Genetic Counselor at Massachusetts General Hospital in Boston, MA

Shelley Coskery, RN, MSN, specializes in Pediatric Pulmonology at Children's of Alabama in Birmingham, AL

Thomas Crawford, MD, specializes in Pediatric Neurology at Johns Hopkins Hospital, associated with Johns Hopkins University in Baltimore, MD

Tina Duong, MPT, PhDc, Physical Therapist at Stanford University in Stanford, CA

Bakri ElSheikh, MBBS, FRCP, specializes in Neurology, Neuromuscular Medicine, and Clinical Neurophysiology at The Ohio State University Wexner Medical Center in Columbus, OH

Albert Freedman, PhD, specializes in Psychology in independent practice in Philadelphia, PA

Melissa Gibbons, MS, CGC,Genetic Counselor at Children's Hospital Colorado, associated with the University of Colorado in Denver, CO

Nancy Glass, MD, MBA, specializes in Critical care, Anesthesiology, Pain, Hospice and Palliative Medicine at Texas Children's Hospital and Houston Hospice, associated with Baylor College of Medicine in Houston, TX

Jennifer Hubbell, OTR/L, Occupational Therapist at Cincinnati Children's Hospital Medical Center in Cincinnati, OH

Becky Hurst Davis, MS, RD, CSP, CD, CNSC – Nutrition Subcommittee Chair, Pediatric Nutritionist at Intermountain Healthcare in Salt Lake City, UT

Chamindra Konersman, MD, Neurologist at Rady Children's Hospital, associated with the University of California San Diego in San Diego, CA

Richard Kravitz, MD, Pediatric Pulmonologist and Sleep Medicine Physician at Duke University in Durham, NC

Kristin J. Krosschell, PT, DPT, MA, PCS – Musculoskeletal and Rehabilitation Subcommittee Chair, Pediatric Physical Therapist at Northwestern University in Chicago, IL

Oren Kupfer, MD, Pediatric Pulmonologist at Children's Hospital Colorado, associated with the University Of Colorado School Of Medicine in Denver, CO

Khalida Liaquat, MS, LCGC, Genetic Counselor at Athena Diagnostics in Marlborough, MA

Diane Murrell, LCSW – Care Coordination, Case Management, & Nursing Subcommittee Chair, Social Worker at Texas Children's Hospital in Houston, TX

Leslie Nelson, PT, PhDc, OCS, Pediatric Neuromuscular Physical Therapist at Children’s Health, associated with the University of Texas Southwestern in Dallas, TX

Julie Parsons, MD – Neurology Subcommittee Chair, Pediatric Neurologist at Children's Hospital Colorado, associated with the University of Colorado in Denver, CO

Silvana Ribaudo, MD – Genetics, OB/GYN, & Family Planning Subcommittee Chair, Obstetrician and Gynecologist at Columbia University in New York City, NY

Samuel Rosenfeld, MD, Orthopedic Surgeon at CHOC Children's Hospital in Orange, CA

Peter Schochet, MD, Pediatric Pulmonologist at Children’s Health, associated with the University of Texas Southwestern in Dallas, TX

Perry Shieh, MD, PhD – Adult Care Subcommittee Chair, Neurologist at UCLA Medical Center in Los Angeles, CA

Edward Smith, MD, Pediatric Neurologist at Duke University in Durham, NC

Anne Stratton, MD, Pediatric Physiatrist at Children's Hospital Colorado, associated with the University of Colorado in Denver, CO

Stacey Tarrant, BS, RD, LDN, Nutritionist at Boston Children's Hospital in Boston, MA

Jane Taylor, MD, MsCR, Pediatric Pulmonologist at the Children’s Mercy Kansas City, associated with the University of Missouri – Kansas City in Kansas City, MO

Fred Troutman, PhD, RN, Nurse Educator, Professor Emeritus at Walla Walla University in Portland, OR

Laura Watne, MS, RD, CSP, Nutritionist at Children's Hospital Colorado, associated with the University of Colorado in Denver, CO

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