Spinraza Administration Sites

Cure SMA does not endorse any particular site, treatment, or therapy. This information should be used in consultation with a qualified healthcare professional, who will help you make the decisions that are best for you and your family.

Treatment Site Locations

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Before contacting a site which is not located in your state, we strongly encourage you to discuss options with both your personal healthcare professional and with your insurer. Out-of-state treatment can present significant challenges in both travel and insurance reimbursement.

Our goal at Cure SMA is to build this list to a few hundred active centers across the US, including multiple locations in each state, to meet the expected needs of our whole community. We have to work together to greatly increase the number of sites involved in both delivering this first-ever new SMA therapy and providing SMA care. This process will take time, and there should be the expectation of delays in gaining access to Spinraza while this process takes place.

This list is continually updated as we confirm more sites that are administering or preparing to administer Spinraza. If your local site is not listed here, please email us, or ask the site coordinator to email us, at patientcare@curesma.org. If your state does not yet have a site listed, check back frequently as we work toward at least one pediatric and one adult site in each state, then multiple sites in higher population states.

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Sites Serving Adult Patients

Sites Serving Pediatric Patients

Sites Serving Adult and Pediatric Patients

Advocate Lutheran Children's Hospital, Oak Lawn

4440 West 95th St
Oak Lawn, Illinois 60453

Contact Information:

For more information, contact the Pediatric Neuromuscular Clinic at 708.684.8000

Albany Medical Center

319 Myrtle Ave
Albany, New York 12208

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Charles A. Nichter, MD at 518.262.1700, nichtec@mail.amc.edu 

Ann & Robert H Lurie Children’s Hospital of Chicago

225 E. Chicago Avenue Box 51
Chicago, Illinois 60611

Additional Information:

This site is for pediatric patients only. 

Contact Information:

For more information, contact Cynthia Budek, APN-NP, at 312.227.3550, cbudek@luriechildrens.org

Arkansas Children's Hospital

1 Children's Way, Slot 512-15
Little Rock, Arkansas 72202

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact J. Todd Outlaw, BSN, RN, CPN at 501.364.1850, outlawjt@archildrens.org

Atlas Neurology

401 15th Ave S
Suite 101
Great Falls, Montana 59405

Additional Information:

This site is for patients 5 and older; patients under 5 years old are taken on a case-by-case basis.

Contact Information:

For more information, contact Lee Evatt, LPN at 406.315.5950, atlas.neurology@gmail.com.

Barnes Jewish Hospital

4921 Parkview Place
Saint Louis , Missouri 63110

Additional Information:

*This site is for adult patients only.* 

Contact Information:

For more information, contact Becky Nguyen at 314.362.6981

Billings Clinic

2800 10th Avenue North
Billings, Montana 59104

Contact Information:

For more information, contact John Binder, MD at 406.238.5275

Blue Bird Circle Clinic for Neurology

6701 Fannin Street, CC 940.25
Houston, Texas 77030

Additional Information:

This site is for pediatric patients only.

Contact Information:


For more information, contact Trina Hastings, RN at 832.822.5046 or Diane Murrell, LCSW at 832.822.1058

Center for Adolescent and Child Neurology

422 Plymouth Ave NE
Grand Rapids, Michigan 49505

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Olufemi Soyode, MD at 616.294.0010, info@cacngr.com 

Center for Neurology and Spine (Glendale)

18700 N. 64th Dr, #206
Glendale, Arizona 85308

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jamie Glass, Office Manager, at 602.482.2116 ext. 105, jross@centerforneurologyandspine.com

Center for Neurology and Spine (Phoenix)

3815 E. Bell Rd, Ste. 2400
Phoenix, Arizona 85032

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jamie Glass, Office Manager, at 602.482.2116 ext. 105, jross@centerforneurologyandspine.com

Center for Neurology and Spine (Sun City)

13640 N. 99th Ave, Ste. 100
Sun City, Arizona 86032

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jamie Glass, Office Manager, at 602.482.2116 ext. 105, jross@centerforneurologyandspine.com

Child and Adolescent Neurology, Pediatric Day Unit

2825 Capitol Avenue
Sacramento, California 95816

Contact Information:

For more information, contact Diane Halverson at 916.887.0390

Child Neurology

University of Louisville/MDA Louisville
601 S Floyd St, Ste 500
Louisville, Kentucky 40202

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Karen Payne or Arpita Lakhotia, MD, at 502.588.3654, karen.payne@ulp.org.

Child Neurology - Weill Cornell Medicine

Helmsley Medical Tower
505 East 70th Street, 3rd Floor (HT-3)
New York, New York 10021

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Karina Garcia at 212.746.3278

Child Neurology Services

2100 W. Clinch Ave, Ste. 210
Knoxville, Tennessee 37916

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Cindy Helton at 865.523.5437.

Children's Clinic

2600 N Wyatt Drive
Tucson, Arizona 85712

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Diane Starits, RN, at 520.324.5437, info@childrensclinics.org.

Children's Hospital and Medical Center, Omaha

8200 Dodge St
Omaha, Nebraska 68114

Contact Information:

For more information, contact Melissa Fanning at 402.955.5372

Children's Hospital at OU Medical Center

1200 Children's Ave, Ste 9A
Oklahoma City, Oklahoma 73104

Contact Information:

For more information, contact Gray Inbody at 405.271.6390

Children's Hospital Medical Center of Akron

1 Perkins Square
Akron, Ohio 44308

Contact Information:

For more information, contact Noelle Buso at 330.543.8050

Children's Hospital of Michigan

4632 Genesys Pkwy
Grand Blanc, Michigan 48439

Contact Information:

For more information, contact Physical Medicine and Rehab at 810.606.7181 

Children's Hospital of Virginia Commonwealth University

1000 E Broad St
Richmond, Virginia 23298

Additional Information:

*This site is for pediatric patients only.* 

Contact Information:

For more information, contact Suzanne Spivey, BSN, RN at 804.628.5804

Children's Hospital of Wisconsin

900 W Wisconsin Ave.
Milwaukee, Wisconsin 53226

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Gretchen Heckel, RN at 414.266.3464 and follow prompts #3 and #7. 

Children's Mercy Kansas City

The Adele Hall Campus
2401 Gillham Road
Kansas City, Missouri 64108

Additional Information:

This site is for pediatric patients, up to 22 years of age. 

Contact Information:

For more information, contact Diane Kennedy, RN, PhD at 816.302.3970, dkennedy@cmh.edu

Children's of Alabama

1600 7th Avenue South
Birmingham, Alabama 35233

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Shelly Coskery, MSN, CPNP, at 205.638.2007.

Children’s Health

1935 Medical District Dr
Dallas, Texas 75235

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Dianira Salinas at 214.456.0063, spinraza@childrens.com.

Children’s Healthcare of Atlanta

1001 Johnson Ferry Road
Atlanta, Georgia 30324

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Gina Dobrasz, RN, at 404.785.7651.

Children’s Hospital Colorado

13123 E. 16th Avenue, B285
Aurora, Colorado 80045

Additional Information:

This site is for pediatric patients only. 

Contact Information:

For more information, contact Julie Parsons, MD, at 720.777.8723, julie.parsons@childrenscolorado.org, or Alison Ballard, CPNP, at 720.777.8723, alison.ballard@childrenscolorado.org.

Children’s Hospital of Philadelphia

3401 Civic Center Blvd
Philadelphia, Pennsylvania 19104

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jordan Land at 215.590.4719, neuromuscular@email.chop.edu.

Children’s Hospital of the King’s Daughters

601 Children’s Lane
Norfolk, Virginia 23507

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Julie Williams, LPN, at 757.668.9979 or 757.668.9920

Children’s Mercy Kansas City

The Adele Hall Campus
2401 Gillham Rd
Kansas City, Missouri 64108

Additional Information:

This site is for pediatric patients, up to 21 years of age.

Contact Information:

For more information, contact Diane Kennedy, RN, PhD at 816.302.3970.

Children’s National Health System

111 Michigan Avenue, NW
Washington, District of Columbia 20010

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Kathleen Smart at 202.476.6193, ksmart@childrensnational.org

CHOC Children's Neuroscience Center

1201 W La Veta Ave
Orange, California 92868

Additional Information:

Up to 21 years old.

Contact Information:

For more information, contact Emily Cornett, RN, BSN, at 714.509.4833, ecornett@choc.org

Cleveland Clinic Foundation

9500 Euclid Avenue, S Building
Cleveland, Ohio 44195

Additional Information:

This site is for both pediatric and adult patients without a trach.

Contact Information:

For more information, contact Margaret Zabukovec, RN at 216.444.6772

Clinical Neurosciences Center – University of Utah

175 N Medical Dr
Salt Lake City, Utah 84113

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Keely Kirby, RN, at keely.kirby@hsc.utah.edu, or Melonie Bird, RN at, melonie.bird@hsc.utah.edu

Columbia University Neuromuscular Center and Spinal Muscular Atrophy Research Center

Harkness Pavillion
180 Fort Washington Ave
New York, New York 10032

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact kidsmda@columbia.edu

Community Regional Medical Center

University of California San Francisco at Fresno
2335 E Kashian Lane, Ste. 301
Fresno, California 93701

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact H. Terry Hutchison, MD, PhD at 559.264.9100 or 559.260.2148, thutchison@fresno.ucsf.edu 

Comprehensive Neurology Clinic PA

4330 W Broward Blvd
Ste G
Plantation , Florida 33317

Contact Information:

For more information, contact David Ross at 954.224.4589

Connecticut Children’s Medical Center, Neuromuscular Program

505 Farmington Ave
Farmington, Connecticut 06032

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Nanci Stolgitis, RN, at 860.837.7519, nstolgitis@connecticutchildrens.org

Cook Children's Medical Center

1500 Cooper Street
Fort Worth, Texas 76104

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Marcie Baldwin, RN, CPNP at 682.885.2500, neuro@cookchildrens.org attention Marcie Baldwin

Cystic Fibrosis, Pulmonary and Sleep Center at Joe DiMaggio Children's Hospital

1131 N 35th Ave, Ste 330
Hollywood, Florida 33021

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Yoelina Caraballo at 954-265-6333, ycaraballo@mhs.net 

Dayton Children's Hospital

1 Children's Plaza
Dayton , Ohio 45404

Contact Information:

For more information, contact Neurology Department Reception at 937.641.3699 

DENT Neurologic Institute

3980 Sheridan Drive, Ste. 200
Amherst, New York 14226

Additional Information:

This site is for patients 14 and older only.

Contact Information:

For more information, contact Katie Ross, Clinic Manager at 716.250.2000, kross@dentinstitute.com 

Doernbecher Children's Hospital - Oregon Health & Science

3181 SW Sam Jackson Parkway
Portland, Oregon 97239

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Erika Finanger, MD, or Amy Monroe, RN, Pediatric Neurology at 503.494.5856

Duke University

2301 Erwin Road
Durham, North Carolina 27705

Contact Information:

For more information, contact Pamela Green, RN at 919.613.6832, pamela.bowengreen@duke.edu

Erlanger Medical Center, UT Erlanger Neurology

979 East Third St
Ste C0830
Chattanooga, Tennessee 37403

Contact Information:

For more information, contact Monica Bailey at 423.778.9001

Fort Bend Neurology

2655 Cordes Dr
Ste 110
Sugar Land, Texas 77479

Contact Information:

For more information, contact Marie Rangel at 281.980.2525 

Gillette Children’s Specialty Healthcare

200 University Ave East
St. Paul, Minnesota 55101

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Kory Wolter at KoryDSWolter@gillettechildrens.com

Golisano Children's Hospital of SW FL

Pediatric Neurology
9981 Healthpark Circle
Fort Myers, Florida 33908

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Pediatric Neurology at 239.343.6050; new consults for SMA should ask to be scheduled with Dr. Natalie Gillson.

Goryeb Children’s Hospital/Atlantic Health System

Department of Pediatric Neurology
100 Madison Ave
Morristown, New Jersey 07960

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jahannaz Dastgir, DO, at jahannaz.dastgir@atlantichealth.org or Rashida Alston at 973.971.5700

Hackensack University Medical Center

30 Prospect Ave
Hackensack, New Jersey 07601

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Rose Bucci or Karen Munoz at 551.996.3200.

Helen DeVos Pediatric Neurology Clinic

35 Michigan St NE, Ste. 3003
Grand Rapids, Michigan 49534

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Steven DeRoos, MD, or Jena Kruger, MD, at 616.267.2500

Houston Methodist Hospital

6565 Fannin St
Houston, Texas 77030

Contact Information:

For more information, contact Neuromuscular Clinic Reception at 713.363.7310

IU Health Pediatric Care

355 W 16th St
Indianapolis , Indiana 46202

Contact Information:

For more information, contact Neurology Scheduling at 317.963.0555

IV Infusion Treatment Center

831 Coral Ridge Dr
Coral Springs, Florida 33071

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Jamie Zernicke, RN, at 904.953.7104 

Jack Hughston Memorial Hospital

4401 Riverchase Dr.
Phenix City , Alabama 36867

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Justin Hanna at 334.732.3055, jhanna@jhmhospital.com

Jackson Memorial Hospital

1611 NW 12th Ave
Miami , Florida 33136

Contact Information:

For more information, contact Gabriela Turner at 305.243.6732 opt 0 

Johns Hopkins Hospital

200 N Wolfe St. Ste. 2158
Baltimore, Maryland 21287

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Brynne Willis at 410.955.4259 ext. 1, bwillis5@jhmi.edu

Katy Pain & Spine

1332 Pin Oak Road
Katy, Texas 77494

Additional Information:

Please note this site is unable to proceed with Medicare primary insurance at this time.

*This site is for adult patients only.* 

Contact Information:

For more information, contact Lourdes Roiz at kps@accessmso.com

Las Vegas Clinic

351 N. Buffalo Dr. Ste. B
Las Vegas, Nevada 89145

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Kaitlyn McKenna, CRC, at 702.505.4230, mckenna.k@lasvegasclinic.org

Loma Linda University Medical Center

11223 Campus St
Loma Linda, California 92354

Additional Information:

*This site is for both pediatric and adult patients.*

Contact Information:

For more information, contact David Michelson at 909.835.1810, dmichels@llu.edu

Lucile Packard Children’s Hospital

730 Welch Road
Palo Alto, California 97304

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, email StanfordSpinraza@stanfordhealthcare.org

Maria Fareri Children's Hospital

Westchester Medical Center
100 Woods Rd
Valhalla, New York 10595

Contact Information:

For more information, contact Christine Alicea at 914.493.7000

Mayo Clinic

4500 San Pablo Rd
Jacksonville, Florida 32224

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Jamie Zernicke, RN, at 904.953.7104 

Mayo Clinic – Pediatric Children’s Center Appointment Office (Pediatric Neurology)

200 First St SW
Rochester, Minnesota 55905

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Melissa Waletzki at 507.284.9974

MDA Affliated Program at Randall Children's Hospital

501 N Graham Street, Ste. 320
Portland, Oregon 97227

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Mariam Ischander at 503.413.2050, mischand@lhs.org 

MDA Clinic at Rutgers

University Hospital B261
150 Bergen St.
Newark, New Jersey 07103

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Grace Sia at 973.972.2850, siagr@njms.rutgers.edu

Memorial Healthcare

826 W King St
Owosso, Michigan 48867

Contact Information:

For more information, contact the Institute for Neurosciences and MS at 989.723.1390 Ext. 3 

Memorial Neuroscience Institute

1150 N 35th Ave, Ste. 590
Hollywood, Florida 33021

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Dee LoProto at 954.265.9500, dloproto@mhs.net

MHealth Clinics and Surgery Center

909 Fulton Street SE
Minneapolis, Minnesota 55455

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Angela Weldon, RN, at 612.676.4167, or 612.626.6688 and choose option 3. 

MHealth Discovery Clinic

2512 S 7th Street, 3rd Floor
Minneapolis, Minnesota 55454

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Angela Weldon, RN, at 612.676.4167, or 612.365.6777

Michigan Institute for Neurological Disorders (MIND)

28595 Orchard Lake Road; Suite 200
Farmington Hills, Michigan 48334

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Sonda Rossman or Brittany Lask at 248.553.6220

Milton S. Hershey Medical Center

500 University Dr.
Hershey, Pennsylvania 17033

Additional Information:

*This site is for pediatric patients only.* 

Contact Information:

Dr. Ashutosh Kumar is the prescribing physician at this site. For more information, contact Jennifer Coolbeth at 717.531.2908

Morton Plant Hospital

300 Pinellas St
Clearwater, Florida 33756

Contact Information:

For more information, contact the office manager at 813.855.2900

MS & Neuromuscular Center of Excellence

3190 McMullen Booth Road, Ste. 202
Clearwater, Florida 33761

Additional Information:

This site is for adult patients, 18 and older, only.

Contact Information:

For more information, contact Terry Schneider at 813.855.2900, terry@msandneuro.com 

Nationwide Children’s Hospital

700 Children’s Dr
Columbus, Ohio 43205

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Samiah A. Al-Zaidy, MD, at 614.722.2203, samiah.al-zaidy@nationwidechildrens.org

Nemours Children’s Hospital

13535 Nemours Parkway
Orlando, Florida 32827

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Kelly Wydronkowski at 407.567.3464, kw0019@nemours.org 

Nemours/duPont Hospital for Children

1600 Rockland Rd
Wilmington, Delaware 19808

Additional Information:

*This site is for pediatric patients only.* 

Contact Information:

For more information, contact Jennifer Hultberg at 302.651.5959, Jennifer.hultberg@nemours.org

Neurological Services of Orlando PA

3849 Oakwater Circle
Orlando, Florida 32806

Contact Information:

For more information, contact Latoya Zanders at 407.240.1762

Neurology Specialist of Jupiter

601 University Blvd
Ste 102
Jupiter , Florida 33607

Contact Information:

For more information, contact Appointments or Reception at 561.627.3381

North Shore University Neuroscience Institute

611 Northern Blvd. Ste. 150
Great Neck, New York 11021

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jillian Faber or Meghan McDonald at 516.325.7056

Northwestern Medicine Neurology

675 North Saint Clair Street, Ste. 20-100
Chicago, Illinois 60611

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact the neurology clinic at 312.695.7950 

NYU Winthrop Pediatric Specialty Center

120 Mineola Blvd
Mineola, New York 11501

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Denise Nalini at 516.663.3832 or dnalini@nyuwinthrop.org 

Ochsner Hospital for Children

1315 Jefferson Hwy
New Orleans , Louisiana 70121

Additional Information:

*For pediatric patients who establish care at this site.*

Contact Information:

For more information, contact Lamar Davis at lamar.davis@ochsner.org

Oregon Health & Science University

Center for Health & Healing
3303 SW Bond Avenue
Portland, Oregon 97239

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Chafic Karam, MD, at 503.494.7772, karam@ohsu.edu

Pediatric Neurologists of Palm Beach

12959 Palms West Dr
Ste 120
Loxahatchee, Florida 33470

Contact Information:

For more information, contact 561.753.8888, staff@liuneuro.com

Phoenix Children's Hospital

1919 E. Thomas Rd.
Phoenix, Arizona 85016

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Nancy B. Quay, MS, RN, at 602.933.0446, nquay@phoenixchildrens.com 

Phoenix Neurological Associates

5090 N 40th St, Ste 250
Phoenix, Arizona 85018

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Courtney Molina at 602.258.3354, info@phoenixneurology.com

Prevea Allouez Health Center

1821 S. Webster Ave
Green Bay, Wisconsin 54301

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Lisa Beth, RN, at 920.272.1270

Primary Children’s Outpatient Services

81 Mario Capecchi Dr
Salt Lake City, Utah 84113

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact James Rogers, RN, at 801.213.7759, james.rogers@hsc.utah.edu 

Rady Children's Hospital

3020 Children's Way, MC 5009
San Diego, California 92123

Additional Information:

This site is for pediatric patients and up to 21 years of age only.

Contact Information:

For more information, contact Jerry Velasquez at 858.966.5819, ext. 8402

Rainbow Babies and Children's Hospital

University Hospitals of Cleveland
11100 Euclid Ave, MS 6090 RBC 591D
Cleveland, Ohio 44106

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information for pediatric patients, contact Nancy Bass at 216.844.3691, nancy.bass@uhhospitals.org
For more information for adult patients, contact Komal Sawlani at 216.844.3192, Komal.sawlani@uhhospitals.org

Riley Children’s Hospital

705 Riley Hospital Dr.
Indianapolis, Indiana 46202

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Kim Finke, RN, at 317.948.7450 

Rush University Medical Center

1725 W Harrison St
Suite 718
Chicago, Illinois 60612

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Elizabeth Berry-Kravis, MD, PhD at Elizabeth_berry-kravis@rush.edu, or Yasmin Roman at 312.942.4036.

Saint Thomas Rutherford Hospital

1800 Medical Center Pkwy
Murfreesboro, Tennessee 37129

Additional Information:

*This site is for both adult and pediatric patients.*

Contact Information:

For more information, contact Central Scheduling Fluoroscopy at 615.396.4282

Saint Thomas West Hospital

Premier Radiology
28 White Bridge Pike, Ste 111
Nashville , Tennessee 37205

Additional Information:

*This site is for adult patients only.*

Contact Information:

For more information, contact Brandace Wenske at 615.356.3999, ext. 1032

Salina Pediatric Care

Salina Pediatric Care
501 S Santa Fe Ave, Ste 100
Salina, Kansas 67401

Contact Information:

For more information, contact Neurology at 785.825.2273

Sanford Children's Neuromuscular Clinic - MDA

Sanford Children's Specialty Clinic
1600 W 22nd St
Sioux Falls, South Dakota 57117

Additional Information:

*This site is for pediatric patients up to age 21 only.*

Contact Information:

For more information, contact the Neurology Nurse line at 605.312.1000 or 800.850.0064

Seattle Children’s Hospital

4800 Sand Point Way NE
Seattle, Washington 98105

Additional Information:

This site is for patients in the region who are cared for at Seattle Children's only.

Contact Information:

For more information, contact Susan Apkon, MD, at 206.987.2114

South Shore Neurologic Associates

77 Medford Ave. (Route 112)
Patchogue, New York 11772

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Mark Gudesblatt, MD, at 631.758.1910 or 631.666.3939.

Spinal Muscular Atrophy Program, Boston Children's Hospital

300 Longwood Ave.
Boston, Massachusetts 02115

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Shani Barnett at 617-355-8235, shani.barnett@childrens.harvard.edu

St. Francis Pediatric Neurology Clinic

500 Hall St.
Monroe, Louisiana 71201

Additional Information:

This site is for primarily pediatric patients. Adults patients should contact the clinic directly.

Contact Information:

For more information, contact Aristoteles Pena, MD, by phone 318-966-7337, or by fax 318-966-7338, coral.pena-hansen@stfran.com 

St. Joseph Hospital

3001 W Doctor MLK Jr Blvd
Tampa, Florida 33607

Contact Information:

For more information, contact Sarah Shannon at 813.972.2250 ext 7553, sshannon@shrinenet.org

Stanford Health Care

213 Quarry Road
Palo Alto, California 94304

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, email StanfordSpinraza@stanfordhealthcare.org 

SUNY-Downstate Medical Center

450 Clarkson Avenue
Brooklyn, New York 11203

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Yaacov Anziska, MD at 718.270.2502 or yanzisk@downstate.edu

Sutter Pacific Medical Foundation, ALS Neuromuscular Forbes Norris Center

2324 Sacramento St
Ste 111
San Francisco, California 94115

Contact Information:

For more information, contact Robert Osbourne or Dallas Forshew at 415.600.3604, alscenter@sutterhealth.org

Temple University Lewis Katz School of Medicine

MDA Center of Hope
3401 N Broad St.
Philadelphia, Pennsylvania 19140

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Benedicta Leon at 215.707.8457, benedicta.leon@tuhs.temple.edu

The Children’s Hospital at Saint Peter’s University Hospital

254 Easton Ave
New Brunswick, New Jersey 08901

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact Adrienne Valdez, APN at 732.339.7870, avaldez@saintpetersuh.com.

The Children’s Hospital of San Antonio

333 N Santa Rosa St.
San Antonio, Texas 78207

Additional Information:

This site is for pediatric patients only. 

Contact Information:

For more information, contact Melissa Svoboda, MD at 210.704.4715

The Ohio State University Wexner Medical Center

1060 Carmack Road
Columbus, Ohio 43210

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Sarah Heintzman at sarah.heintzman@osumc.edu

The University of Chicago Medicine

5841 S. Maryland Ave, Room C391
Chicago, Illinois 60637

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact James Tonsgard at 773.702.6487, jtonsgar@peds.bsd.uchicago.edu 

The University of Texas Health Science Center at Houston Child and Adolescent Neurology Clinic

University Hospital, 5th Floor, Rio Tower
6410 Fannin, Ste 720
Houston, Texas 77030

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For information, contact Angie Evants at 832.325.7187, Meliza Guajardo at 832.325.7155, or Netsuhe Mengesha at 832.325.7330.

The University of Texas Health Science Center at San Antonio

University Hospital, 5th Floor, Rio Tower
4502 Medical Drive
San Antonio, Texas 78229

Additional Information:

This site is primarily for pediatric patients.

Contact Information:

For more information, contact Yasmin Wong, RN at 210.358.8984, or Sid W Atkinson, MD at atkinsons3@uthscsa.edu.

UC Health Physician's Office (Clifton)

222 Piedmont Avenue
Cincinnati, Ohio 45219

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Martha Freeman at 513.475.8730, martha.freeman@uchealth.com

UC Health Physician's Office (North)

7690 Discovery Cove
West Chester, Ohio 45069

Additional Information:

This site is for adult patients only.

Contact Information:

For more information, contact Martha Freeman at 513.475.8730, martha.freeman@uchealth.com

UCLA Medical Center

300 Medical Plaza, Ste. B-200
Los Angeles, California 90095

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Jenna Gewirtz, RN, at 310.405.9824, jgewirtz@mednet.ucla.edu

UCSF Benioff Children’s Hospital

1825 4th Street
San Francisco, California 94158

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Raquel Guillen at 855.PBC.UCSF (855.722.8273), raquel.guillen@ucsf.edu

UF Health at University of Florida

2000 SW Archer Rd
Gainsville, Florida 32610

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Jessica Kurtzo at 352.294.5000, jkur0001@shands.ufl.edu.

University of Chicago Medicine - Adult Neuromuscular Center

5841 S. Maryland Ave DCAM 4-G
Chicago, Illinois 60637

Contact Information:

For more information, contact Alex Carmona or Betty Soliven, MD at 773.702.1782, alex.carmona@uchospitals.edu 

University of Iowa Hospitals and Clinics, and Stead Family Children's Hospital

200 Hawkins Drive
Iowa City, Iowa 52242

Additional Information:

*This site is for both adult and pediatric patients who receive care within this healthcare system.* 

Contact Information:

For more information, contact Christina Trout, RN, MSN at 319.353.6200

University of Miami School of Medicine

1150 NW 14 St, Ste. 609
Miami, Florida 33136

Additional Information:

This site is for pediatric patients only.

Contact Information:

Registration: 305.243.3100 (patient must be registered before an appointment can be scheduled)

Office: 305.243.6732, option 0

University of Missouri Neurology Clinic - Neuromuscular Division

1020 Hitt Street
Columbia, Missouri 65212

Contact Information:

For more information, contact Dawn Nunez at 573.882.1515 or Raghav Govindarajan, MD at govindarajanr@health.missouri.edu

University of Pennsylvania

3400 Civic Center Blvd
Philadelphia, Pennsylvania 19104

Additional Information:

This site is for pediatric and adult patients.

Contact Information:

For more information, contact Jen Negron at jennifer.negron@uphs.upenn.edu (preferred), 215.829.6708

University of Rochester

Strong Memorial Hospital
601 Elmwood Avenue
Rochester, New York 14642

Additional Information:

This site is for both pediatic and adult patients.

Contact Information:

For more information, contact Emma Ciafaloni, MD, at 585.275.2559, fax: 585.273.1255, emma_ciafaloni@urmc.rochester.edu

University of Virginia Children's Hospital

1204 W Main St
Charlottesville, Virginia 22908

Contact Information:

For more information, contact Alison Sturgill, PNP at 434.924.8184

UPMC Blair Medical Associates

1414 9th Ave
Altoona, Pennsylvania 16602

Additional Information:

This site is for adult patients, 18 and older, only.

Contact Information:

For more information, contact Samantha Fitzsimmons, NCMA at 814.946.7560, fitzsimmonss2@upmc.edu 

USC Healthcare Center

Keck Medical Center of USC - Neuromuscular Division
1520 San Pablo St, Ste 3000
Los Angeles, California 90033

Contact Information:

For more information, contact Jaime Wilkes at 800.872.2273 

Valley Children's Hospital

9300 Valley Children's Hospital
Madera, California 93636

Contact Information:

For more information, contact the Neurology Clinic at 559.353.6215

Vanderbilt Children's Hospital

2200 Children's Way
Nashville, Tennessee 37232

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact W. Bryan Burnette, MD at 615.936.5536 

Washington University, St. Louis Children’s Hospital

One Children’s Place
St. Louis, Missouri 63110

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, fax medical records to 314.362.3752. For questions, contact Pat Foerstel at foerstelp@wustl.edu

William Beaumont Hospital/Pediatric Neurology Department

3555 W 13 Mile Rd
Royal Oak, Michigan 48073

Additional Information:

This site is for both pediatric and adult patients.

Contact Information:

For more information, contact Summer Swanwick, BSN, RN, CNRN at 248.551.7370

Yale New Haven Children's Hospital MDA Clinic

1 Long Wharf Drive, 2nd Floor
New Haven, Connecticut 06510

Additional Information:

This site is for pediatric patients only.

Contact Information:

For more information, contact the MDA Clinic Coordinator at 203.688.4221, or 203.785.4081 to schedule an appointment. You can also email Cristian.ionita@yale.edu for more information.

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