Spinraza Administration Sites

Cure SMA does not endorse any particular site, treatment, or therapy. This information should be used in consultation with a qualified healthcare professional, who will help you make the decisions that are best for you and your family.

Before contacting a site which is not located in your state, we strongly encourage you to discuss options with both your personal healthcare professional and with your insurer. Out-of-state treatment can present significant challenges in both travel and insurance reimbursement.

Our goal at Cure SMA is to build this list to a few hundred active centers across the US, including multiple locations in each state, to meet the expected needs of our whole community. We have to work together to greatly increase the number of sites involved in both delivering this first-ever new SMA therapy and providing SMA care. This process will take time, and there should be the expectation of delays in gaining access to Spinraza while this process takes place.

This list is continually updated as we confirm more sites that are administering or preparing to adminster Spinraza. If your local site is not listed here, please email us, or ask the site coordinator to email us, at patientcare@curesma.org. Site managers must give their permission to have the site listed here.

Sites

Alabama

Jack Houston Memorial Hospital
4401 Riverchase Dr.
Phenix City, AL 36867
For more information, contact Justin Hanna at 334.732.3055, jhanna@jhmhospital.com

Arizona

Center for Neurology and Spine
18700 N. 64th Dr, #206
Glendale, AZ 85308

13640 N. 99th Ave, Ste. 100
Sun City, AZ 86032

3815 E. Bell Rd, Ste. 2400
Phoenix, AZ 85032
For more information, contact Jamie Glass, Office Manager, at 602.482.2116 ext. 105, jross@centerforneurologyandspine.com

Children’s Clinics
2600 N Wyatt Drive
Tucson, AZ 85712
For more information, contact Diane Starits, RN, at 520.324.5437, info@childrensclinics.org

Phoenix Children’s Hospital
1919 E. Thomas Rd.
Phoenix, AZ 85016
For more information, contact Nancy B. Quay, MS, RN, at 602.933.0446, nquay@phoenixchildrens.com
*This site is for pediatric patients only.*

Phoenix Neurological Associates
5090 N 40th St, Ste 250
Phoenix, AZ 85018
For more information, contact Courtney Molina at 602.258.3354, info@phoenixneurology.com

California

Lucile Packard Children’s Hospital
730 Welch Road
Palo Alto, CA 97304
For more information, email StanfordSpinraza@stanfordhealthcare.org.
*This site is for pediatric patients only.*

Stanford Health Care
213 Quarry Road
Palo Alto, CA 94304
For more information, email StanfordSpinraza@stanfordhealthcare.org.
*This site is for adult patients only.*

UCLA Medical Center
300 Medical Plaza, Ste. B-200
Los Angeles, CA 90095
For more information, contact Jenna Gewirtz, RN, at 310.405.9824, jgewirtz@mednet.ucla.edu

UCSF Benioff Children’s Hospital
1825 4th Street
San Francisco, CA 94158
For more information, contact Raquel Guillen at 855.PBC.UCSF (855.722.8273), raquel.guillen@ucsf.edu

Colorado

Children’s Hospital Colorado
13123 E. 16th Avenue, B285
Aurora, CO 80045
For more information, contact Julie Parsons, MD, at 720.778.8723, julie.parsons@childrenscolorado.org, or Alison Ballard, CPNP, at 720.778.8723, alison.ballard@childrenscolorado.org

Connecticut

Connecticut Children’s Medical Center, Neuromuscular Program
505 Farmington Ave
Farmington, CT 06032
For more information, contact Nanci Stolgitis, RN, at 860.837.7519, nstolgitis@connecticutchildrens.org
*This site is for pediatric patients only.* 

District of Columbia

Children’s National Health System
111 Michigan Avenue, NW
Washington, DC 20010
For more information, contact Kathleen Smart at 202.476.6193, ksmart@childrensnational.org.
*This site is for pediatric patients only.* 

Florida

Cystic Fibrosis, Pulmonary and Sleep Center at Joe DiMaggio Children's Hospital
1131 N 35th Ave, Ste 330
Hollywood, FL 33021
For more information, contact Yoelina Caraballo at 954-265-6333, ycaraballo@mhs.net
*This site is currently for pediatric patients only*

Nemours Children’s Hospital
13535 Nemours Parkway
Orlando, FL 32827
For more information, contact Kelly Wydronkowski at 407.567.3464, kw0019@nemours.org 
*This site is for pediatric patients only.* 

Georgia

Children’s Healthcare of Atlanta
1605 Chantilly Drive NE
Atlanta, GA 30324
For more information, contact Diane Pelzek, RN, at 404.785.4595

Illinois

Ann & Robert H Lurie Children’s Hospital of Chicago
225 E. Chicago Avenue Box 51
Chicago, IL 60611
For more information, contact Cynthia Budek, APN-NP, at 312.227.3550, cbudek@luriechildrens.org

Indiana

Riley Children’s Hospital
705 Riley Hospital Dr.
Indianapolis, IN 46202
For more information, contact Kim Finke, RN, at 317.948.7450
*This site is for pediatric patients only.*

Kentucky

Child Neurology
University of Louisville/MDA Louisville

601 S Floyd St, Ste 500
Louisville, KY 40202
For more information, contact Ieisha Wimsatt or Arpita Lakhotia, MD, at 502.588.3658, ieisha.wimsatt@ulp.org

Louisiana

St. Francis Pediatric Neurology Clinic
500 Hall St.
Monroe, LA 71201
For more information, contact Aristoteles Pena, MD, by phone 318-966-7337, or by fax 318-966-7338, coral.pena-hansen@stfran.com
*This site is for primarily pediatric patients. Adult patients should contact the clinic directly.*

Maryland

Johns Hopkins Hospital
200 N Wolfe St. Ste. 2158
Baltimore, MD 21287
For more information, contact Brynne Willis at 410.955.4259 ext. 1, bwillis5@jhmi.edu

Massachusetts

Spinal Muscular Atrophy Program, Boston Children's Hospital
300 Longwood Ave.,
Boston, MA, 02115
For more information, contact Shani Barnett at 617-355-8235, shani.barnett@childrens.harvard.edu

Michigan

Helen DeVos Pediatric Neurology Clinic
35 Michigan St NE, Ste. 3003
Grand Rapids, MI 49534
For more information, contact Steven DeRoos, MD, or Jena Kruger, MD, at 616.267.2500

Michigan Institute for Neurological Disorders (MIND)
28595 Orchard Lake Road; Suite 200
Farmington Hills, MI 48334
For more information, contact Sonda Rossman or Brittany Lask at 248.553.6220

Minnesota

Gillette Children’s Specialty Healthcare
200 University Ave East
St. Paul, MN 55101
For more information, contact Kory Wolter at KoryDSWolter@gillettechildrens.com

Mayo Clinic – Pediatric Children’s Center Appointment Office (Pediatric Neurology)
200 First St SW
Rochester, MN 55905
For more information, contact Melissa Waletzki at 507.284.9974

MHealth Clinics and Surgery Center
909 Fulton Street SE
Minneapolis, MN 55455
For more information, contact Angela Weldon, RN, at 612.676.4167, or 612.626.6688 and choose option 3. 
*This site is for adult patients only.*

MHealth Discovery Clinic
2512 S 7th Street, 3rd Floor
Minneapolis, MN 55454
For more information, contact Angela Weldon, RN, at 612.676.4167, or 612.365.6777
*This site is for pediatric patients only.*

Missouri

Washington University
St. Louis Children’s Hospital

One Children’s Place
St. Louis, MO 63110
For more information, fax medical records to 314.362.3752. For questions, contact Pat Foerstel at foerstelp@wustl.edu

Nevada

Las Vegas Clinic
351 N. Buffalo Dr. Ste. B
Las Vegas, NV 89145
For more information, contact Kaitlyn McKenna, CRC, at 702.505.4230, mckenna.k@lasvegasclinic.org

New Jersey

Goryeb Children’s Hospital/Atlantic Health System
Department of Pediatric Neurology

100 Madison Ave
Morristown, NJ 07960
For more information, contact Jahannaz Dastgir, DO, at jahannaz.dastgir@atlantichealth.org or Rashida Alston at 973.971.5700

MDA Clinic at Rutgers – University Hospital B261
150 Bergen Street
Newark, NJ 07103
For more information, contact Grace Sia at 973.972.2850, siagr@njms.rutgers.edu

New York

Columbia University Neuromuscular Center and Spinal Muscular Atrophy Research Center
Harkness Pavillion
180 Fort Washington Ave
New York, NY 10032
For more information, contact kidsmda@columbia.edu

MDA Care Affiliate Center at Stony Brook Childrens
4 Technology Drive
East Setauket NY 11733
For more information, contact Karen Souza, Nurse Coordinator, at 631.444.KIDS (631.444.5437). Must have a consultation with the center first. Intakes are the 2nd Thursday of every month.
*This site is for pediatric patients only.*

North Shore University Neuroscience Institute
611 Northern Blvd. Ste. 150
Great Neck, NY 11021
For more information, contact Bartina Seraphin at 516.325.7056

South Shore Neurologic Associates
77 Medford Ave. (Route 112)
Patchogue, New York 11772
For more information, contact Mark Gudesblatt, MD, at 631.758.1910 or 631.666.3939.

SUNY-Downstate Medical Center
450 Clarkson Avenue
Brooklyn, NY 11203
For more information, contact Yaacov Anziska, MD at 718.270.2502 or yanzisk@downstate.edu

University of Rochester
Strong Memorial Hospital

601 Elmwood Avenue
Rochester, NY 14642
For more information, contact Emma Ciafaloni, MD, at 585.275.2559, fax: 585.273.1255, emma_ciafaloni@urmc.rochester.edu

Ohio

Nationwide Children’s Hospital
700 Children’s Dr
Columbus, OH 43205
For more information, contact Samiah A. Al-Zaidy, MD, at 614.722.2203, samiah.al-zaidy@nationwidechildrens.org

The Ohio State University Wexner Medical Center
1060 Carmack Road
Columbus, OH 43210
For more information, contact Louisa Mezache at louisa.mezache@osumc.edu

Oregon

Doernbecher Children's Hospital - Oregon Health & Science
3181 SW Sam Jackson Parkway
Portland, OR 97239
For more information, contact Erika Finanger, MD, or Amy Monroe, RN, Pediatric Neurology at 503.494.5856

Oregon Health & Science University
Center for Health & Healing

3303 SW Bond Avenue
Portland, OR 97239
For more information, contact Chafic Karam, MD, at 503.494.7772, karam@ohsu.edu

Pennsylvania

Children’s Hospital of Philadelphia
3401 Civic Center Blvd
Philadelphia, PA 19104
For more information, contact Joanne Brown at 215.590.4719, neuromuscular@email.chop.edu

University of Pennsylvania
3400 Civic Center Blvd
Philadelphia, PA 19104
For more information, contact Jen Negron at jennifer.negron@uphs.upenn.edu (preferred), 215.829.6708

Tennessee

Child Neurology Services
2100 W. Clinch Ave, Ste. 210
Knoxville, TN 37916
For more information, contact Cindy Helton at 865.523.5437

Texas

Blue Bird Circle Clinic for Neurology
6701 Fannin Street, CC 940.25
Houston, TX 77030
For more information, contact Trina Hastings, RN at 832.822.5046 or Diane Murrell, LCSW at 832.822.1058
*This site is for pediatric patients only.*

Katy Pain & Spine
1332 Pin Oak Road
Katy, TX 77494
For more information, contact Michael Herrell at 713.714.7192 ext. 220, mherrel@accessmso.com
*This site is for adult patients only.*

The Children’s Hospital of San Antonio
333 N Santa Rosa St.
San Antonio, TX 78207
For more information, contact Melissa Svoboda, MD at 210.704.4715

The University of Texas Health Science Center at Houston Child and Adolescent Neurology Clinic
6410 Fannin, Ste 720
Houston, TX 77030
For information, contact Angie Evants at 832.325.7187, Meliza Guajardo at 832.325.7155, or Natsuhe Mengesha at 832.325.7330.

The University of Texas Health Science Center at San Antonio
University Hospital, 5th Floor
Rio Tower
4502 Medical Drive
San Antonio, TX 78229
For more information, contact Yasmin Wong, RN at 210.358.8984, or Sid W Atkinson, MD at atkinsons3@uthscsa.edu.
*This site is for primarily pediatric patients.*

Utah

Clinical Neurosciences Center – University of Utah
175 N Medical Dr
Salt Lake City, UT 84132
For more information, contact Keely Kirby, RN, at keely.kirby@hsc.utah.edu, or Melonie Bird, RN at, melonie.bird@hsc.utah.edu

Primary Children’s Outpatient Services
81 Mario Capecchi Dr
Salt Lake City, UT 84113
For more information, contact James Rogers, RN, at 801.213.7759, james.rogers@hsc.utah.edu
*This site is for pediatric patients only.*

Virginia

Children’s Hospital of the King’s Daughters
601 Children’s Lane
Norfolk, VA 23507
For more information, contact Julie Williams, LPN, at 575.668.9920

Washington

Seattle Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
For more information, contact Susan Apkon, MD, at 206.987.2114.
*This site is for patients in the region who are cared for at Seattle Children's only.* 

Wisconsin

Prevea Allouez Health Center
1821 S. Webster Ave
Green Bay, WI 54301
For more information, contact Lisa Beth, RN, at 920.272.1270

Information Regarding Spinraza Administration

Administering Spinraza is a complex medical procedure that involves families, patients, hospitals, insurers, and the medical professionals who will administer the drug and provide both short- and long-term monitoring after patients receive the drug. Because of this, sites may take weeks or months to become fully operational. Please be patient as sites are moving as quickly as possible provide to Spinraza, while keeping the safety and health of all patients at the forefront of their considerations.

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