Current Educational Programs
PT Survey on Behalf of Northwestern University
Dear physical therapist:
Northwestern University is conducting a survey on physical therapy interventions for those with spinal muscular atrophy (SMA). We are inviting you, as a pediatric physical therapist, to take part in a survey examining current physical therapy practice trends and facilitators and barriers to physical therapy care for those with SMA and how current practice supports recommended standards of care. You may also feel free to share this link with other physical therapists who may also be treating those with SMA. This study has been approved by the Northwestern University Institutional Review Board (STU00208232). Please direct any questions or concerns to or Jessica Trenkle, PT, DPT or Kristin Krosschell PT, DPT.
Link to survey:
Jessica Brugman, SPT
Annie Peterson, SPT
Katherine Roback, SPT
Kristin Krosschell, PT, DPT, PCS
Jessica Trenkle, PT, DPT, PCS
Therapist Mentoring Program
The purposes of the Cure SMA Therapist Mentoring Program are to:
- Provide information, experiences and resources for physical and occupational therapists that are new to SMA or seeking additional experience to improve the quality of care delivered
- Increase access to therapists who can perform motor function evaluations
Funding is provided for Mentee or Mentor travel.
SMA Therapist Mentor
Role: The SMA physical and occupational therapist mentor will serve as a resource for therapists that are new to the SMA population or seeking additional experience. The interactions will include a face to face meeting, site visit, phone and email contact.
SMA Therapist Mentee
Role: The SMA physical or occupational therapist mentee will be paired with a therapist mentor who will serve as a resource for information about the therapy care for the SMA population. The interactions will include a face to face meeting, site visit, phone and email contact. Mentees should be dedicated to the field of physical therapy care, and have the intention of continuing in the field of SMA for at least 2 years after program completion.
A program facilitator will be assigned to each matched mentor/mentee pair to help with the program administration and to answer questions.
- Initial Interaction/Pre Site Visit
- Site Visit
- Post Site Visit
The contract must be maintained for at least three months post visit to discuss follow-up questions and additional information.
For more detailed information, refer to the program overview.
Join the Program
Interested mentors should complete the Therapist Mentor Survey.
Interested mentees should complete the Therapist Mentee Survey.
Resources for the Program
These manuals and proformas are shared with permission from the International SMA Consortium which includes the PNCRN, Italian SMA Network and SMA Reach UK.