Current Educational Programs

PT Survey on Behalf of Northwestern University

Dear physical therapist:

Northwestern University is conducting a survey on physical therapy interventions for those with spinal muscular atrophy (SMA). We are inviting you, as a pediatric physical therapist, to take part in a survey examining current physical therapy practice trends and facilitators and barriers to physical therapy care for those with SMA and how current practice supports recommended standards of care. You may also feel free to share this link with other physical therapists who may also be treating those with SMA. This study has been approved by the Northwestern University Institutional Review Board (STU00208232). Please direct any questions or concerns to or Jessica Trenkle, PT, DPT or Kristin Krosschell PT, DPT.

Link to survey:

https://is.gd/PT_for_SMA

Sincerely,
Jessica Brugman, SPT
Annie Peterson, SPT
Katherine Roback, SPT
Kristin Krosschell, PT, DPT, PCS
Jessica Trenkle, PT, DPT, PCS

Therapist Mentoring Program

Description

Purpose

The purposes of the Cure SMA Therapist Mentoring Program are to:

  • Provide information, experiences and resources for physical and occupational therapists that are new to SMA or seeking additional experience to improve the quality of care delivered
  • Increase access to therapists who can perform motor function evaluations

Funding is provided for Mentee or Mentor travel. 

SMA Therapist Mentor

Role: The SMA physical and occupational therapist mentor will serve as a resource for therapists that are new to the SMA population or seeking additional experience. The interactions will include a face to face meeting, site visit, phone and email contact. 

SMA Therapist Mentee

Role: The SMA physical or occupational therapist mentee will be paired with a therapist mentor who will serve as a resource for information about the therapy care for the SMA population. The interactions will include a face to face meeting, site visit, phone and email contact. Mentees should be dedicated to the field of physical therapy care, and have the intention of continuing in the field of SMA for at least 2 years after program completion.

Program Format

A program facilitator will be assigned to each matched mentor/mentee pair to help with the program administration and to answer questions. 

  • Initial Interaction/Pre Site Visit
  • Site Visit
  • Post Site Visit

The contract must be maintained for at least three months post visit to discuss follow-up questions and additional information. 

For more detailed information, refer to the program overview.

Join the Program

Interested mentors should complete the Therapist Mentor Survey

Interested mentees should complete the Therapist Mentee Survey

Resources for the Program

These manuals and proformas are shared with permission from the International SMA Consortium which includes the PNCRN, Italian SMA Network and SMA Reach UK. 

Consensus Statement for Standard of Care in Spinal Muscular Atrophy 

Family Guide to Consensus Statement for Standard of Care in Spinal Muscular Atrophy 

Cure SMA's Care Series Booklet: Musculoskeletal System 

Children's Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND)

Expanded Hammersmith Functional Motor Scale (HFMSE)

Revised Upper Limb Module (RULM) Manual 

Revised Upper Limb Module (RULM) Proforma 

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