Clinical Care Meeting

We are pleased to announce the inaugural Cure SMA Clinical Care Meeting, to be held on Saturday, June 16, 2018 from 1pm to 6pm at the Hilton Anatole Hotel in Dallas, TX.

Register for the 2018 Clinical Care Meeting 

Our meeting goals:

  1. Provide an opportunity for SMA health care providers across disciplines to share knowledge
  2. Facilitate collaborative discussions between health care providers to achieve improved care for SMA
  3. Foster clinical care research collaboration across care centers
  4. Promote interactions between new clinicians and leaders in clinical care
  5. Build the SMA clinical care community
  6. Promote conversations between families and patients living with SMA, clinicians, researchers and industry partners

Target Audience:

Health Care Providers who diagnose and care for people affected by Spinal Muscular Atrophy, including physicians, nurse practitioners, physician assistants and nurses, pediatric and adult specialists including neurologists, pulmonologists, rehabilitation medicine, orthopedic surgery, palliative care, physical and occupational therapists, speech and language pathologists, nutritionists, social workers, respiratory therapists and trainees in the above disciplines.

Please note we are not able to offer CME/CE this year.

Agenda & Updates

View the Full Agenda for the 2018 Clinical Care Meeting 

Topic Areas:

Innovations in Clinical Care

In the current climate of rapidly changing health care reimbursement and increasingly limited resources, how are you delivering care better, more creatively, or more efficiently? How have you adapted care to address patient needs in ways that are not widely known or used or are revitalized? What new approaches are you working on? What lessons have you learned?

Impact of New Therapies on Clinical Care

The approval of the first treatment for SMA in December 2016, and the phase 3 clinical trials for other therapies have significantly changed the disease course of SMA. How has your care changed? What new strategies are you employing? What new new outcome measures have you identified?


Submit a Presentation Abstract

Abstract submissions for the 2018 Clinical Care Meeting are now closed. Thank you to those who submitted an abstract. 

Apply for a Scholarship to attend Clinical Care Meeting

We are no longer accepting scholarship applications at this time. Thank you for your interest in the Clinical Care Meeting. 

The 2018 SMA Clinical Care Meeting will be held June 16, 2018, from 1 pm to 6 pm at the Hilton Anatole Hotel in Dallas, TX. We hope to see you there!

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