Cure SMA’s 2019 Commitments to the Community
Dear Friends,Welcome to 2019! The start of the new year is a fantastic opportunity for us to share the exciting things we have planned for the new year. Here are a few things ...
Uniting the SMA Community Through Local Programs and Support
After her son William's SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website and said to look for support within the ...
Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome 20 new members to our Medical Advisory Council (MAC). These clinicians represent eleven specialties, including specialties that were not previously represented on the MAC.Our new members are: Alison ...
Cure SMA Welcomes Aboard New Board and Committee Members
Recently, Cure SMA confirmed three new board members and one new committee member. These new members will provide additional leadership in the areas of advocacy, FDA/regulation, and research. We extend a warm welcome ...
Cure SMA Welcomes New Board and Committee Members
Recently, Cure SMA confirmed three new board members and several new committee members. These new members will provide additional leadership in the areas of advocacy, FDA/regulation, and research. We extend a warm welcome ...
Cure SMA Welcomes the Virginia Chapter
Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC.Led by chairpersons Jessica White (family support), Jim Ferry (fundraising), and ...
Cure SMA Funds 26 Research Projects in 2014
Our strategic research approach includes four areas—basic research, drug discovery, clinical trials, and clinical care—working together toward our vision of a world without SMA. Cure SMA has invested $57 million in research since ...
SMA Drug Pipeline Continues to Grow
This is an exciting time for the entire SMA community, as we celebrate another year of increasing momentum toward our goal of a treatment and cure for SMA.It’s also an exciting time for ...
Applications for the Cure SMA Medical Advisory Board Due 10/1/14
Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, and collaborative leadership ...
Funding Process Reaches Next Steps for Spinal Muscular Atrophy Clinical Care Research
At the end of last week, we announced the close of our for request for proposals (RFP) for clinical care research.A clinical care RFP is an invitation for scientists to submit their best ...
Cure SMA Announces New Research Funding
Cure SMA is proud to announce that we will be committing $1.8 million to new research funding over the next 12 months.Fifteen years ago, we had just one potential drug in the beginning ...
Welcome to Cure SMA
We are excited to announce that Families of SMA is now Cure SMA. In addition to this name change, we’ll also be making a number of other improvements to the way we communicate, ...