Cure SMA’s research newsletter, Compass, is published 2-4 times a year and offers the latest in research, clinical care, and clinical trial news and updates.
Compass
View and download issues of Compass below.
Topics: Phase IV of Cure SMA Industry Collaboration; review of Topic Group goals and achievements
Topics: newborn screening update, newborn screening registry, Cure SMA Care Center Network
Topics: guidance and management of COVID-19 and SMA
Topic: Pediatric Neuromuscular Clinical Research Network
Topics: basic research grants, interviews with grantees
Topics: Cure SMA Care Center Network, SMA Clinical Data Registry
Topics: basic research grants and interviews with grantees
Topics: basic research grant funding,updated SMA drug pipeline
Topics: Cure SMA Care Center Network, SMA Clinical Data Registry
Topics: basic research grants, interviews with grantees
Topics: Cure SMA’s newborn screening efforts (federal/state)
Topics: community survey, data improves research, care/coverage
Topics: SMA Industry Collaboration, Patient Focused Drug Development meeting with FDA
Topics: basic research grants, new research funding
Topics: drug discovery grant awards, updated SMA drug pipeline, new research funding
Topics: basic research grant awards, clinical care grant awards
Topics: SMA Researcher Meeting, session summaries
Topics: drug discovery grant awards, updated SMA drug pipeline
Topics: basic research grant awards, newly funded projects
Topics: Researcher Meeting, CME conference, current research
Topics: clinical care research grant awards, newly funded projects, CME conference
Topics: basic research grant awards, newly funded projects
Topics: ins-and-outs of Antisense Drugs, Cure SMA antisense drug grants, Isis update
Topics: SMA Research Meeting, ongoing drug programs
Topics: updated SMA drug pipeline, Cytokenetics grant, Dr. Lee Rubin drug discovery grant
Topics: Dr. Peter Schultz drug discovery grant, updated SMA drug pipeline, drug development process, small molecules
Topics: Dr. Brian Kaspar drug discovery grant, CNS-delivered gene therapy, basics of gene therapy approach
Topics: basic research grant awards, newly funded projects
Topics: basic research grant awards, newly funded grants, SMA research meeting
Topics: updated SMA drug pipeline, meet the TAC, Isis update, Dr. Brian Kaspar drug discovery grant
Topics: Quinazoline program update, Paratek update, high purity motor neurons
Topics: CARNI-VAL trial results, VPA for SMA
Topics: basic research grant awards, newly funded projects, basic research program goals
Topics: clinical trials introduction, clinical trials update
Topics: SMA Research Meeting, Quinazoline program update
Topics: first novel clinical candidate for SMA, Paratek update
Topics: basic research grant awards, description of newly funded projects
Topics: CARNI-VAL trial update, clinical trial process
Topics: SMA Research Meeting, ongoing program updates
Topics: basic research grant awards, discoveries on the role of SMN, possible drug targets