Search Results: Living with SMA issues

Community Update Survey Q&A

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Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas […]

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Community Spotlight: Kristen Smith

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The SMA community has been lobbying state and federal government for years. Kristen Smith shares how she became involved with advocacy. Kristen Smith describes herself […]

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2018 Research Year-in-Review

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Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be […]

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Fall 2018 Issue of Compass Now Available

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The fall 2018 issue of Compass is now available online. This issue of Compass covers the SMA Care Center Network and its goal of developing an […]

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Sweet Baby Zane Funds New Equipment Pool Item

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Cure SMA is excited to announce that 12 new Panthera pediatric lightweight wheelchairs have been purchased thanks to generous funding from Sweet Baby Zane. These […]

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Community Spotlight: The Nelson Family

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Mary was 4 months old when her parents, Ryan and Kate Nelson, suspected something wasn’t quite right with their daughter; she wasn’t bearing weight on […]

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Summer 2018 Issue of Compass Now Available

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The summer 2018 issue of Compass is now available online. As part of our most recent round of funding, we’ve announced ten grants totaling $1,325,000 […]

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Fall 2017 Issue of Compass Now Available

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The fall 2017 issue of Compass is now available online. This issue covers Phase II of the SMA Industry Collaboration, as well as highlights and […]

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Anthem Updates Insurance Policy for Spinraza

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Anthem Inc. recently announced an updated insurance policy for the use of Spinraza (nusinersen) for treatment of spinal muscular atrophy. The revised policy expands criteria […]

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Jadon’s Hope Foundation Donates 10 New Tomato Feeder Seats

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Cure SMA recently received a donation of 10 special tomato feeder seats from Jadon’s Hope Foundation. These were immediately sent out to families who were […]

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