There are approximately 12,000 people in the U.S. who have SMA, yet we are part of a greater community—the rare disease community—that comprises of more than 300 million people worldwide. But we don’t believe that being “rare” has anything to do with having SMA.
This February, Cure SMA wants to redefine what it means to be “rare,” culminating with Rare Disease Day on Sunday, February 28. We are celebrating the different perspectives, interests, personalities, cultures, and more that make up the SMA community.
Thanks to the tremendous progress we have seen in research, treatment, and care for individuals with SMA and their families, our community is more energized than ever. Together, we can create an even stronger voice for the SMA community—one that is made up of 12,000 unique individuals and proud of our past, present, and future.