Virtual Community Engagement Events

Cure SMA invites you to join the Adults with SMA Virtual Book Club, sponsored by Biogen. Adults with SMA ages 18 and over can register today to receive the selected book, Disability Visibility, edited by Alice Wong, and then participate in two book club group discussions via Zoom.

These Adults with SMA Virtual Evening Social, are 90-minute video calls offering an opportunity for adults with SMA to gather online in friendly setting. Through Zoom breakout rooms, attendees will be able to network, catch up with old friends, and meet new adults with SMA in the community! Socials are only for adults with SMA over the age of 18 years.

Adults with SMA, ages 18 and older, are invited to gather for Cure SMA’s Adults with SMA Virtual Morning Socials, sponsored by Genentech. Refill your coffee or orange juice and swing by for a 30-minute Zoom chat to start your day off right!

The Adults with SMA Virtual Therapy Program, sponsored by Genentech and the Dhont Family Foundation, is available to adults with SMA ages 18 and over within the US, to make virtual therapy more accessible during these uncertain times. Fill out our request form to receive a complementary 30-minute live video sessions with a licensed therapist (up to 3 sessions maximum).

Get your game face on for the Adults with SMA Virtual Trivia Night, sponsored by Biogen. Adults with SMA 18 years and older, are invited to test their intellect in an entertaining evening of random knowledge. Teams will be created on Zoom to collaborate and compete for three rounds of trivia questions.

The Career Panel Webinar Series, sponsored by Biogen, comprises of 1-hour events in which adults with SMA will share their career journeys and advice. These webinars are open to everyone in the SMA community; We encourage parents to invite your children to join in to learn about potential future careers! Viewers are encouraged to engage with questions ahead of time and live.

The Physical Therapy Webinar Series, sponsored by Biogen and The Luke 18:1 Foundation, are 1-hour webinars lead by physical therapists who are experienced in providing care for both adults and children with SMA. These webinars will share information for exercises at home, and attendees will receive a free therapy item upon registration.

Kids and teens are invited to socialize online with old and new friends on Zoom through the Virtual Kids & Teens Talk it Out program, a Summit of Strength Series! Virtual Kids Talk it Out sessions will be specifically for kids living with SMA ages 7 – 12 years old, and the Virtual Teens Talk it Out sessions will be specifically for teens living with SMA ages 13 – 17 years old.