Spinal Muscular Atrophy is the leading genetic cause of death for infants. However you are impacted, we have information for you.
News Feed
Novartis Issues Community Statement with Update on AVXS-101 Intrathecal Clinical Development Program
Dear SMA Community, We recently received important feedback from the U.S. Food and Drug Administration (FDA) following their review of data from ...
Team Biogen Runs Over 22,000 Miles During SMA Awareness Month
Team Biogen hit the ground running throughout the month of August in honor of SMA Awareness Month. Together, ...
Biogen Q3 2020 Community Statement: COVID-19 Updates and Latest Milestones
Dear Members of the SMA Community, We continue to work with the healthcare community to help people and families living with SMA ...
Community Spotlight
Community Spotlight: Braedon’s Newborn Screening Diagnosis
September is Newborn Screening Awareness Month, a chance to talk about the progress we have made in getting spinal muscular atrophy ...
Community Spotlight: Nicole Stickane Advocates for Newborn Screening in Texas
In late July, the Texas Newborn Screening Advisory Committee held a meeting— virtually, of course —to hear an update on the ...
Community Spotlight: Avery’s Diagnosis from Newborn Screening
July 2020 marks the 2-year anniversary of when the U.S. Secretary of Health and Human Services recommended that SMA be added ...
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Local, evidenced-based care centers, designed to develop an evidence-based standard of care to improve the lives of all those affected by SMA.