Spinal muscular atrophy (SMA) is the leading genetic cause of death for infants. However you are impacted, we have information and resources to support your needs.
News Feed
Community Statement: Quarterly Update from Novartis Gene Therapies
Dear Members of the SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make ...
Cure SMA-Funded Researchers at Columbia University Publish Paper on Fatigue in SMA
Dr. Jacqueline Montes and colleagues at Columbia University—part of the Pediatric Neuromuscular Clinical Research Network (PNCRN) funded by Cure SMA—have published a ...
Community Statement from Novartis Gene Therapies
Dear SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make a difference in ...
Community Spotlight
Community Spotlight: Elizabeth Lockwood
In honor of National Volunteer Month in April, Cure SMA has shared stories and quotes from volunteers who support our programs ...
Community Spotlight: Nick Farrell
In honor of National Volunteer Month in April, Cure SMA is sharing stories and quotes from volunteers who support our programs ...
Community Spotlight: I am…Viola Dwyer
February 28 is Rare Disease Day. Throughout the month—in recognition of our Redefining Rare initiative—we have been posting stories about SMA ...
Cure SMA is committed to local support.
Find resources or a treatment site in your area.
Since 1984, we’ve invested $82 million in the research that has made today’s breakthroughs possible. We advance a comprehensive research program, attacking SMA from all sides.
The Cure SMA Care Center Network
Local, evidenced-based care centers, designed to develop an evidence-based standard of care to improve the lives of all those affected by SMA.
