About Cure SMA

Our Mission and Vision

Cure SMA leads the way to a world where everyone impacted by spinal muscular atrophy (SMA) is empowered to lead independent, successful, and fulfilling lives. We strive to create a community where every individual is heard and feels welcomed. Cure SMA provides practical support programs for our community and advocates for their needs. We fund and direct comprehensive research that drives breakthroughs in treatment, and we advance access to high quality care. We will not stop until we have a cure.

Our Commitment to Diversity, Equity, and Inclusion

Cure SMA works to create, nurture, and sustain an inclusive culture, where differences in life experiences and perspectives are embraced, and provides the foundation for new knowledge sharing and education that drives innovative solutions to meet and exceed the needs of our Cure SMA community and team members.

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Our Values



Our commitment to a cure is not just about seeking solutions—it’s also about creating them. We’re working with some of today’s sharpest minds to advance a diversity of approaches and champion the most promising discoveries and methods.



As relentlessly as we pursue a cure, we are also strategic. We know the fastest way to improve the future for people with SMA is to take a comprehensive, unbiased approach to research and maintain a balance of optimism and realism.



Our community is everything to us. We would not have made it this far without the invaluable contributions of our researchers, doctors, individuals with SMA, and their families. Together, we are—and always will be—stronger than SMA.



There is no “right way” to live with a disease like SMA. Every person’s experience is different, and it’s every person’s right to decide what SMA means for them.



Thanks to the Cure SMA community, no person is ever alone in facing this disease. We offer unconditional support to people with SMA and communicate openly and honestly, giving people clear and accurate information.



Our work is not done until we have a cure, and we’ll remain strong in our fight no matter what challenges come our way.

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