The Annual SMA Conference is an invaluable resource for the entire SMA community and is an opportunity to strengthen the connections among individuals with SMA, their families, as well as researchers and healthcare providers.

Our Annual SMA Conference is the largest spinal muscular atrophy (SMA) conference in the world. Through the conference, we bring together researchers, healthcare professionals, individuals with SMA, and their families to network, learn, and collaborate. Cure SMA has been hosting the Annual SMA Conference since 1988, and it has become a weekend filled with a wide variety of activities, including:

  • Educational workshops.
  • Keynote sessions with leading researchers and clinicians.
  • Family-friendly poster session.
  • Memorable children’s program.
  • Meet and greet with a family fun fest.
  • Teens and adults with SMA social activities.
  • PJ party and movie night.
  • Dance party.

Annual SMA Conference Booklets

read 2021 conference overview

2022 Annual SMA Conference



The 2022 Annual SMA Conference dates have been officially announced! This year, we will gather from Thursday, June 16 to Sunday, June 19, 2022, at the Disneyland Hotel in Anaheim, CA. If the unexpected circumstances surrounding the pandemic have shown us anything, it is how impactful this one week of the year is for individuals, families, researchers, and medical professionals in the SMA community. We cannot wait to welcome you back and hope to see you there!

To view details and register for the 2022 Annual SMA Conference view the Annual SMA Conference Website. If you have any questions, please email [email protected].

If you are planning to attend the SMA Research & Clinical Care Meeting registration will launch in the coming weeks. If you have any questions, please contact [email protected].

Our 2022 Sponsors

The Annual SMA Conference does not happen without a tremendous amount of support, most notably from our generous sponsors. Contact Vice President of Development, Erin Oganesian, at [email protected] or (847) 264-1188 with questions and for more information on sponsorship opportunities.

Our 2022 Exhibitors

Are you interested in being an exhibitor for the 2022 Annual SMA Conference? Contact Anna Parker at [email protected] for information.

Select Recent Annual SMA Conference Presentations

Please note: These presentations were shared as part of Cure SMA’s Annual SMA Conferences. In some cases, content for the seminar was created and presented by a third party, and therefore this third party is responsible for obtaining and maintaining all copyright permissions. Cure SMA is not liable for content presented without proper permissions. Where possible, pictures that did not have consent to be posted on the Cure SMA website have been removed from the presentations.