Annual SMA Conference
The Annual SMA Conference is an invaluable resource for the entire spinal muscular atrophy (SMA) community and is an opportunity to strengthen the connections among individuals with SMA, their families, and researchers and healthcare providers.
2023 Annual SMA Conference
The 2023 Annual SMA Conference dates have been officially announced! This year, we will gather from Thursday, June 29 to Sunday, July 2, 2023, at Disney’s Yacht & Beach Club Resort in Orlando, FL. This is the largest conference in the world for those affected by SMA and those involved in providing support and care for SMA patients. We look forward to reuniting as a community and hope to see you there!
To learn more, visit the Annual SMA Conference website for full details, an agenda, FAQ’s, etc. If you have any questions, please email [email protected].
Annual SMA Research & Clinical Care Meeting registration is open now! Researchers and clinicians are invited to register. If you have any questions, please contact [email protected].
Cure SMA offers scholarships for individuals and families who wish to attend the Annual SMA Conference.
The Adults with SMA Scholarship program offers a scholarship to every adult with SMA and their personal care assistant. The scholarship will cover registration fees, a travel stipend and one hotel room for three nights at the specified conference hotel.
The First Time Attendee Scholarship program is a scholarship that covers any individual with SMA who has never attended the Annual SMA Conference previously, and up to four immediate family members. The scholarship covers registration fees for those attendees, as well as one hotel for three nights at the specified conference hotel. Thank you to the support from the Luke 18:1 Foundation for sponsorship of this scholarship!
For families who are not newly diagnosed, we offer general, needs-based scholarships as well. Attendees can reach out to Cure SMA to receive information on any of these scholarship opportunities.
Questions about the Annual SMA Conference?
Email [email protected] or call (800) 886-1762.
Our 2023 Sponsors
The Annual SMA Conference could not happen without our dedicated sponsors. Please contact [email protected] with questions and for more information on sponsorship opportunities.
Presenting Sponsor
Diamond Sponsor
Title Sponsor
Supporting Sponsors
- Dhont Family Foundation
- Jacob Isaac Rappoport Foundation
- Luke 18:1
- Biohaven Pharmaceuticals
Platinum Sponsors
Gold Sponsor
Silver Sponsor
Our Exhibitors
Please contact Alicia Metzger at [email protected] or (800) 886-1762 x6340 with questions and for more information on exhibitor opportunities.
Learn More About the Annual SMA Conference
Our Annual SMA Conference is the largest spinal muscular atrophy (SMA) conference in the world. Through the conference, we bring together researchers, healthcare professionals, individuals with SMA, and their families to network, learn, and collaborate. Cure SMA has been hosting the Annual SMA Conference since 1988, and it has become a weekend filled with a wide variety of activities, including:
- Educational workshops
- Keynote sessions with leading researchers and clinicians
- Family-friendly poster session
- Memorable children’s program
- Meet and greet with a family fun fest
- Teens and adults with SMA social activities
- PJ party and movie night
- Dance party
