Annual SMA Conference

The Annual SMA Conference is an invaluable resource for the entire spinal muscular atrophy (SMA) community and is an opportunity to strengthen the connections among individuals with SMA, their families, and researchers and healthcare providers.

2024 Annual SMA Conference

The 2024 Annual SMA Conference dates have been officially announced! We will gather from Thursday, June 6 to Sunday, June 9, 2024, at the JW Marriott Austin in Austin, Texas. This is the largest conference in the world for those affected by SMA and those involved in providing support and care for SMA patients. We look forward to reuniting as a community and hope to see you there!

Registration will open in early fall; If you have any questions in the meantime, please contact [email protected].

If you have any questions regarding the Annual SMA Research & Clinical Care Meeting which is held for SMA researchers and clinicians, please contact [email protected].

2022.06.18 - SMA Castle Group Photo

Frequently Asked Questions

We're looking forward to seeing our SMA community at the 2024 Annual SMA Conference in Austin, Texas! Check back here for FAQs regarding scholarships, registration, travel info, and more.

Cure SMA offers scholarships for individuals and families who wish to attend the Annual SMA Conference.

The Adults with SMA Scholarship program offers a scholarship to every adult with SMA and their personal care assistant. The scholarship will cover registration fees, a travel stipend and one hotel room for three nights at the specified conference hotel.

The First Time Attendee Scholarship program is a scholarship that covers any individual with SMA who has never attended the Annual SMA Conference previously, and up to four immediate family members. The scholarship covers registration fees for those attendees, as well as one hotel for three nights at the specified conference hotel. Thank you to the support from the Luke 18:1 Foundation for sponsorship of this scholarship!

For families who are not newly diagnosed, we offer general, needs-based scholarships as well. Attendees can reach out to Cure SMA to receive information on any of these scholarship opportunities.

Questions about the Annual SMA Conference?

Email [email protected] or call (800) 886-1762.

Our 2023 Sponsors

The Annual SMA Conference could not happen without our dedicated sponsors. Please contact [email protected] with questions and for more information on sponsorship opportunities.

Presenting Sponsor

Diamond Sponsor

Title Sponsor

Supporting Sponsors

Platinum Sponsors

Gold Sponsor

Silver Sponsor


Our 2023 Exhibitors

Please contact Alicia Metzger at [email protected] or (800) 886-1762 x6340 with questions and for more information on exhibitor opportunities.

Presenting Exhibitors: Genentech (A Member of the Roche Group) + Biogen Diamond Exhibitor: Novartis Title Exhibitor: Scholar Rock Purple Exhibitors biohaven + permobil foundation Orange Exhibitors: accredo + marsi-bionics + millennium respiratory services + mobility works + Neotech + Partners in Medicine + Prompt Care Respiratory + United Access + wheel the world + Orlando Health Neuroscience Institute + Granted Engineering + Nemours Children's Health

Learn More About the Annual SMA Conference

Our Annual SMA Conference is the largest spinal muscular atrophy (SMA) conference in the world. Through the conference, we bring together researchers, healthcare professionals, individuals with SMA, and their families to network, learn, and collaborate. Cure SMA has been hosting the Annual SMA Conference since 1988, and it has become a weekend filled with a wide variety of activities, including:

  • Educational workshops
  • Keynote sessions with leading researchers and clinicians
  • Family-friendly poster session
  • Memorable children’s program
  • Meet and greet with a family fun fest
  • Teens and adults with SMA social activities
  • PJ party and movie night
  • Dance party
Scroll to Top