The Annual SMA Conference is an invaluable resource for the entire SMA community and is an opportunity to strengthen the connections among individuals with SMA, their families, as well as researchers and healthcare providers.

Our Annual SMA Conference is the largest spinal muscular atrophy (SMA) conference in the world. Through the conference, we bring together researchers, healthcare professionals, individuals with SMA, and their families to network, learn, and collaborate. Cure SMA has been hosting the Annual SMA Conference since 1988, and it has become a weekend filled with a wide variety of activities, including:

  • Educational workshops.
  • Keynote sessions with leading researchers and clinicians.
  • Family-friendly poster session.
  • Memorable children’s program.
  • Meet and greet with a family fun fest.
  • Teens and adults with SMA social activities.
  • PJ party and movie night.
  • Dance party.
read 2021 conference overview

2021 Virtual SMA Conference

Given the state of the pandemic and COVID-19 vaccination roll-out at the time, Cure SMA held its Annual SMA Conference virtually again in 2021—June 7-11, 2021. With the unwavering support of the SMA community, we remain committed to our mission and to serving our community through the sharing of research and care updates, as well as education around advocacy and support for people with SMA.

read 2021 conference overview

2022 Annual SMA Conference

The 2022 Annual SMA Conference dates have been officially announced! Next year, we will gather from Thursday, June 16 to Sunday, June 19, 2022, at the Disneyland Hotel in Anaheim, CA. If the unexpected circumstances surrounding the pandemic have shown us anything, it is how impactful this one week of the year is for individuals, families, researchers, and medical professionals in the SMA community. We cannot wait to welcome you back and hope to see you there!

More details about the 2022 Annual SMA Conference and SMA Research & Clinical Care Meeting will be announced in the upcoming months, and registration will launch in the fall of 2021. If you have any questions, please contact [email protected].

Our 2021 Sponsors

The Annual SMA Conference does not happen without a tremendous amount of support, most notably from our generous sponsors. Contact Vice President of Development, Erin Oganesian, at [email protected] or (847) 264-1188 with questions and for more information on sponsorship opportunities.

Our 2021 Exhibitors

The 2021 Annual SMA Conference has gone virtual due to the ongoing pandemic. Are you interested in being a virtual exhibitor? Contact Erin Oganesian at [email protected] or call (847) 264-1188 for information.



  • Adaptive Imports
  • Control Bionics
  • Labsystems Diagnostics
  • Partners in Medicine, LLC
  • Triumph Mobility

Select Recent Annual SMA Conference Presentations

Please note: These presentations were shared as part of Cure SMA’s Annual SMA Conferences. In some cases, content for the seminar was created and presented by a third party, and therefore this third party is responsible for obtaining and maintaining all copyright permissions. Cure SMA is not liable for content presented without proper permissions. Where possible, pictures that did not have consent to be posted on the Cure SMA website have been removed from the presentations.