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Cure SMA Announces Additional $750,000 in Basic Research Funding

June 8, 2024
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At the Annual SMA Research and Clinical Care Meeting, Cure SMA highlighted six new basic research grants totalling $750,000. Cure SMA also announced another $750,000 will be awarded for additional […]

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Five-Year Data for Genentech’s Evrysdi Show the Majority of Treated Children With a Severe Form of SMA Achieved or Maintained the Ability to Sit, Stand or Walk

June 7, 2024
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Summary of Data Presented After 5 years of treatment, 91% of children were alive – without treatment, children with Type 1 SMA would not be expected to live past 2 […]

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Fall 2024 Walk-n-Roll Registration is Open

May 31, 2024
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Cure SMA’s Fall 2024 Walk-n-Roll events are open! By participating in our Walk-n-Roll, you can make a real difference in the lives of those affected by SMA.   What is Walk-n-Roll […]

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Spinal Muscular Atrophy (SMA) Update in Best Practices: Recommendations for Diagnosis Considerations

May 31, 2024
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Cure SMA is pleased to announce the publication of the first in a series of new resources to support the care of individuals living with Spinal Muscular Atrophy (SMA). As […]

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Novartis Gene Therapies Releases Spring SMA Community Letter

May 24, 2024
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Novartis Gene Therapies recently released an update to the SMA community related to clinical trials and long term follow up studies of Zolgensma, in addition to recent publications. Read the […]

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What is Spinal Muscular Atrophy

May 21, 2024
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Table of Contents What is SMA How Common is SMA Types of SMA Causes of SMA Carrier Testing Symptoms of SMA Diagnosis SMA Newborn Screening Treatment for SMA Outlook / […]

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