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Cure SMA Publishes Update on the Birth Prevalence of Spinal Muscular Atrophy (SMA)

July 23, 2024
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Cure SMA is pleased to announce the publication of “Newborn Screening and Birth Prevalence for Spinal Muscular Atrophy in the US” in JAMA Pediatrics on July 15, 2024. This paper […]

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Special Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting

July 15, 2024
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Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care Meeting. This Special Session is […]

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Congressional Action Recognizes Unmet Needs of SMA Community

July 12, 2024
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This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of Health (NIH) to support new […]

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SMA Highlights: Updates from Biogen

July 12, 2024
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On July 12, 2024, Biogen shared highlights and updates from the 2024 Annual SMA Conference, including their collaboration with Delta Flight Products and their sponsorship of the Self-Expression Art Exhibit […]

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Clinical Research and Drug Development Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting

July 11, 2024
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During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & Clinical Care Meeting. Their common […]

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Spring 2024 Issue of Compass Now Available

June 26, 2024
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The Spring 2024 issue of Compass is now available online.   This year, we are proud to announce six new research grants, totaling $750,000, to further our mission to drive […]

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