Readiness Evaluations for Research Sites and Clinical Evaluators
Cure SMA has created companion assessments that help research teams and clinical evaluators determine their preparedness for SMA clinical trials. Participating sites and clinical evaluators each complete a written questionnaire and meet virtually with Cure SMA regarding steps to optimize their site readiness. The programs are geared toward—but not limited to—prospective and new trial sites. To learn more, please complete this “Learn More and Download Toolkits” form.
Resources for Research Teams
To enhance site readiness and support trial conduct in SMA, Cure SMA has created a series of resources for research teams, in addition to identifying resources from other organizations that may be helpful to principal investigators (PIs), physical therapists/clinical evaluators (PTs/CEs), and clinical research coordinators (CRCs).
Workshops and Webinars
In conjunction with its Annual SMA Conference, Cure SMA holds workshops for CRCs and PTs/CEs. These events focus specifically on the roles, responsibilities, and interests of their target audiences. To attend the workshops, individuals must register for the Annual International SMA Research & Clinical Care Meeting. Attendance is included with the cost of registration for the SMA Research & Clinical Care Meeting.
Cure SMA also organizes webinars, which are recorded and made available on this webpage. See below for available recordings.
Cure SMA has launched a new scholarship program to support the professional development of PIs, PTs, and CRCs involved in SMA clinical trials. This program is being launched with the support of the SMA Industry Collaboration and supports participation in virtual and in-person professional development activities relevant to the conduct of SMA clinical trials. Award amounts vary, and applications will be accepted on a rolling basis, as funds remain available.
Get In Touch and Request More Information
We welcome feedback on this program, as well as ideas for activities and topics to address. To receive information about future events and share your ideas, please email us at [email protected] or complete our “Learn More and Download Toolkits” form.
If you use our toolkits, we welcome feedback via the links below. Your input allows Cure SMA to optimize future versions to best meet your needs.
» Provide Feedback on the Trial Readiness Toolkit
» Provide Feedback on the Clinical Research Coordinator Toolkit
» Provide Feedback on the Physical Therapist and Clinical Evaluators Toolkit