The Annual International SMA Research & Clinical Care Meeting is the largest of its kind in the world focused on SMA and offering insightful discussion around new research and clinical care practices.

The Annual International SMA Research & Clinical Care Meeting brings together researchers from academia, government, and biotech/pharmaceutical companies with multi-disciplinary healthcare providers who are diagnosing and caring for people with spinal muscular atrophy (SMA). The event is held in conjunction with Cure SMA’s Annual SMA Conference.

Goals for SMA Research & Clinical Care Meeting

  • Create open communication of early, unpublished scientific data, accelerating the pace of research.
  • Foster collaborations, including cross-disciplinary knowledge sharing, integration of researchers and drug companies, and dialogue among new and leading clinicians.
  • Facilitate collaborative discussions between new and leading clinicians to achieve improved care for SMA.
  • Promote conversations between SMA community and clinicians, researchers, and industry partners.
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2022 Annual SMA Research & Clinical Care Meeting

The 2022 Annual SMA Research & Clinical Care Meeting will be held in Anaheim, California at Disney’s Grand Californian Hotel from Wednesday, June 15 – Friday, June 17, 2022. Bringing together researchers from academia, government, and biotech/pharmaceutical companies with multi-disciplinary healthcare providers who are diagnosing and caring for people with spinal muscular atrophy (SMA), the Annual Research & Clinical Care Meeting is the largest meeting dedicated to SMA research and care. We look forward to reuniting the community at this year’s 26th annual meeting to learn about the latest advances in research, treatments, and care.

As always, the Annual SMA Conference and Research & Clinical Care Meeting run in parallel with each other. Through these meetings, we bring together researchers, healthcare professionals, and families to network, learn, and collaborate. Please note that if you wish to attend any portion of The Annual SMA Conference for those affected by SMA, you must select the Family Conference add-on when registering.

Learn more about the 2022 Research & Clinical Care Meeting


REGISTER FOR 2022 MEETING


Read an OVERVIEW OF 2021 MEETING




The Clinical Care Session of the 2022 Annual Cure SMA Research and Clinical Care Meeting Accreditation:

Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the University of Wisconsin–Madison Interprofessional Continuing Education Partnership (ICEP) and Cure SMA. The University of Wisconsin–Madison ICEP is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Occupational therapy, physical therapy, and dietetic credit: Determination of credit is pending.
Genetic Counselors (NSGC) determination of credit is pending.

Submit a Presentation Abstract

Abstract submission for the 2022 Annual SMA Research & Clinical Care Meeting is now open. We ask that all abstract submissions for talks be on new and unpublished data. Talk selection will be based on the content of your abstract, so please give enough detail for your submission to be evaluated.

The deadline for abstract submission is on Friday, March 11, 2022. Notification of acceptance will occur on or before April 29, 2022.

Submit an Abstract

2022 Sponsors for Researcher Meeting

The Researcher Meeting could not happen without our dedicated sponsors. Please contact Vice President of Development, Erin Oganesian, at [email protected] or (847) 264-1188 with questions and for more information on sponsorship opportunities.

Presenting Sponsors

Visionary Sponsor

Platinum Sponsor

  • The Dhont Family Foundation

Gold Sponsors