Cure SMA shares stories of individuals with spinal muscular atrophy (SMA) and educates the public about SMA. We welcome outreach from publications, media organizations, and professionals seeking sources and expertise.

Media Contact

Journalists are invited to reach out to Jamie Gibson, Cheif Development Officer, at [email protected] with interest in securing interviews with SMA experts and members of the SMA community, obtaining SMA facts and figures, citing information published by Cure SMA, and general permissions.

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About SMA

Spinal muscular atrophy (SMA) is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking. Each year, thousands of infants in the U.S. and around the world are born with SMA. SMA also impacts children, teens, and adults from every background, race, and gender. Approximately one in 50 people, more than six million total, is a genetic carrier for SMA. There are several approved treatments for SMA, but we do not yet have a cure. 

About Cure SMA

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). Since 1984, Cure SMA has grown to be the largest U.S.-based network of individuals, families, clinicians, and research scientists working together to advance SMA research, support individuals and families impacted by SMA, and educate public and professional communities about SMA. Cure SMA funds and directs comprehensive research that drives breakthroughs in treatment, advances access to high-quality care, provides practical support programs, and advocates for the needs of the SMA community. Learn more at

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