With publications like our Care Series Booklets, along with other helpful resource booklets, Cure SMA is committed to providing the entire community with the information they need to make decisions about treatment and care.
Request Printed Care Series Booklets
Care Series Booklets
Understanding SMA
This booklet covers all the basics of SMA, including genetics, diagnosis, types of SMA, daily life with SMA, and much more. In addition to being available in English (below), this booklet has been translated into several additional languages (see right).
Genetics of SMA
This booklet helps navigate conversations about genes, proteins, and DNA related to SMA. It includes definitions, explanations, and diagrams.
Nutrition Basics
This booklet explores the nutrition principles for someone living with SMA, potential complications, feeding tubes, and more.
Community Support Services
This booklet outlines our resources and support programs, including ongoing national and local programs, ways to stay connected, and more.
Musculoskeletal System
This booklet is to help children, families, and other professionals (e.g., nurses, physicians, and therapists) understand how SMA can affect the body’s musculoskeletal system.
Breathing Basics
This booklet looks at all aspects of respiratory care for people with SMA, including respiratory care, common respiratory issues, and equipment for respiratory management.
Caring Choices
This booklet is focused on caring choices for people affected by SMA of all ages and stages. Topics covered include supportive care options, treatment options, care coordination and palliative care.
Caring for Emotional and Mental Health
Caring for Emotional and Mental Health
Living Unlimited: Newly Diagnosed
Living Unlimited: Newly Diagnosed
This booklet is for new members of the SMA community experiencing an SMA diagnosis for the first time and wondering how it will impact the life of their child and that of the family.
SMA Diagnosis from Newborn Screening
SMA Diagnosis from Newborn Screening
Considering Drug Combinations
Considering Drug Combinations
This booklet focuses on the complex topic of combining treatments and discusses important considerations when thinking about combination therapy as a option for treatment of SMA.
Health Insurance Roadmap
Health Insurance Roadmap
This booklet focuses on common insurance-related questions, guidance on talking to insurers about treatment, a glossary of terms, and more.
Learning About Clinical Trials
Learning About Clinical Trials
This booklet covers the clinical trial process, phases, accelerated approval and expanded access, choosing to participate, and more.