With publications like our Care Series Booklets, along with other helpful resource booklets, Cure SMA is committed to providing the entire community with the information they need to make decisions about treatment and care.

Request Printed Care Series Booklets

Healthcare Providers


Individuals & Families




Care Series Booklets

Understanding SMA

This booklet covers all the basics of SMA, including genetics, diagnosis, types of SMA, daily life with SMA, and much more. In addition to being available in English (below), this booklet has been translated into several additional languages (see right).

DOWNLOAD (ENGLISH)
بالعربية (Arabic)


用中文(表达 (Chinese)


en français (French)


auf Deutsch (german)


हिंदी में (hindi)


po polsku (polish)
Em português (Portuguese)


In Limba Romana (Romanian)


по-русски (Russian)


En español (spanish)


Türkçe olarak (Turkish)


Genetics of SMA

This booklet helps navigate conversations about genes, proteins, and DNA related to SMA. It includes definitions, explanations, and diagrams.

DOWNLOAD


En español (Spanish)
بالعربية (Arabic)


用中文(表达 (Chinese, Mandarin)


en français (French)


auf Deutsch (german)


हिंदी में (hindi)
po polsku (polish)


Em português (Portuguese)


In Limba Romana (Romanian)


по-русски (Russian)


Türkçe olarak (Turkish)

Nutrition Basics

This booklet explores the nutrition principles for someone living with SMA, potential complications, feeding tubes, and more.

DOWNLOAD


En español

Community Support Services

This booklet outlines our resources and support programs, including ongoing national and local programs, ways to stay connected, and more.

DOWNLOAD


En español

Musculoskeletal System

This booklet is to help children, families, and other professionals (e.g., nurses, physicians, and therapists) understand how SMA can affect the body’s musculoskeletal system.

DOWNLOAD

Breathing Basics

This booklet looks at all aspects of respiratory care for people with SMA, including respiratory care, common respiratory issues, and equipment for respiratory management.

DOWNLOAD

Caring Choices

This booklet is focused on caring choices for people affected by SMA of all ages and stages. Topics covered include supportive care options, treatment options, care coordination and palliative care.

DOWNLOAD

Caring for Emotional and Mental Health

This booklet outlines mental and emotional health considerations for those with SMA or those who care about someone who has SMA, as well as strategies for support and coping.
DOWNLOAD


En español

Living Unlimited: Newly Diagnosed

This booklet is for new members of the SMA community experiencing an SMA diagnosis for the first time and wondering how it will impact the life of their child and that of the family.

DOWNLOAD


En español

SMA Diagnosis from Newborn Screening

These booklets offer a foundation for understanding SMA if you are a parent, patient, or healthcare provider learning about SMA for the first time.
DOWNLOAD for families


Para familias en español


DOWNLOAD FOR health providers


Para médicos en español

Considering Drug Combinations

This booklet focuses on the complex topic of combining treatments and discusses important considerations when thinking about combination therapy as a option for treatment of SMA.

DOWNLOAD


En español

Health Insurance Roadmap

This booklet focuses on common insurance-related questions, guidance on talking to insurers about treatment, a glossary of terms, and more.

DOWNLOAD


En español

Learning About Clinical Trials

This booklet covers the clinical trial process, phases, accelerated approval and expanded access, choosing to participate, and more.

DOWNLOAD