Leadership
“Leadership is the capacity to translate vision into reality.”
–Warren Bennis
The following boards and councils provide leadership within and for key segments of our spinal muscular atrophy (SMA) community.
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Leadership Team
Operationalizes the Board’s strategic plan and delivers on the mission of the organization.
Kenneth Hobby
Marline Pagan, MBA
Mary Schroth, MD, FAAP, FCCP
Jesse Aynes
Mary Curry, ND
Maynard Friesz
Jackie Glascock, PhD
Colleen McCarthy O’Toole
Amy Thomasson
Board
Oversees the mission of the organization, focusing on high-level strategy, oversight, and accountability.
Nick Farrell
Gillian Mullins
Brad Nunemaker
Corey Braastad
Robert Graham, MD
Jaclyn Greenwood
Allyson Henkel
Kelly Jankowski
Edmund Lee
Rob Lockwood
Amy Medina
Mark Moore
Tom Murray
Spencer Perlman
Brian Snyder, MD
Peter Statile
Shannon Zerzan
Committee Members
Diana Castro, MD
Jay Chung
Bakri Elsheikh, MD
Marc Ginsky
Brianna Gross
Karen McRory-Negrin
Mark Moore
Kaleen Robinson
Joe Wiseman
Director Emeriti
Paula Barrett
Audrey Lewis
Adi Rappoport
Richard Rubenstein
Barbara Trainor
Sandy Wimsatt
Medical Advisory Council
Advises on the strategic direction of Cure SMA care programs targeted to improve healthcare quality and access to care.
Mary Schroth, MD, FAAP, FCCP
William Bell, BS Pharm, MBA, MSCC, RPh
John Brandsema, MD
Tom Crawford, MD
Becky Hurst Davis, MS, RD, CSP, CD, CNSC
Tina Duong, MPT, PhDc
Albert Freedman, PhD
Melissa Gibbons, MS, CGC
Jennifer Hubbell, OTR/L
Chamindra Konersman, MD
Richard Kravitz, MD
Kristin J. Krosschell, PT, DPT, MA, PCS
Oren Kupfer, MD
Khalida Liaquat, MS, LCGC
Leslie Nelson, PT, PhDc, OCS
Julie Parsons, MD
Samuel Rosenfeld, MD
Peter Schochet, MD
Perry Shieh, MD, PhD
Anne Stratton, MD
Stacey Tarrant, BS, RD, LDN
Jane Taylor, MD, MsCR
Fred Troutman, PhD, RN
Laura Watne, MS, RD, CSP
Scientific Advisory Board
Provides expert-level review and suggestions for basic research funding, abstract selection for the Cure SMA conference, and general scientific counsel.
Jackie Glascock, PhD
Elliot J. Androphy, MD
Arthur H. Burghes, PhD
Tom Crawford, MD
Katherine W. Klinger PhD
Stephen J. Kolb, MD, PhD
Adrian Krainer, PhD
Umrao Monani, PhD
Samuel Pfaff, PhD
Charlotte Sumner, MD
Translational Advisory Council
Provides expert-level review and suggestions for translational funding and general scientific/drug development counsel.
Christine Brideau, PhD
Arthur Burghes, PhD
Peter Hodder, PhD
Jim Inglese, PhD
Joseph W. Lewcock, PhD
Timothy Reilly, PhD
Jasbir Singh, PhD
Charlotte Sumner, MD
Michael Vellard, PhD
Chien-Ping Ko, PhD
Dione Kobayashi, PhD
Adults with SMA Advisory Council
Provides high-level guidance, advice, and feedback on Cure SMA programs, initiatives, and objectives related to serving and advocating with and for adults with SMA.
Carolyn Barrett
Stephen Bingman
Amber Bosselman
Kyle Derkowski
Jose Flores
Jaclyn Greenwood
Angie Lee
Emma Lockwood
Ryan Manriquez
Doug McCullough
Dan McHale
Brad Nunemaker
Peter Pingerelli
Collin Pollock
Brian Ronningen
Kevin Schaefer
Sandy Spoonemore
Steven Verdile
Lyza Weisman
Allie Williams