Cure SMA consists of a network of individuals at every age and stage of their spinal muscular atrophy (SMA) journeys. We work together to foster community and create a strong future for people with SMA.
Living with SMA
An SMA diagnosis can bring a lot of uncertainty. Many factors can impact what having SMA will mean for you or your family. These factors include what type of SMA you or your child have and what type of treatment and care you choose to pursue.
Every family has the right to receive support. They have the right to ask questions. They have the right to refuse or request certain treatment and care or to change their mind.* They have the right to make decisions in accordance with their own values and priorities.
For more information on an SMA diagnosis and what sort of support is available from Cure SMA, please contact [email protected] or call (800) 886-1762 and ask to speak with a member of our Community Support staff.
Cure SMA offers resource guides for parents of infants and children with SMA and teens and adults living with SMA. These guides assist in navigating daily life and planning for you and your family’s future.
*Cure SMA does not advocate any specific choices or decisions when it comes to treatment or care; we are here for anyone who wishes to talk through their options. All decisions related to SMA are highly personal, and every family needs to do what’s best for them.