A spinal muscular atrophy (SMA) diagnosis can bring a lot of uncertainty. Many factors can impact what having SMA will mean for you or your family. These factors include what type of SMA you or your child have, and what type of treatment and care you choose to pursue.
Every family has the right to receive support. They have the right to ask questions. They have the right to refuse or request certain treatment and care*, or to change their mind. They have the right to make decisions in accordance with their own values and priorities.
For more information on an SMA diagnosis and what sort of support is available from Cure SMA, please contact [email protected], or call (800) 886-1762 and ask to speak with a member of our family support staff.