Our mission is to drive research for treatments and a cure for SMA, and to support and empower everyone impacted by SMA today.

Our powerful progress includes:

  • Four approved treatments for SMA
  • Newborn screening across 100% of the U.S.
  • More clinical trials happening than ever before

However, our work is not over, and we need your support.

Quick Links

Spinal muscular atrophy (SMA) is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking.

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Cure SMA is committed to local support.
Find resources or treatment in your area.

Latest News

Family posing for a picture with a daughter that has SMA.

Genentech Releases Winter SMA Community Update Letter

January 28, 2026

All 2026 Walk-n-Roll Events Are Open

January 27, 2026

Cure SMA Advocacy Highlights of 2025

January 6, 2026

Together, We’re Changing the Story of SMA

December 11, 2025

Community Spotlight

Community Spotlight Photo - edited

Community Spotlight: Viola Dwyer, SMA Community Advocate from Pennsylvania

August 27, 2024

A Community’s Unwavering Love: How the Stickane Family Started a Foundation to Cure Spinal Muscular Atrophy

February 5, 2024

Community Spotlight: Holly Ianno and Family 

January 5, 2024

Community Spotlight: Dee and River Rolle

December 1, 2023
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